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Ulcerative Colitis
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Posted 7/1/2010 8:06 AM (GMT 0)
Discontinue rectals for now??
Im down to 25MG of pred, as previously mentioned I was put on another 40MG tapering 5mg per week. As much as I wanted to avoid them I was glad of the break from UC. Ive been able to stabalise my weight.. & even gain a little which was needed!
Anyways.. as Ive got down to 25mg I noticed an increase in wind some red on the TP so I started the nightly enamas again..Seems that there is an increase in blood and colon like tissue the morning after.. obviously im still in a flare which is not as bad because of the pred/placebo affect.
Should I continue the salfolak enama nightly? or avoid them until I come off the pred and see how things go.. no enama = No blood (surely a good thing??)
I tried the predfoam last night, which seem to have a greater negative affect (more blood).

I think I already know the answer - Stick with the enama's nightly - But just wanted you guys opinion.
Posted 7/1/2010 4:02 PM (GMT 0)
I would stick with the enemas for a bit longer and see how things are going as you wean off the pred.
Posted 7/1/2010 6:06 PM (GMT 0)
How long have you been on the Salofalk enemas nightly?You're still on the Imuran?q
Posted 7/2/2010 4:36 AM (GMT 0)
In my 19 yrs of experiance with proctitis, I wean myself off of them (every other day, then every 3rd day, ect) when I know things are better (going by particular symptoms I have when proctitis rears it's ugly head)...I don't stay on them long term, there's no proof (according to my GI and colon and recto surgeon) that they prevent flares...I only use cortifoam and since it's steroid based, even though barely, if any at all, steroids gets into your bloodstream (unlike taking oral pred) like with most med, your body can become resistant to them so that's a good number one reason why you should't try to depend on rectal meds indefinitely.
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