Starting to discuss surgery

Well, after seven years and many medications, it looks like surgery is on the horizon. I remember when I was first diagnosed and my GI told me about the different meds and said that only a small percentage go on to surgery. He told me not to worry because it may not happen. Well it's happening.

I did all the soul searching and self talk. You know, this will be a new beginning, I'll get my life back, I won't have to worry about colon cancer anymore. But you know what. I'm still scared crapless! My anxieties are building up and I don't want to do it but have no choice.

I told my GI I wouldn't be opposed to being grabbed off the street and drugged, taken to a hospital, have the operation and I could just wake up when its all over.

Sorry, I just had to vent...

Sounds like we are in a similar situation. I've been on prednisone since the end of last year and have basically run out of pharmacological options. My GI has been prodding me towards surgery for a while now. I really want to get on with my life, and out of this flare, but the idea of having my colon removed is overwhelming to me. When I was diagnosed in 2003 my doctor mentioned surgery may be necessary some time in the future, but I was an invincible teenager, and that simply wasn't going to happen to me.

Oh, I noticed in your signature that you tried humira after remicade stopped working. I'm currently on remicade, and after a few good months its effects have diminished significantly. How long were you on the humira before you realized it was becoming ineffective?

Wishing you the best of luck with the surgery. Hopefully you will be with the vast majority who are happy with the results.

its terryfying thinking of surgery and the idea of it. BUT its worth it, i promise!
I had surgery three and half years ago and this is the best thing ever. Yes the surgery was hard, yes the recovery is painful but the minute you wake up you feel clean,, you can tell the disease is GONE!!! I remember being so happy that i would be able to ask for a juice and drink it, when i had UC juice made me so sick.
AND you get the plus of getting to say one of my favorite things, when i HAD UC.

So be scared, its normal, and be worried, even about stupid things, thats normal too. But also remember that it means a life without meds, without pain, without being chained to a toilet, basically it means having your life again!

Summerstorm & Suebear - If it wasn't for your inspirational positive posts I'd be even more terrified than I am. I've been a member here for a while now and your previous posts & threads have always put me at ease - Thank you!