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Ulcerative Colitis
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Posted 2/14/2011 7:48 PM (GMT 0)
I have been on Mesalamine enemas for about 4 months.  They worked at 1st but now I feel like I am slowly regressing.  What would be the next step?  I am also on Colazal (3 750 MG pills 3x daily). 
Posted 2/14/2011 9:40 PM (GMT 0)
There are so many things you could try. You could try a different 5ASA, colazal works well for some and not for others. I didn't have much luck with it personally... You could try increasing the enemas to 2x a day, or adding a suppository in the morning. You could see about adding a steroid enema if necessary... It really depends how much you feel you're regressing. Obviously you will have to see your GI to get prescriptions, did you call and let him know what's going on? Have you tried adding probiotics or changing your diet? Many people have luck limiting carbs and sugars, diet hasn't really helped me but it's worth a try.
Posted 2/14/2011 10:36 PM (GMT 0)
It is really weird, because its the 2nd time I've felt I was heading towards remission and then all of a sudden I take a turn for the worse and I didn't change anything with my medicine or diet. I really hope to stay off pred. I put a call in today, I am waiting to hear back from him.
Posted 2/14/2011 11:54 PM (GMT 0)
Selly, I hate when that happens. I feel like I can never 100% think I am doing great because you never know when things will take a turn for the worst. Although I do think it is beneficial to think positive. I hope this is a minor blip that you can get over quickly. I would definitely try to nip it with enemas or a different 5ASa before opting for pred if possible.
Posted 2/15/2011 2:00 AM (GMT 0)
If the doctor pushes pred I always ask to try the steroi enemas first.... and I've avoided pred for a few decades that way. They don't work for everyone, and - steroids are bad news no matter how you look at them, but I figure they're a less bad for me than the prednisone.....

I'd also definitely try a different oral 5-ASA. I've read here about so many people who suddenly find one that works a lot better for them!

And probiotics seem to make a huge difference for me. We're all different, but if you haven't tried them, it might be worth doing so.
Posted 2/15/2011 6:03 PM (GMT 0)
I just tried Ultimate Flora this morning, and I can immediately feel a difference. Yesterday morning my stomach was "growling" today I feel somewhat "normal." I also started to take my Turmeric pills again. I will see where this takes me. Thanks for all the advice!
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