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? for those of you going gluten-free

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Ulcerative Colitis
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Posted 5/19/2010 5:27 PM (GMT 0)
Hello--for anyone who has tried or is currently doing a gluten-free diet, did you have bloodwork that showed you had a gluten intolerance?  On my last bloodwork, my doc ordered the test that shows if someone has or may have Celiac disease.  Mine came back negative, so I am wondering if I would see any benefit to trying gluten-free or not. 

 

Posted 5/19/2010 5:45 PM (GMT 0)
You can test negative for celiac disease but still have gluten sensitivity. A gluten-free diet is definitely worth a trial run, but make sure you fully understand all the foods that contain gluten and the hidden sources of gluten.

Check out this article on Non-Celiac Gluten Sensitivity:

http://www.celiac.com/articles/1101/1/Gluten-Sensitivity-A-Gastroenterologists-Personal-Journey-Down-the-Gluten-Rabbit-Hole-by-Dr-Scot-Lewey/Page1.html

Posted 5/19/2010 7:15 PM (GMT 0)
I had a biopsy during an endoscopy that showed negative results. I decided to try the gf diet and definitely feel better, (at least I did until I just came down with the stomach flu!)
Posted 5/19/2010 7:55 PM (GMT 0)
I had the test over 5 years ago at my GI office and results were negative. I did not go gluten-free until Jan 2010 and bleeding stopped in 3 days. Obviously either the test was wrong or not sensitive enough. Or as stated already I am gluten sensitive but non-celiac. I don't care what the label is: gluten-free stopped my bleeding.

Good luck. Not everyone's results are as dramatic as mine were. Other diet modifications after that were less dramatic as quickly but put me in remission.
Posted 5/19/2010 8:13 PM (GMT 0)
I did the blood test and it rated significantly higher sensitivity than any other foods. I definitely notice the discomfort when I've eaten something with gluten.

It's my understanding that the biopsy is the definitive test for celiac, but I would trust the personal response more than any test!
Posted 5/19/2010 9:26 PM (GMT 0)
Gluten and fructose are some of food components that many people can be sensitive to without being allergic to or having celiac's. If you want to, try it out. Just make sure you know where to look for hidden gluten, after that a gluten free diet isn't as difficult as you might think (exception: eating out).
Posted 5/20/2010 6:08 AM (GMT 0)
I had negative test too but still throw up almost every time I eat bread style products - so I haven't eaten bread/yeast/wheat for over 10 years and if I do I always regret it! Good luck to you!
Posted 5/24/2010 8:20 PM (GMT 0)
Thanks for the responses everyone. I think I may give the gluten free a shot, but I really, really, REALLY hate the thought of giving up bread. It's my comfort food and I can't think of too many meals I go without it. A change would definitely be hard, but worth it if it works!
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