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Ulcerative Colitis
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Posted 10/6/2010 2:08 PM (GMT 0)
Lately I have been having some strange symptoms. I have pan colitis, but I think I am in remission after a mild flare.

I am having pretty normal BM's - (formed stools with no mucous or blood are what I consider normal). However, in between times I am having terrible gas, bloating, urgency, but when I get to the bathroom, its usually just mucous (I think). Kind of brownish/pinkish liquidy stuff--not what I really think of as mucous. I also have lots of heartburn lately and feel full really quickly. I think this is because of the bloating, which is pressing on my stomach. If it weren't for these symptoms, I would think I was in remission. I just feel... bloated and yucky and filled with gas!

My last colonoscopy was less than a year ago and it showed very mild inflammation, but I did have a tubular adenoma removed (not cancerous). My doctor did say though that those are the kinds that usually turn into cancer.

Does anyone else have these same symptoms? Any idea what this could be?

Like I said -- my "full" bm's are normal - no cramping, bleeding, mucous or anything. So what could be going on in the meantime, and what would you recommend trying?

I am on rectal meds (Rowasa) two nights a week, but these symptoms seem to be higher up or something.

Thanks!
Posted 10/6/2010 2:26 PM (GMT 0)
I've been having similar symptoms...no idea what it means but I also have pain on my left side. I've recently been on 50mg of prenisone due to a flare and it went away but now that I've tappered off to 15 it's back and just as you describe. I hope we find an anwser.
Posted 10/6/2010 2:54 PM (GMT 0)
Your rectum is inflamed and you're not in remission....at least your symptoms would be a flare for me.

Go back to nightly Rowasa...

I see you mentioned you're over a mild flare...how long were you on the Rowasa nightly and tapered?

Are you on probiotics as well?

Definitely flare from my perspective.

q
Posted 10/6/2010 3:06 PM (GMT 0)
Not on probiotics, I need to start though. I have taken them before and they seemed to make me nauseous. Is this common? I thought about calling my doctor to see if he would prescribe VSL 3DS900. From what I read on here, insurance will cover that form. I hope so, because I have great insurance and could not afford it otherwise.

I think I will increase the Rowasa, and see if that controls things a bit better.

Thanks for the advice! I could never ask anyone the questions I discuss on here and I'm very thankful I discovered this board and all of you fellow UC'ers out there!
Posted 10/6/2010 3:08 PM (GMT 0)
Keep us posted.

The nausea might be from a flare in the past...what kind did you take?

I've never taken VSL....all you can do is try.
keep us posted how you're doing.
q
Posted 10/6/2010 3:14 PM (GMT 0)
I'm not sure what brand it was, but it was refrigerated and was in the billions. I've kept it refrigerated, but it is pretty old now. I'm sure I need a new one by now.

What would you recommend I do on the enemas? Should I increase to every night and then taper from there once I get better control? Or should I increase one or two more times a week and see if that helps?

I'm ready to stop this bloat ASAP. I sit at a desk all day and am constantly up and down to go to the restroom, just for the gas/mucous issue. Annoying!

Thanks!
Posted 10/6/2010 3:18 PM (GMT 0)
And Thank you Super 8 for your reply! Its good to know someone else has these symptoms. I don't know why, after having this disease so long, that I still worry it might not be my colitis and may be something different that I am just missing, or that the colitis is covering up.

Hopefully we will both get some relief soon. I feel very uncomfortable and gassy/heartburn most of the time.
Posted 10/6/2010 10:05 PM (GMT 0)
Sort of the same with me. I thought I was having a flare so I upped my asacol gradually from 2 pills 2x/day to 4, now 2 pills 3xday. No full flare but some minor blood, I think from being sort of constipated? Or tenesmus? I just learned this word today! The flare I thought was starting was the usual area, left side, upper area, this is reason for the increased asacol. Now it seems to have gone away for now, left side feeling OK.

Now the right upper side under my rib is a bit a pain, small constant pain, like a stitch after you've been running or something. Sort of gassy, burping... I don't know, it's strange as I've never experienced this before. Now there's some minor urinary issues, it a little more yellow than usual. Could it be because of asacol increase?

Should I decrease my asacol and take a mild laxative? I feel sort of full, but having 2 minor bm's, no blood as in a flare, medium form.

This UC is a strange one and seems to include different symptoms occassionally.
thx
Posted 10/7/2010 3:11 AM (GMT 0)
gingerdog..Yes, if it were me, I'd start the Rowasa nightly for a few weeks...then see how you're doing and if all is fine for a week straight, then taper to every second nightly.

Have you added anything new regarding food...any artificial sweeteners? supplements, etc?

q
Posted 10/7/2010 3:48 AM (GMT 0)
Many times in the past when my symptoms started I wondered is this a flare or something else - it was ALWAYS a flare.  I think I wanted it to be something else but now I know better...
Posted 10/7/2010 1:53 PM (GMT 0)
katkat:

tenesmus: OMG its awful. It hurts no matter what you do, but especially when sitting at a desk all day. Also, I have the same symptom as you describe, with the pain under the right rib. Doc thought it might be gallbladder but a scan showed nothing. Strange. Sometimes a course of Prilosec or Nexium helps me with that. I also have a very "ulcery" feeling in my stomach a lot. Like my stomach is empty. Antacids/acid blockers help for a while, but it never completely goes away for any length of time.

Quincy: As you suggested, I think I will increase my Rowasa to nightly and go from there. I have also not been taking my Metamucil regularly like I should. That is the only change I have made, and that may be the culprit.

Thanks to all for your advice!
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