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That stuffy, tight feeling feeling

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Ulcerative Colitis
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Posted 4/18/2010 2:10 AM (GMT 0)
A person with UC should eat small meals. I feel that tightness on my left side when I eat too much. What can I say? I'm a pig!! At any rate, if you're in remission, is that still the case? Is your colon still unable to handle regular size meals?
Posted 4/18/2010 8:16 AM (GMT 0)
I eat the same pretty much flaring or not....meaning the same amount of food. I love eating!! lol.

If you're having that stuffed feeling, maybe try digestive enzymes after eating.

The other thing is that the VSL plus fibre supplement could be causing gas.

q
Posted 4/18/2010 3:56 PM (GMT 0)
I try to eat smaller portions; but I'm with Quincy...I love food. I eat several small meals throughout the day; it just helps me digest better and gives me energy throughout the day -- but that's me!
Posted 4/18/2010 5:33 PM (GMT 0)
jb...painful constipation is usually limited inflammation in the rectum, rectal meds help with this as well as fibre supplements. And yes..making sure one has enough food during the day.

I'd personally rather have diarrhea than hard stools.

q
Posted 4/19/2010 6:55 PM (GMT 0)
So I'm getting that a stuffed feeling in the colon after meals is a permanent thing, not just something while flaring?

I'm a little nervous about tapering off pred, seeing as this is the only thing I'm experiencing -- bms fine, etc...
Posted 4/19/2010 7:07 PM (GMT 0)
Not for me. I'm totally back to normal when it comes to eating, and I pretty much stick to three meals a day.
Posted 4/20/2010 3:22 AM (GMT 0)
Ugh, not what I wanted to hear, fruitgirl :-) Now a little nervous about getting off pred. The stuffed feeling is more of a little annoyance. Hope I'm on the right track. It's the only sign that something is still amiss in colonland.
Posted 4/20/2010 5:31 AM (GMT 0)
Prednisone makes me hungry all the time. I can't believe you're almost done with your taper. Seems like you just started a week ago! I am worried I will flare again but still tapering slowly. I don't want to think too positive, whenever I think positive, I relapse. Then again, I overreact and think I am having a relapse if I have a bit of gas.
Posted 4/20/2010 5:59 AM (GMT 0)
I decided to taper more quickly this time. It will be about 5 weeks. Pred does make me hungry, but it also may be the mood stabilizer I'm on, Zyprexa. I have all the same concerns as you do, nssg. Are you doing the rectals? I really believe in them now. That and Canasa (daily)
Posted 4/20/2010 2:07 PM (GMT 0)
Also remember that I've been in remission for almost a year now, and I think that the longer you're in remission, the more "back to normal" you get. I'm pretty sure I was eating smaller meals when I first got into remission; when I was flaring, I was so sick that food didn't sound good and I just didn't eat much. I'm sure my body just wasn't able to handle big meals yet.
Posted 4/20/2010 2:37 PM (GMT 0)
I use Canasa but I don't have enemas. I would like to get some but my doctor feels that it probably won't help me much. Maybe I should ask her to prescribe some, it can't hurt. I am doing ok now but since switching to Colazal I think my BMs are a but less formed which is never a good sign. Other than that, I've had some bad gas on a few occasions but I think it was from eating too much junk food. When are you done tapering? It sounds like you're doing really well. I was in a year+ remission and what fruitgirl says is true, I was "normal" after I healed. Then I had the relapse. I gues it is something we will always have to be on the look out for unfortunately.
Posted 4/20/2010 7:40 PM (GMT 0)
My last five mg. is on Thursday, then I go 0 5 0 5 0 0 0 0 0 etc... Just started turmeric caps in my quest to throw every bit of anti-inflammatory arsenal at this thing.

Issue for me too is sleep. The Ambien stopped working so I'm cobbling together a nights sleep with other meds, last night trazadone and klonopin. Sleep is really important to my recovery, I believe. NSSG, don't know why your GI wouldn't want you to have enemas if you wanted them and felt you could retain them.
Posted 4/20/2010 7:59 PM (GMT 0)
Ellen....I have terrible insomnia too. Only slept about four hours last night and feel like a zombie. Did you ever try SleepyTime Tea. The chamomile and peppermint teas are good and relaxing but I still cannot sleep the night through. This is all due to that dreaded prednisone which I have been on...well...seems like forever. Tomorrow my taper will be 15 mgm and I give myself an Humira injection too. Still alternate days when I may have no BM and then next day several BM's. I attribute this to IBS along with the IBD as it takes only a teaspoon or two of Immodium to check it. No blood or mucus, but then at the end of all those BM's my butt is sore.
Posted 4/20/2010 8:15 PM (GMT 0)
I eat all day long. I just posted about having an insane appetite lately.
For example today was like tihs

wake at 7
eat breakfast at 830 oatmeal and strawberries and blueberries
eat a banada at 9
eat three oatmeal cookes at 10ish
eat some pita and hummus and yogurt with vsl at 1200,
eat a banana at 1230
eat a muffin and tea at 230
eat some rice crackers with sunbutter at 3
eat an applesauce at 330

..will eat salmon and rapini and salad by 530ish... and then will go rummaging for more after dinner..I dont know whats going on,, I am always hungry!
Posted 4/21/2010 12:30 AM (GMT 0)
I don't sleep either, it's awful. I take ambien and I think it helps. It doesn't get me 8 hours of sleep but at least I can get some sleep. If I don't take it, some nights I am literally up the entire night. I feel so run-down during the day if I don't get a good nights sleep but nothing helps enough. Maybe I need to take 10mg of Ambien, I've been taking 5mg. I will probably ask for more rectal meds next time I see my GI. I don't want to take any more oral drugs if I can avoid it. Let's hope this taper goes smoothly!!
Posted 4/21/2010 8:34 PM (GMT 0)
I eat a considerable amount of food a day usually 3800-4000 calories a day in a total of 6-7 meals. So I do deal with bloating from time to time. Eventually your stomach will get used it over time. On a side note I started adding more vegetables to my diet and now I'm extrememly bloated from eating vegetables. I changed nothing else in my diet except eating 3 serving of veggies a day and my stomach hates me even more now.mad

I can eat loads of chicken, red meat, oatmeal, brown rice and etc.... but when it comes veggies my stomach doesn't agree with them.

Posted 4/22/2010 4:01 AM (GMT 0)
I have to watch my weight because I'm on a weight gaining mood stabilizer called Zyprexa. It's known for being a weight gainer and rapid weight gain does cause diabetes, folks. Anyway, my pred cravings have died down at 5 mg. I'm learning not to keep sweets and fatty foods around the house.
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