HealingWell
Search Close Search
☰

Results of my test today:(

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/8/2010 10:44 PM (GMT 0)
I had a colonoscopy today and this is what the doctor found:  Proctitus,congestion,erythema,friability, granularity and ulceration in the rectum and distal sigmoid colon compatible with ulcerative colitis.  He also did a biopsy but I wont get results for 7-10 days. Meds:  Asacol 400mg 3tabs /3xday and Canasa 1000mg Supp   -- This is worse than last time. Im so upset. i still have to rest for a while. I'm afraid to do anything stressful to my body.  :-(      By the way, congrats to mdot for placing in the ironman--that is amazing! I hope i see that finish line one day! 
Posted 11/9/2010 12:14 AM (GMT 0)
I'm sorry you're feeling bad about the results. I remember when I found out my proci*** had spread to pancolitis, I was pretty upset. The truth is, it was just as difficult to treat when it was proctitis so the name isn't too important. Let's just be hopeful you can get this under control with the additional Asacol and Canasa. Are you using Rowasa? I use Canasa in the morning and Rowasa or Cortifoam at night.
Posted 11/9/2010 12:52 AM (GMT 0)
No just the canasa. I know the doctor said 1 at bedtime but the label on the med says twice daily. I will call in the am to clarify. I have to see the doc again in 3 weeks to see how things are going. I hope its better. If not, I will def. ask about the rowasa. Thanks
Posted 11/9/2010 1:51 AM (GMT 0)
I'm sorry the results aren't happier news! But as nssg said, the proctitis is so stubborn, that.... some more inches of ulceration, etc doesn't feel a whole lot different and isn't treated so differently.
The Rowasa, though, will go father up into your colon, so that might be a way to help stop this thing in its tracks. Some docs don't even mention it because they think people won't won't to do the enemas (the "eww factor") but - it might be just the thing for you!
Let us know what your doc says, if you ask.
Posted 11/9/2010 4:38 AM (GMT 0)
Hi...your symptoms are fairly mild compared to what the scope stated. Is the inflammation/ulceration/friability the same all the way through, meaning bleeding in the sigmoid as well as the rectum?

You should have been put on the enemas, but maybe call the doc tomorrow and see if you can get those as well to use the Canasa during the day and the enemas at night.

It's an unfortunate thing that UC in the rectum rarely stays that way...you being upset is truly justified.

It's good you're on meds and you will definitely improve....but you should do better on the enemas when you're able to get them.

Do consider probiotics and fibre supplements....

Thanks for the update..when you get the biopsy results, remember to get a copy for your records.

WEre you awake for your scope?

quincy
Posted 11/9/2010 1:56 PM (GMT 0)
The diagnosis says "rectal bleeding". It didnt say anything about sigmoid bleeding. When I call today to clarify the dosage of the canasa, I will ask about the rowasa. If not for this forum, I would know nothing about that. I was asleep during the procedure. My doctor came in and talked to me during recovery. I was very loopy, but my husband filled me after my long nap at home. I have some very graphic pictures along with a written diagnosis--the one I posted. I started taking Floranex last week and I will start the scd yogurt as soon as the machine is delivered. Someone suggested the L-glutamine and I will do that when I feel like excercising again. This weekend, I'm supposed to do an adventure race with a team of guys--they needed one woman for the team (thats the rule) and that would be me. I signed up for this months ago. I really want to do it, but I dont know if it will make me more sick. I will be letting down a whole team if i cant do it or find another female to replace me. I've always been so proud of my good health at my age. I will do whatever I need to do to be healthy again. The support here is very helpful.
Posted 11/9/2010 3:27 PM (GMT 0)
For the day use an imodium. Use the Canasa twice a day till then.

Hang tough....you obviously have the body for that type of sport, so you just need to get things dealt with UC-wise. It doesn't nean you won't be able to do it...it just means you have to be aware of all that goes on and what some of your symptoms can mean.

Keep us posted how you're doing.

q
Posted 11/11/2010 12:34 PM (GMT 0)
Thanks, I did find a woman to replace me on the team. I figured that I would be holding them back anyway because I dont think I have the endurance yet. There will be more races in my future---thinking positive!
Posted 11/11/2010 2:28 PM (GMT 0)
so what are your current symptoms?

 

also, i think the quickest way out of a flare, is to hit it early and hit it hard! So, for me, that has meant, increased oral meds, rowasa nightly( if you have inflammation past your rectum you NEED this, canasa WILL NOT go up as far as you need it to) and canasa up to 3 times a day.  I would put one in the morning, then becasue i would have alot of late morning/afternoon diarhea, when i knew i was "empty" put another canasa in.  You will bathe your inflamed colon in the stuff that helps it heal.  

 

You can also try keeping a food/symptom diary.  Certain foods are really bothersome for people especially during a flare. 

 

Posted 11/11/2010 2:49 PM (GMT 0)
a note about SCD yogurt: some people (me included) are successful with SCD diet but not the SCD yogurt. I've been tested for lactose and am not intolerant (they say) but have tried and tried with scd yogurt and it's a no-go with me.

the best results I've seen with SCD are removing gluten #1, removing carbs and starches and since my last failure with yogurt removing all dairy. it's been the only remission I've had in 10 years.

good luck with the yogurt and SCD in general.
I am VERY active, weight lift, play competitive tennis, badminton and pickleball (fun) and I have lots of energy on SCD.
Posted 11/11/2010 4:47 PM (GMT 0)
I was wondering the same thing about yogurt, even SCD yogurt. If whey was a problem for you because of lactose then yogurt may not help you. But maybe it was because of all the additives in whey so yogurt may work for you after all. Experiment and take charge.

Post Edited (BabeintheWoods) : 11/11/2010 9:53:15 AM (GMT-7)

Posted 11/11/2010 4:59 PM (GMT 0)
Please don't worry, the body can reverse and you can get better too. What happened to you, happened to me and I wasn't taking meds so shame on me! It doesn't always rain, the sun will shine again in your life, have Faith and HOPE.

Hugs,

Linda

Posted 11/11/2010 9:46 PM (GMT 0)
Thanks! I keep thinking positive. Today I felt the better than I've felt in a long time. Is it possible that the prep for the test got rid of some really bad bacteria or something? I seem to have more energy since the test (maybe its the additional med.) Im using the scd legal list for food and its not so bad. I just got the yogurt machine and I will make a batch to try. We will see how I do. I am no longer running to the potty. In fact I've only been once so far today. I still see some blood (but not nearly as much) along with some little pieces of whatever that is. Maybe from the Canasa??I hope its a good sign. Anyway, I dont have any pain and I went for a swim again today. The watered down white grape juice with L-glutamine powder is my post workout drink now. I know it doesnt have protein, but I eat some scrambled egg whites when I get home. It seems to be working.
✚ New Topic ✚ Reply