Posted 4/6/2010 1:28 PM (GMT 0)
I have had 2 infusions and am getting my third tomorrow. After my first, I noticed a decrease in frequency but that was it. After the second, I slowly started noticing more improvements. Now, I am also on pred at the moment, so I think that has helped things along, but I am now at the point that I am going basically once or twice a day, fully formed. It didn't happen overnight though-I still was having tons of gas and pain for a while after the second infusion, and still was having blood too for a while. (tomorrow will be 4 weeks since my last infusion) Over the last 4 weeks, things have slowly kept improving.
That said, I have noticed a bit of blood streaking (very minor) in the last few days for myself as well, and I think my body is ready for that next infusion. My GI said it can take many people up to 5 infusions or more to really get into remission, and that sometimes they have to play around either with the dosages or the frequency of the infusions to keep people in remission.
What else are you taking? Could you add something else in if need be until the next infusion? It sounds like it is doing some good, but might be working a bit slowly.