HealingWell
Search Close Search
☰

Mornings are a nightmare!

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/29/2010 12:45 AM (GMT 0)
I'm curious to know how many UC sufferers find mornings to be the worst part of the day.

I can't even think about leaving the house until I've been up for about 3 hours.  I wake up feeling the urge to "go" and then the cramping, frequent BMs and aching lasts until I feel like things have "settled down."  I actually feel more constipated than anything else most of the time too.  My stools are mostly formed but are painful to pass and it's such an effort to feel relieved.  I also notice blood in my stools first thing in the morning, and almost always on the paper.  I have been on predinisone twice, the first time after my diagnosis in August 2009, following a 5 day hospital stay, and I am currently tapering from a second round, but I don't think I have ever been in complete remission, unless you can be in remission and still have frequent BMs and some blood.  I do have an anal fissure, which I'm sure adds to the misery and bleeding to some extent, but I'm just so confused and often wonder if there is any hope for a somewhat normal life. 

 

Posted 4/29/2010 1:06 AM (GMT 0)
Yes, I always had to go a lot more in the mornings. My GI said it was common
Posted 4/29/2010 1:30 AM (GMT 0)
Mornings have always been worse.  I still get up three hours before leaving the house or really doing anything.  Usually fine then.  Eating helps.  Taking medication and relaxing a while.  UC seems to be this way with many! I do not make appointments until afternoon unless absolutely necessary.

ElaineNY

Posted 4/29/2010 2:33 AM (GMT 0)
When I am flaring mornings are also my worst time of day. Just like you I need to get up 3 hours before I need to be somewhere. Usually I am running back and forth to the bathroom and have to lay in bed in between to recover and deal with the cramping and the physical exhaustion of it all. I have been lucky that once I get going during the day I do pretty well; then once I am home at night things can turn for the worst again, with gurgling, gas cramps, gas passing, and trips to the bathroom again. Thankfully I am in some sort of remission for now but I am worried it will not last. It has only been about 2 months.
Posted 4/29/2010 6:15 AM (GMT 0)
Same here...when I'm flaring, it's the worst, and I would have to go immediately after waking up.

Are you using any rectal meds at this time? I would suggest you consider the retention enemas.

q
Posted 4/29/2010 11:40 AM (GMT 0)
Wow...i was just thinking the same thing this am. My stools are formed but it feels like im constipated too and they are hard to pass. Don't know why??? Is this still a flare? Or maybe i am eating something that is causing it?? Maybe its IBS?? I don't know. I can go a day or two without going at all. I am tapering off prednisone right now and do have hemmroids and passing some blood with the stool. Guessing from the hemroids. I may do a canasa supp tonight to see if that makes a difference. This disease is so hard to figure out!!!
Posted 4/29/2010 12:54 PM (GMT 0)
Same here. I have had IBS since childhood but diagnosed with ulcerative proctitis in 98. There are days, I would say every other day, when I only have one bowel movement, or NO bowel movement and then the next day may go up to five times in the morning. The first one is formed but then they get mushier..lol. I also have the feeling like I have to keep going even if just a bit comes out. So, I would say I am not out of the woods yet. The bleeding has stopped, haven't seen blood in quite some time, which is a good thing.
I would stay on the rectal meds every night. They are helping me.
Posted 4/29/2010 1:09 PM (GMT 0)
Yes I agree, mornings are the worst time of the day for me. Immediately upon opening my eyes, I have to take care of business. I get up at least 2 hours before I have to go anywhere.
Posted 4/29/2010 1:57 PM (GMT 0)
My bms have always "clustered in the mornings" to quote my former GI - common, I guess. One of my first signs of a flare is that I go at another time of day! Otherwise, if I go even up to 3 times in the morning, depending on what I've eaten, but then not for the rest of the day, I feel I'm in great shape.
Posted 4/29/2010 2:57 PM (GMT 0)
A lot of us must be related!  I am leaving soon - flying to Orlando - 2.5 hours.  Sitting on the aisle, near the restrooms, took my Imodium, did not eat except toast early.  I am ready!!

ElaineNY

Posted 4/29/2010 3:14 PM (GMT 0)
OK I am starting to feel more normal now..so for those of you who have these early morning BMS upon waking ARE YOU IN REMISSION RIGHT NOW? DO YOU still think its normal to go straight away when you get up?
Posted 4/29/2010 3:48 PM (GMT 0)
Yeah, I've basically always had a bm upon getting up. Once in a while right now that's not the case.... still taking a few constipating painkillers post-surgery. :-) But I can always count on having 2 bms within the first hour after waking - or so has been my pattern for 24 years.......
Posted 4/29/2010 4:19 PM (GMT 0)
yeah i know this awful feeling .. wake up before the time , sometimes 3 hours are not enough for me . the continuous BMS without fully discharging , medication , shower , breakfast , wear ..

i had been diagnosed from the childhood ,school days were the worst ..
Posted 4/29/2010 5:29 PM (GMT 0)

KrissyUC said...
OK I am starting to feel more normal now..so for those of you who have these early morning BMS upon waking ARE YOU IN REMISSION RIGHT NOW? DO YOU still think its normal to go straight away when you get up?

I am in remisssion and my "new normal" is 2 to 4X per morning over 2 plus hours. But unlike pre-remission I am able to travel without as much fear in the morning, much less urgency. No tenesmus, no fakeouts, no 2 am wakeups, normal looking BM's are the norm.
Before UC (10 years back) "normal" was 2-3 BM's per week not per day. My normal was somewhat constipated IOW compared to most people. I never thought about it or knew how other people were, never used laxatives, etc.
Posted 4/29/2010 6:42 PM (GMT 0)
Just wondering if those of you in remission still see blood most days, even though the urgency, cramping and frequency has lessened and is more normal. By normal, I guess one might expect that to be no more than 3 BMs or so most days and with formed stools. This is such a confusing disease and I think comparing notes is the best way for us to try and understand it and be able to define the words "normal, flaring and remission", among others. This forum is a great support system for all of us.
Posted 4/29/2010 6:50 PM (GMT 0)
No, if I'm in remission, I don't see blood - unless my hemmies are acting up. I didn't have cramping for the first 20 years! For me, remission would be no more than 3 fairly well formed stools, no bleeding or urgency.
Posted 4/29/2010 11:53 PM (GMT 0)
Mornings are very difficult for me too, but at least it's following a pattern with me.I seem to have a realyy bad morning and then i'm usually ok until the evening. I stress "usually". The one thing that is worse for me in the mornings though is nausea, i get it real bad for the first few hours i wake.
Marty
✚ New Topic ✚ Reply