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I'm falling apart!

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Ulcerative Colitis
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Posted 2/18/2011 12:28 AM (GMT 0)
Nine months ago, the only problems I had was a little arthritis in my hip and one big toe.

Now, I have:
- UC, in remission (I think)
- Tinnitus, it is so loud I am having troubles hearing things
- Bad heartburn, right now it hurts the whole length of my sternum
and I've urped a couple of times today
- Canker sores, yesterday 2 showed up and 2 more today
- The arthritis is still there

I'm only 55, what is life going to be like in 10 or 20 years??
Posted 2/18/2011 12:29 AM (GMT 0)
I feel the same, and I'm only 27!

Have you talked to your doctor about the tinnitus and heartburn?
Posted 2/18/2011 12:43 AM (GMT 0)
I'm not sure who I should see, my PCP or GI
Posted 2/18/2011 12:52 AM (GMT 0)
Probably a PCP. I don't think all of this is related to GI issues. Maybe a rheumatologist would be helpful?

I have a lot of random issues too, you just reminded me that the canker sore that was bothering me is now gone! It's funny how they are so annoying when they are there but you don't even notice when they are gone.
Posted 2/18/2011 12:56 AM (GMT 0)
I agree. See your PCP, or a specialist if you don't think your PCP would help you much (I only say this because I tend to not get much help from PCP and I'd rather go right to a specilist when possible).

Sorry you are having to deal with all of this. I had a lot of issues pop up the year I got UC too, but things have mellowed out for me.

Posted 2/18/2011 1:51 AM (GMT 0)
Primary Care Physician

Unfortunately, I'm on a low-fiber diet until I see my GI in a couple of weeks.

I'll try lying on my stomach right now!!
Posted 2/18/2011 2:02 AM (GMT 0)
Sara14,

Thanks for the info, I'm sorry you had so many issues your first year. It's nice to know I can look forward to better times.
Posted 2/18/2011 2:02 AM (GMT 0)
yes, it's an evil ulcer that is usually on the gum line and hurts like hell!
Posted 2/18/2011 2:40 AM (GMT 0)
Welcome to the falling apart group! I know what it's like to have so many things go wrong with you at one time unfortunately. I began falling apart at 22!

Btw, I have been on Prilosec for about 3-4 years or so now for my acid reflux. Very rarely do I get heartburn though and the times I have, I thought I was dying! Can you take antacids until you get in to see your doc?
Posted 2/18/2011 3:03 AM (GMT 0)
i have arthritics related to UC since i was 15. now i'm 21. the inflamed hips are the worst painful joints ever, i remember 2 weeks ago, i just woke up every 3 hours to take painkillers.
Posted 2/18/2011 4:20 AM (GMT 0)
It's interesting that you're getting canker sores, because I remember getting a lot of canker sores all of a sudden, too, the first year I got UC. There's probably no connection, but still sort of interesting. Hang in there until you can get in to see your doctor!
Posted 2/18/2011 1:15 PM (GMT 0)
I googled colitis and canker sores and found a lot of articles that claim they are related to auto-immune disorders. The Mayo Clinic websites even mentions IBD as one of the causes of canker sores.
Posted 2/18/2011 1:44 PM (GMT 0)
Yes, canker sores are an extra manifestation of IBD. You can also check out the CCFA website for more EM's of IBD. Luckily I have never had canker sores associated with Uc.
Posted 2/18/2011 2:14 PM (GMT 0)
When I was first diagnosed with UC, I'd been ignoring the slight rectal bleeding, because I knew I had UP (and I'd never "owned" that or did any research on it.... pre-Internet days) and I kept getting sores in my mouth.... so I asked my dentist, and it was he who urged me to go see my doctor. Within 5 minutes she told me she figured I had UC..... and then did a sig.
So, yeah, I've had UC-related mouth sores.
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