Feeling very tired since Humira injection on Wednesday

     Is this normal?  I gave myself the Humira injection on Wednesday and ever since then I noticed I am much more fatigued than usual.  I don't sleep too well, so that may be a contributing factor too.  Anyone else experience this fatigue on Humira?  Remicade did not have this effect.   I see my GI doctor on May 12th and he said he would order blood work then.  So far, I haven't had any blood work done since starting Humira on March 24th.  Prior to that date (beginning of March) everything was within normal limits.

     Hi Laura!  I feel pretty good.  I still have urgency and have about five BM's about every other morning.  That could be why I am "pooped out" too..lol.  They are formed but sort of narrow and soft.  No blood or mucus and no pain.  I am using the Cort enemas (every other night), cort suppositories and Canasa, all on alternating nights.  They seem to help too.  I did eat too much yesterday, guess the prednisone is finally doing that to me, but I pooped it all out..lol.  Today I am keeping a food diary and eating much more healthy than yesterday...no junk food at all.  I picked up some Vitamin B12 because my multivitamin only contains a small amount of it.  Maybe that will perk me up.

     How are you feeling on the Remicade?

Christine1946 said...
</b> five BM's about every other morning. That could be why I am "pooped out" too..lol. They are formed but sort of narrow and soft. No blood or mucus and no pain. I am using the Cort enemas (every other night), cort suppositories and Canasa, all on alternating nights. They seem to help too. I did eat too much yesterday, guess the prednisone is finally doing that to me, but I pooped it all out..lol. Today I am keeping a food diary and eating much more healthy than yesterday...no junk food at all. I picked up some Vitamin B12 because my multivitamin only contains a small amount of it. Maybe that will perk me up.
How are you feeling on the Remicade?

Goodness, Christine-I was hoping the Humira would put you into a really solid remission. Seems like you are having to use a lot of other things and are STILL not in remission! But I am glad that at least you are not having pain, blood or mucus. That is an improvement. Still, I wish you could get rid of the urgency and frequency. 5 is still quite a lot! I'll be interested to hear if the healthy eating helps-I know I should be making more of an effort on that front as well.

I am doing. This week, I have started going twice a day (and there were 2 days I went 3 times) rather than once, and I have been feeling more bloated this week also. And I have seen a few streaks of blood. Blah. It has only been 2.5 weeks since my last infusion-I really shouldn't be having these issues yet. But I have not been getting enough sleep, and that always affects my UC, and I haven't been handling my stress well lately either. That is the biggest killer for me-stress. So I need to work on those things. I just added Canasa back in last night, so hopefully that will help. Things are formed, but they are softer this week than they have been, so I don't want to let things go on like that, you know? Ugh-it is always something! Thanks for asking-sorry I gave you such a long response, lol!

I am not fatigued on humira either.

     Boxermom, I am giving the Humira at least a few more months.  I watched my diet yesterday and today I only went once!!!  The Canasa seems to work better than the cort suppositories.  I cannot retain the cort enemas for long but at least I can get the full bottle up there now, where as before I was lucky to get in half the bottle.  The longest I can retain them is maybe twenty minutes which is also an improvement because they used to just ooze on out.

     I bought Vitamin B12 and took one yesterday.  Today I am not as tired.  Maybe I was lacking that vitamin.  My multivitamin only contains 40% of the recommended daily dose.  Guess we have to try different things to see what will work.

     Prednisone dose is down to 15 mgm, keeping my fingers crossed that once I get off it altogether my symptoms will NOT return.  Just taking one day at a time.

I have never been tired from Humira. I have been on it since Dec.  However, when I first began, my doctor ordered blood work every 2 weeks for the first 2 months.  Now I do blood work once a month.  Maybe your iron is low.  I feel Humira has been my life saver.  Still have some urgency issues and cramping, but normal stools and blood.  Sometimes I don't go to the bathroom for 2-3 days which is great since I was going 4-5 times a day and sometimes throwing up as well.  I hope it works for you:)

The first week of Humira was the same for me. I was very tired and felt like I was getting the flu. I think it was because in the first two days I had to load up with 4 shots. After about 4 days I felt like normal.