Callalily question

It's not a very conventional treatment for UC. I had tried all 5ASA's, pred, remicade, 6-mp, everything and nothing worked so that was my last hope before talking about surgery.
I went into the hospital where they hooked up by a PICC line to a TPN bag (total parenteral nutrition) which has all the necessary vitamins/minerals/electrolytes. For 5 days I wasn't able to put a thing in my mouth. Like seriously nothing. No water, no gum, no breath mints. After that my GI did a scope and everything in my colon appeared to be healed and then he let me start soft food again. At the end of the bowel rest my GI put me on elavil to kind of get my brain and my colon on the same track.
I think I was getting closer to being in remission and my colon just needed a push.

Kweeks,
Once I eliminated gluten and wheat, things improved greatly. I was eating lots of high fiber whole grain wheat bread, tortillas, etc. And once I cut those out things improved dramatically. I was able to taper off of the prednisone without any difficulty and my bowels were more normal than ever - no more gurgling or tummy aches either! I don't know if I am gluten intolerant or celiac, but I know I must be sensitive to the stuff! There is a lot we can have without eating gluten. I should know, I also have an eating disorder and have to abstain from sugar as well as weigh and measure every bite of food I eat. It has brought a lot of peace and sanity and it helps me see exactly what I may have eaten to cause an upset. I am currently getting over a smaller, proctitis like flare but I think stress had a lot to do with it! Each day seems to be getting better and better. Oh, and I cut out soda recently too. This is tough. I miss my coke zero. :(

my personal interpretation of uc- somehow there is some small cut/ulcer (regardless of cause, i believe there is a purely physical occurrence as well as a biological type, as there are two kinds of diabetes), when infiltrated by feces will trigger an immune response because of bacteria in the bloodstream. that being said, most meds (conventional and traditional) tend to treat the symptoms of the initial opening into the bloodstream (again, regardless of the cause) due to the location of this injury, no matter what you eat you will still have bacterial infiltration into the bloodstream as long as the wound is open. bowel rest is the only treatment that makes any logical sense to me for a long term solution.

as soon as i am able to get the time for it, i plan on bowel rest, total intestinal bacterial purge. when its healed up, inoculate with mass probiotics and diet in a way to have ideal flora down there
need to find a DIY alternative to TPN..

callalilly- id love to hear more about your experience so i can refine my theory/ find flaws beforehand! and that darwin quote is very relevant.

Samantha, i understand... thats where i left that idea... ive heard of the juice and water fasting/diets but i know its not the same thing as a bowel rest... TPN is in the bloodstream...
I had a client who is a GI, and while on that job, we talked a lot, tossed theories back and forth etc... she mentioned a drug called something like zifaxin (spelled wrong) that they used as a purge from time to time, probably more in candida cases though. She was of the belief that a gradual purge (the drug is a targeted antibiotic?) followed by massive probiotic intake could repopulate in an ideal balance... i thought about the natural competition factor, but i have no way to really model that...

Like i said, it was an idea that i will keep in the back of my mind... i just noticed in my experience that regardless the cause of the ulcers/cuts/openings/whatever, doctors and patients forget to treat it as an open wound... sometimes the simplest answers are overlooked. ever since i first researching, bowel rest/ TPN was the only treatment that really made sense to me

thanks though, and yeah i would never suggest doing something like this without supervision