Fecal / Stool Transplant, Human Probiotic Infusion, Enema of Crapola...possible cure for UC!

Wow, this fecal transplant sounds interesting! I'm so lucky I have managed to get an appointment to see Prof Borody in 6 months time. Was actually put onto him when I was looking for a 2nd opinion on my treatment options! Am excited about what he has to say and what he recommends. Will keep you posted. I know at the Centre for Digestive Disorders where he works, they have a special section for fecal transplants. Thank goodness I wont have to do it myself!!!

C_G_K said...

Zippy123 said...
Boy did you speak the truth C_G_K. Big pharma hates doctors that actually try to cure someone.

I can't think of a single reason why fecal transplantation should not be an active area of research based on the results so far, even if they are somewhat anecdotal. Obviously, a lot of it boils down to money, who will pay for research if there is only a small potential for return on investment?

Even if it only cures a small percentage of people with U.C., it seems like it would be quick, cheap with zero side effects, as long as infectious diseases are screened out.

And if bona fide research finds it doesn't live up to what was hoped, so be it, at least it was investigated.

Fecal transplantation wouldn't make as much money as maintenance drugs and lets face it, its all about the money to these companys.

Well it looks like the bleeding was related to her PT/INR being over 4.0 for the last week. She is back to no pain, no blood, no urgency, etc now that her PT/INR is back down to normal levels. I never thought a blood-free well formed BM could be such a beautiful thing.

I figured I would give another update on my wife. It has been 8 months since we did the stool transplant and she is still doing fine. No UC symptoms. None. At all. It is awesome. In fact, she has taken a few rounds of antibiotics for sinus issues and other stuff and hasn't had any issues. She got her final dose of remicade about 3 weeks ago, the doc did a few blood tests, and recommended that she discontinue the remicade (her last uc medicine). Now she is just on blood thinners due to the stroke.

Killcolitis...sorry about not answering your questions. She is done tapering meds. I think she got off prednisone sometime in november. I was the donor and I was tested (blood and stool) for aids and hepatitis and all kinds of other things.

We haven't done any more transplants but the doctor did recommend we do one every now and then to make sure everything stays good.

I really hope this procedure takes hold and people start trying it before they go have surgery.

That's great to hear nukeuc!

thanks for sharing. was reading your facebook. You mention your wife is cured of UC. Is she really off of meds completely? How is her health? Her diet?

Hope all is well, would love to hear the good news

sorry to hear about the stroke, but GREAT to hear about UC being gone. How is her diet, can she eat what she wants, within reason, or does she stay on a Colitis type diet(whatever that means for her). I think most of us here have found what foods are good and what are bad for our gut

@Notsosicklygirl...yes it does appear that it isn't for everyone...hopefully in time we will come to understand why that is. I push it so hard because I see what it did for my wife and very few people with UC know about it and are able to make the decision for themselves rather than having it made for them.

@beachlife...My wife is able to eat whatever she wants, whenever she wants.

sweetpeasmom said...
My daughters GI said there is a, yet to be published, study from Austria showing that Human Probiotic Infusion given to people with severe disease made them very sick.

Please ask your GI:

Who did the study?

Who was being treated? Did they have C-diff, Chron's, UC, or something else?

Did it help reduce their colon inflammation?

When you say very sick, what do you mean?

What severe disease did they have?

How much Human Probiotic Infusion did they use?

What was the procedure they followed?

The way this sounds is that when Human Probiotic Infusion is given to someone who has a severe disease, then it makes them very sick. I had a very serious flare in which my GI said my colon felt like dog meat. The whole colon was inflamed, and I was peeing out brown liquid out my butt, passing a ton of blood clots, and pred dependent. Fecal transplantation put me into remission immediately. It did not make me even a tiny bit sick. So when you say "severe disease," I have to ask do you mean UC or something else? If you mean UC, then I can prove that wrong because it didn't make me in the least bit sick. If you mean some other disease, then it might depend on the disease.

I used about 1 syringe worth each time I did it.

sweetpeasmom said...
She is weaning from 40mg Prednisone, now on 10mg, and trying to decide if it is time to schedule surgery. After 8 months on 5 mg/kg, she had her 3rd infusion of Remicade at 10mg/kg and Imuran at 175mg/day, plus she is on Steroid Enemas.

We all know what steroids and Remicade can do.

Post Edited (subdued) : 8/9/2011 1:04:50 AM (GMT-6)

I believe his concern also had to do with being on so many immunosuppressents, Imuran, Remicade and Prednisone. If I get more details, I will post them.

Subdued, what meds were you on when you did the FT?