Curious

Just got back from the dr for a follow up appt and wanted to let you all know how it went.

Quincy - you are going to be disappointed. He said he could give me pills in addition to my rowasa and they would be safe while pregnant, but there is no need since I am doing good (1-2 bm's a day, no blood, no mucus). He said until he does the colonoscopy a few weeks after I have the baby and sees the extent of my disease, he won't prescribe pills. He told me to stick with the Rowasa until then.

What else... He told me that my disease is mild even though the flex sig showed moderate inflammation. (that kind of confused me). After I have the baby there is a possibility of flaring again. He said that the rowasa should keep it stable and he will work closely with me. I asked him if it is possible for my UC to get worse over time and he said yes, but if I stay under medical care and take the maintenance drugs, there is less chance for it to progress badly.


I go again Dec. 3 and then I won't see him until after the baby. On a side note, I can't believe I am going to be a mom in 2 months!!

For some years I analyzed every poop, also.... and then found out that I just seem to be a bit more, shall we say, responsive to the kind of food I've eaten than my non-UC husband, but that even non-UCers have fluctuation in consistency.
So, I don't worry about a loose stool if, (like the other day) I had a huge helping of roasted root vegetables with dinner.
If I had all loose every day for 5 days, I'd be concerned. But as your doc said, blood, mucus, frequency are the things I worry about more.

How exciting, to become a mom! I have two boys, now young men, and - although tiring and intense, their baby days are times I look back on as being magical. My first was born Dec 22 - close to your due date!

Are you planning to breastfeed? I was a lucky one who went into remission with pregnancy, and breastfeeding prolonged that remission, but since you were dxed in pregnancy, your story is different......

Keep us posted!

Just read the whole thread, and to answer your question - the tissue takes a lot longer to heal than I ever think it does, so I try to be on the enemas longer than I see symptoms. I have been on them for 6 months at a time.... I can't think right now of how long I've been on them nightly at a time.... but the answer is months and months!

hmvpdx said...
aguywithuc,
I was wondering about your UC related stroke or thrombosis, He said it was UC inflammation + pred + dehydration, Im a runner and before each event/long run, I take 2 Asacol, 2/3 Pred, and 2 Immodium, No water during and drink powerade after..Seems to keep me under control, but now am a little worried Im putting myself at risk...

I'm more than a little worried. I am trying to stay hydrated but notice that lots of people complain about the blood thinners causing memory loss, exactly the opposite of what I need going into interviews at the end of the job season. So I ignore their advice and have a lot of caffeine etc. In the hospital major hydration efforts seemed to help with the pain. The vicodin is really helping with the UC but it hurt tonight playing with my daughter so I am hydrating to 'catch-up' after several key interviews this week.

I try to limit it as much as possible and will stop the caffeine as soon as I am able to.

What led to the hospital was HIGH doses of prednisone, high platelet count and dehydration that had gone on for days without relief. I had just become obsessed with getting the place totally organized ( before the pred fell below 30 because above 30 it gives me the git-r-done attitude ) building shelves in the garage etc. prior to the block party. I tasted salt in my mouth and just kept going I think as long as you are limiting it to within a single day you should be fine but you can always do blood tests to assure yourself its a-ok. They even have something called a 'coagulation panel' which would be good to have taken immediately following one of your events. You can schedule your own blood tests via directlabs.com.

i guess - since i only have 2 more months and am feeling normal, i didn't push that hard. if i sense things are turning around i will calling him asap for some meds.

i will be 37 weeks (full term) on Dec 23 so I could have an xmas baby!!

Bosco...

Well it is interesting to me as well that your doc didn't give you any oral meds but at least you have the option to call him. 

Also, about overanalyzing poops...lol...I can laugh about this because I am one of those people to overthinks EVERYTHING...try not to worry day to day, look at it week by week. 

Oh, for me, using the Rowasa makes my poos 'fluffier.'  FYI.