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Dont feel normal does anyone feel like this????????

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Ulcerative Colitis
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Posted 1/8/2011 8:42 AM (GMT 0)
Hey everyone I have been out of hospital for a week as I went in just before christmas with a high temp. Doctor said I had a kidney infection, pneumonia, abscess in my bowel i was put in and thats where i stayed for 7 days with 3 different lots of antibiotics, steroids and ulcerative colitis meds. I didnt feel as sick as the doctor was telling me. Since coming home i am still on high dose of prednisalone 35mg tappering 5mg a week, 3g mesalazine granules 200mg imurn & probiotic tablets 3 a day.

I started of where i couldnt sleep now i over sleep, have the shakes, still short of breath and feel dizzy and spaced out alot. Its a funny feeling that i feel as if i am about to pass out but dont. My colitis seems to be ok but i have slight little niggles in my tummy but nothing major.

Has anyone ever felt like this or know what maybe going on. Could it be my blood pressure?

Posted 1/8/2011 12:05 PM (GMT 0)
Maybe you should put a call into your doc just to get their take on it.
Posted 1/8/2011 6:53 PM (GMT 0)
It is probably one of the drugs you are on causing side effects would be my guess.
Posted 1/9/2011 1:24 AM (GMT 0)
If I was you I would see a Doctor. Might be nothing serious but something is not right.
Posted 1/9/2011 5:47 PM (GMT 0)
     Do you check your blood pressure?  Prednisone raised mine to alarming high limits....216/110...had to be hospitalized for it AND the UC back in 08.
Posted 1/11/2011 2:33 AM (GMT 0)
 

Hey sheree

I've got similar symptoms to you it seems. I've felt 'off' since being disgnosed with UC. But I could never work out if it was the meds or the condition itself or my levels of stress

and anxiety. The prednisone does wonders for my UC however I tremble quite badly and I feel faint like I'm going to pass out but never do. Particularly when doing mild physical activity like walking around the mall etc. The trembling or shakes are a common side effect of pred but when I tell the doc about the fainting sensation it's met with a shrug of the shoulders a quick BP test and a "the meds you're on don't cause that" and that's about it. So I just assumed it was a symptom of my anxiety. Pred is the only drug we have in common however as I take 6mp aswell.

Sorry I can't give you an explination but I can offer you empathy.

Posted 1/11/2011 3:23 AM (GMT 0)
I felt like that when I was on high doses of prednisone. Turns out, I had become diabetic from the prednisone. My sugar levels were all over the place. The doctor put me on some diabetic medication until I was off of the prednisone. I'm OK, now. No problems with my glucose levels. The last time I had to take prednisone, I didn't have that symptom. I had been on about 100 mg/day IV when I had the problems with high glucose.
Posted 1/11/2011 8:10 AM (GMT 0)
Hi All! thank you for your replies Muchly appreciated.

I wen't to the doctors to be checked today. They checked my blood pressure and it was ok at the time. She also felt my stomach and said it felt soft. Her conclusion is that because I had 4 to 5 different infections all at once that my body is still trying to recover. She wants me to have a blood test in a week to check the inflamation level and then another week after that to make sure nothing serious is going on again.

She told me to stay away from ill people and if i get a temp. to come straight back. So it looks like alot of rest, good diet and probiotics at the moment to recover.

It just made me angry that I had been sicker since the colonoscopy and thats what led to all the infections and the GI just keep telling me I had IBS ontop of my ulcerative colitis when really it was an abscess forming.. Why didn't he pick it up earlier???

Posted 1/11/2011 8:56 AM (GMT 0)
Did any talk of Crohn's come up?

If your colon wasn't perforated, I don't think you got sick from it..coincidence?

I hope you're on the way to healing.

q
Posted 1/13/2011 11:53 PM (GMT 0)
No ... Have been tested and tested to make sure it is ulcerative colitis and not crohns. All biopsies come back as ulcerative colitis..

 

Posted 1/14/2011 6:04 AM (GMT 0)
I don't think UC has a specific test. Where exactly is your inflammation...throughout or limited?

What meds are you on at this point?

Do you have copies of your biopsies results?

q
Posted 1/15/2011 3:43 AM (GMT 0)
I have been told that it is from my rectum up 50cms along the bowel.. I don't have any copies of my biopsies just what the doctor has told me. I am on 35mg prednisolone reducing weekly by 5mg. mesalzine granules 3grams a day, imuran 200mg day and probiotics.I also suffer asthma so i take medication each day for that also...I am not taking enemas at present as i have no blood or mucus touch wood.
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