Constantly Hungry!!!!

Even though I am taking 60mg of Prednisone, it's definitely not causing my severe hunger. I am beginning to notice that once I eat, half an hour later I am in the bathroom and by the time I am done, it's like my insides are empty and I am famished again. I am almost led to believe I am not digesting any food. I am constantly tired and my insides hurt. I just feel like I am not getting enough nourishment. Does anyone else have this issue?

I was on Prednisone for my first flare and I immediately started getting better but this flare has been pretty severe and as a result, it's been very harsh on my insides and the steroids just haven't kicked in yet. The doctor has me continuing the 60mg for another week and I have to let him know if there is any improvement. Each flare seems to get worse and worse for me and the recovery time is getting longer and longer. It's so frustrating. I contemplated having a good cry over it today but to me that is a signal of defeat and I just can't let it rule my life because once I shed a tear over it, my mind-set will be completely thrown off.

My physician also recommended drinking a formula called Peptamen that is for those who are GI compromised. It's supposed to be super simple to digest and you can get the nourishment you need, HOWEVER he did not tell me HOW RIDICULOUSLY EXPENSIVE IT IS! It ranges anywhere from $150-$220 for a case of 24. I nearly died! Monday I plan on calling the doctor to see if there is a way it can be prescribed and covered by insurance but I am very very doubtful. I am clinging to the hope that it is though because I am supposed to be on all liquids for the next 6 days and it's very difficult to be when there's not much of anything that is easy to digest. Even Swanson broth and I don't seem to get along too well. To top it off I am trying to follow the SCD diet and that's iMPOSSIBLE with being on liquids because there are NO LIQUIDS that are SCD friendly...not even Jell-o! So it's very very difficult for me to stay on the diet right now with such a severe flare going on. Oh I just can't seem to get a break. At least I know I'm not alone!

Why do you reckon it's not the pred. that's giving you a voracious appetite?

One of the unmentioned side effects of pred. is it makes you hungry all the time.

It's just one of the many problems you have to deal with, especially if you are trying to follow the SCD diet.

They gave steroids to returning allied pow's that were held captive (and almost starved to death) by the Japanese in WW11.

Seaside, were you on the SCD diet the first time?

You might find a clue there.

A friend of mine tried the SCD diet and he went dangerously thin.

I guess it's a diet you have to tailor to your own personal situation.

Also perhaps you need IV pred to get into remission? Have you been in the hospital for this flare? I know my last one 60mg wasnt enough oral to start it but after 2 days of IV it has got it going granted its still been almost a month and im just now starting to taper.