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UC sufferer since 1999, taking no meds, searching for alternative medicines, suggestions and advice

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Ulcerative Colitis
Please Help. I've had UC since 1999 and I'm searching for advice, suggestions and product/supplement alternatives to meds.
Ulcerative Colitis - 50.0% - 1 votes
supplements - 0.0% - 0 votes
alternative medicine - 50.0% - 1 votes
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Posted 3/23/2011 6:44 PM (GMT 0)

my basic stats: Diagnosed with Ulcerative Colitis in 1999, No meds, I take PB8 probiotic, glucommanan fiber (when I remember to take it) prenatal multi-vitamin (to get more minerals needed for another health issue called MTHFR) and a capsule Liver Cleanse supplement.  At this point in time, I'm not really following any kind of diet, but I'm trying to eliminate red meat, chicken, fried foods and sugar... starting slowly.  Tried acacia fiber, only to discover that even the smallest dosage causes AWFUL pain and gas, loud enough for people to hear.  I've also tried metamucil in the past and am reluctant to try it again, as it made me bloat and I had the worst griping pains.

What products or methods have you used to help ease the pain and embarrassment of UC?  I don't go out in public much as I would like, as I'm always looking for the restroom as soon as I enter the building, just in case I have to go.

Is a worm and parasite cleanse beneficial?  I've used the Dr. Natura cleanse, but am not sure if it helped or hurt me.  At the time, I didn't take probiotics as I was using the cleanse sytem, and only completed two months.  That has been about five years ago.  I'm not sure if doing such a cleanse is good to do each year or not.

Any suggestions or advice would be greatly appreciated.

THANK YOU!  smilewinkgrin   

Posted 3/23/2011 7:15 PM (GMT 0)
Hello, I tried without meds for almost five years, dumb, dumb, dumb. They really do help if you can tolerate them. I do take Absorbplus every morning for my gut, Lauricin for yeast and over all well being, Emergen C, Co q 10, a TON of Natren probiotics.
Posted 3/23/2011 7:26 PM (GMT 0)
There is also alternative meds such as Low Dose Naltexone (LDN) that get to the root of the problem and without the serious side effect of traditional medicine. I'm working with a holisitic/intergrative medical doctor. To fina a doctor who prescribes it call Irmat Compounding pharmacy in NYC or Skips Pharmacy in Boca Raton FL.  They wil give out doctor names. You can also google the thread her for "LDN" for more info.

I'm still taking the traditional stuff for now along with LDN and suppliments until I get into remission. I was just introduced to BSP-201 which is shea nut extract which works as an antiflammatory.  http://bsp-201.com/

I say try using the level 1 traditional meds - mesalamines and balance it out with finding an integrative doctor. It's good to get different perspective on treatments. Luckally my GI is Ok with this approach. Some GIs can be very closed minded.

Good luck with your search on the right combo for you!

Posted 3/23/2011 7:38 PM (GMT 0)
Is your UC severe or moderate? Have you ever considered surgery? I know nobody likes to think about surgery as an option. I was very skeptical of the J pouch surgery and I fought it for a long time. But I was losing the battle with my UC because all the meds failed me. I tried alternative, natural things...didn't help. Even tried acupuncture...didn't help either. I had surgery last June and I'm thrilled with my results. It's been a life saver for me and I don't have to take anymore drugs. It's a very tough descision to make. Hope you find something that works for you.
Posted 3/24/2011 6:52 AM (GMT 0)
I'm no expert, and I've been on meds(5-ASA) since day one, but I've heard of many things that will help/cure you to not need meds..which is my ultimate goal

TCM - traditional Chinese medicine (I'm going down this route, 3mo in, so far so good)
Yoga can cure chronic diease
maybe AMK77 can chime in but Applied Kinesiology and Reiki has helped her tremendously, and she's now off meds
Many hospitals now have Integrative health sections.

good luck, let us know what works/doesn't work. Others can benefit
Posted 3/24/2011 8:37 AM (GMT 0)
I don't understand the poll. UC is a disease, not a treatment. I use alternative treatments, which includes supplements. I do take Lexapro but that's for social anxieties, not UC.

In regard to other alternative treatments, I've done the following:

Fecal transplantation - extremely successful
Probiotics - help
Anti-inflammatory diet - helps
Avoid foods/beverages high in fructose - helps

Cleanses. I've done a colon cleanse and a liver cleanse. I had my mineral and toxic metals levels checked. My aluminum level is off the chart. So I'm going to do a heavy toxic metal cleanse. Check the ingredients when buying cleanses. Some cleanses are scams.

I don't see the need to do another colon cleanse. My colon looked good the last time my GI looked inside, which wasn't that long ago.

I might do a liver cleanse again, but I'd like to do the heavy toxic metal cleanse first and see how I feel after that.

Post Edited (subdued) : 3/24/2011 3:14:56 AM (GMT-6)

Posted 3/24/2011 2:57 PM (GMT 0)
I hate taking medicine of any kind but there are sometimes when you need to throw in the towel. You have a disease that if not caught can spread and make things worse so i would really reconsider the no meds "treatment."
Posted 3/24/2011 3:32 PM (GMT 0)
Read Aajonus Vonderplanitz's books. (See my signature.)
Posted 3/24/2011 4:34 PM (GMT 0)

subdued said...

Fecal transplantation - extremely successful
Probiotics - help
Anti-inflammatory diet - helps
Avoid foods/beverages high in fructose - helps

Sorry for hijacking the thread and I probably asked you already but are you one-and-done with FT ? It worked permanently ? I keep hearing you have to do it again in 6 mos or less.
Posted 3/24/2011 11:40 PM (GMT 0)

aguywithuc said...

subdued said...

Fecal transplantation - extremely successful
Probiotics - help
Anti-inflammatory diet - helps
Avoid foods/beverages high in fructose - helps

Sorry for hijacking the thread and I probably asked you already but are you one-and-done with FT ? It worked permanently ? I keep hearing you have to do it again in 6 mos or less.

Yes. I'm the one who has done FT and has stayed around. I've done it twice. The first time it worked. I stopped flaring immediately when I was pred dependent. I kept getting bladder infections from the pred though, had to be go back on antibiotics a few times, and then started flaring again, not as badly though. The second time FT worked, and I'm still in remission. It's been longer than six months. Perhaps one and a half to two years. No mucus. No blood, No diarrhea. The urgency was the last to go.

I was diagnosed as having UC, not C-diff. So the fact that it worked for me is very good news for those who have UC and might have an imbalance of fecal flora.

Post Edited (subdued) : 3/24/2011 5:46:08 PM (GMT-6)

Posted 3/25/2011 12:21 PM (GMT 0)
i am doing accupuncture and herbal tea. They are helping me considerably. Like everything, doesn't work for everyone. My swelling has gone down, immediately after accupuncture there is little blood in stools. I'm at a point where things are on the mend. I take 6mp also, can't be certain 100% as to what has helped me. Also, prayer is good if that's you.
Posted 3/25/2011 3:29 PM (GMT 0)

subdued said...

aguywithuc said...

subdued said...

Fecal transplantation - extremely successful
Probiotics - help
Anti-inflammatory diet - helps
Avoid foods/beverages high in fructose - helps

Sorry for hijacking the thread and I probably asked you already but are you one-and-done with FT ? It worked permanently ? I keep hearing you have to do it again in 6 mos or less.

Yes. I'm the one who has done FT and has stayed around. I've done it twice. The first time it worked. I stopped flaring immediately when I was pred dependent. I kept getting bladder infections from the pred though, had to be go back on antibiotics a few times, and then started flaring again, not as badly though. The second time FT worked, and I'm still in remission. It's been longer than six months. Perhaps one and a half to two years. No mucus. No blood, No diarrhea. The urgency was the last to go.

I was diagnosed as having UC, not C-diff. So the fact that it worked for me is very good news for those who have UC and might have an imbalance of fecal flora.

That is outstanding. I am in full remission, I should give it a whirl, I believe you did not bother with the antibiotics in step 1 you just did the saline blender ritual. How many times in the last go around 2,3 ?
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