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vitamin d is saving me......

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Ulcerative Colitis
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Posted 3/7/2011 1:09 AM (GMT 0)
please, everyone of you should be tested for a vitamin d defincecy.  I was feeling so bad that i tried to ask my specialist about a liquid vitamin thinking maybe that would help  get some of my old self back.. so many times i have tried pill vitamins and just poop a whole pill. he was kind of crapty about the whole vitamin thing.  and i quote. .( there is no scientific proof that a multivitamin ever did any good to anyone.)  so finally, before i left his office he said well,  i will test your vitamin b and your vitamin d.  i was really shocked about the d because you never think of blood test for something like this and why pull vitamin d out of the sky. well a week later they call me in a panic and tell me i have no vitamin d in my systom and that it could lead to all kinds of bad problems....so they put me on a high dosage for 6 weeks and in 2 i felt amazing. so after the 6 weeks are up within a couple of weeks back to all the problems. so i had my general  md look into it and she said before she left college that they where doing amazing research on the auto immune and vitamin d... . she has me on 4000 units a day plus a whole food multivitamin that has about 800 more of the d in it...she test my blood every other month and even though i am on a large dose...my blood level has not changed. you can really see how my body does not absorb it. along with the d i am only on 4 aschol hd a day. 2 in the morning and 2 in the evening. i stay away from high fiber and only allow myself a salad or raw every 3-4 weeks. here is the amen in the whole story....i go once a day..and am able to work thru the ergency by just realizing i can hold it now and that i am ok. so please everyone look into it it has changed my life...it took about a month for me to notice the stool changes but i have so much more confidence in my self and controlling the panic.

 

Posted 5/30/2011 2:07 PM (GMT 0)
http://www.ncbi.nlm.nih.gov/pubmed/20392825

This study is very interesting.
Posted 5/30/2011 2:20 PM (GMT 0)
OMG why havent I seen this?

http://www.ncbi.nlm.nih.gov/pubmed/17962355
Posted 5/30/2011 2:24 PM (GMT 0)
I took accutane in middle school and part of high school but didnt develop UC until I was 21. I think I might have figured out why my job up until I was 18 was working outside for 12 hours a day. Keeping my vitamin D levels extremely high. Could be a reach but just a thought. I wanted to say that I started taking a high dose of vitamin D and I feel a difference in as little as 1 hour. The frequency goes down and almost cuts the number of bm's in the first 12 hours after dosing in half.
Posted 5/30/2011 7:03 PM (GMT 0)
well, well, well...
My blood work at the end of February 2011 came back with quite a deficiency of VitD. I started multivitamins and/or calcium with vit D. Mid April 2011 I had that big-time flare up... Just coincidence? Maybe too low vit D was to blame, as I was in remission for 5 years before mid April this year.
From now on, in every blood work I'll want my vit D levels checked :-)
Posted 5/30/2011 11:08 PM (GMT 0)
I am so glad you guys are catching on to the vitamin d. I have been on 5500 a day for since last October. I had slacked off on my weekend dosage and my  d blood level really took a plundge. My mom and i were talking about it just yesterday and she thought mine showed up as i became a working adult with little to no sun unlike when i was a child and got lots of sunlight. Look into the Studies they have done on vitamin d and its very suspicious to me that our specialist are not putting us all on it.....makes me mad...... I have no panics, no ergency no blood i go only 1-2 a day just in the morning. i am gaining more confiedence in being able to hold it.. I really think I am on to something. And I have had the highest amount of stress this past year than any other....Thank YOu God....
Posted 5/30/2011 11:20 PM (GMT 0)
I was taking 5000 IU for almost a year and it still did nothing for my levels. Had to go up to 10,000 IU last 8 months.
Posted 5/30/2011 11:32 PM (GMT 0)
dr a 10,000 a day? and do you have good results from it?
Posted 5/30/2011 11:42 PM (GMT 0)
It's a very good news that Vitamin D supplementation is working for you.

I found about the Vitamin D miracles by reading Dr. Mercola's articles about two years ago and I did take 10,000IU everyday for a few months during the winter(found Nowfoods or healthy origins the best two brands for me)

And yes, my 25 hydroxyvitamin D lvl went over 70ng/ml which is in the optimal range BUT did not help me much with my symptoms though.

I don't supplement these days b/c I get it from the sun lol.
Give it a shot everyone!
Posted 6/4/2011 12:37 PM (GMT 0)
My GP informed me last yaer that my Vit D levels were too low and that I should take a supplement. I didn't and within 3 months I had the worst flare ever!!! I started taking Vit D after reading about the benefits and when I saw Prof Borody, he told me that it's important for us to keep Vit D levels monitored and make sure we take supplements to keep them at an acceptable level!
Posted 6/4/2011 6:35 PM (GMT 0)
I too have added vitamin D to my regime, so far I've noticed that during my periods (sorry to all the men here) that it's much better than before I was supplementing with vitamin D....I always felt like I was having a mini SEVERE flare just before, during and just after my period, but since adding vitamin D it seems to have calmed that time of the month down somewhat to where I don't feel completely like death as I did before. I'll take whatever help I can get.
Posted 6/4/2011 8:44 PM (GMT 0)
Vitamin D is amazing! I found out I was severely low on Vitamin D last September and am now taking 5,000 IU D3 every day. One thing I did notice after being on it was that I was no longer depressed - it lifted my mood and I am now no longer emotionally miserable. If I miss a few days of the supplement I can start to feel my mood drop - I think it may be one of those near miracle vitamins!
Posted 6/5/2011 12:12 AM (GMT 0)
yeah ive been hearing about vitamin d on the radio. a lack of it can pretty much give you the same problems as ulcerative colitis and much more. Very important to take a supplement of it. Also something that will help you absorb it.
Posted 6/5/2011 4:14 AM (GMT 0)
Just wanted to add something boring. Although a lot of people are aware of these facts.

Go out and get some sunshine! Put some sunblock only on your face.
You will be making about 10,000IU within 15 minutes of getting sunshine. This is all you need. Many sunblocks block Ultraviolet-B, which is responsible for making Vitamin D.

15 minutes of sun shouldn't raise the chance of developing skin cancer so why not get it for free?

In the summer, it's not necessary to take Vitamin D3 sups unless you have sun sensitivity issues or are staying indoors all day because of your job. And it's better to get it from the best source, not from the artificial source.

If you are already having a lot of GI issues(frequent BMs a day) then go to your backyard naked when the sun is out, it's worth it lol.
Okay, maybe not naked.
Posted 6/5/2011 8:27 AM (GMT 0)
^^ brilliant advice.

I love taking walks during spring/summer in the SoCali sun. But when my condition is really bad, I get terrified of walking around the streets during mid day when so many people are out. It's funny in that really sad way :-) I've honestly been considering buying a 30 foot ladder to get on the roof of my apartment, because I have no backyard.

At least up there I could bring a plastic bag with me in case of emergencies hahaha. Oh how I love UC...
Posted 6/5/2011 10:58 AM (GMT 0)

badslinke said...
^^ brilliant advice.

I love taking walks during spring/summer in the SoCali sun. But when my condition is really bad, I get terrified of walking around the streets during mid day when so many people are out. It's funny in that really sad way :-) I've honestly been considering buying a 30 foot ladder to get on the roof of my apartment, because I have no backyard.

At least up there I could bring a plastic bag with me in case of emergencies hahaha. Oh how I love UC...

Or maybe get a helicopter and I will drop you off on the roof of your apartment.
Just know how to get back down because I only offer drop off services :]

And I love SoCal! I really plan on moving to Cali in a few years.
Been there only once in my life and I miss it. Miss the friends from there too.

Stayed at Wilshire Hotel for a week.
Then I spent two months last year in Cerritos while being in 90% remission. I really enjoyed the weather in Cali so much except for the 6.9 earthquake, which I experienced for the first time in my life haha.

I still remember the chandelier moving side to side intensely.
Posted 6/5/2011 12:45 PM (GMT 0)
I have never flared even once in the winter. I was taking sub-q Vitamin D injections after borderline blood test for it because it seemed reasonable there could be absorption issues with the oral route - I still had a huge huge flare. Since then I do not consider vitamin-D to be a silver bullet.
Posted 6/5/2011 10:32 PM (GMT 0)
Honestly, I think the silver bullet is a serious combination of things. Vitamin D, alongside magnesium, which is another critically deficient mineral in most Americans, is just part of the combination.

I spent a full half hour laying in the sun today after I read this post yesterday haha. The good news, no need for that helicopter CollegeStudent! I found a sweet spot right between where I park my car and the fence to the next apartments that has about 3 foot of space. It's private, just enough for me to lie down with a towel, and gets direct sunlight all day. It's about as good as a backyard :-)

But getting dropped off by chopper to the roof of my apt everyday would just be f'n sweet. On an epic scale. The neighbors might not appreciate it, but who cares about them anyway! I got needs!

Could always just repel down...

I plan on hitting up the sun, especially now that it's summer, every day I can. Looking forward to a good tan, if not some serious help for the old gut.

If you ever make it to So Cali CollegeStudent, hit me up. A few drinks and some UC horror stories would make for an excellent time ;-)
Posted 6/6/2011 12:29 AM (GMT 0)
I might have over done it with the vitamin D. I was taking about 30,000 IU a day and was feeling great. I think it was too much because I have had flu like symptoms for about 5 days. My BM's have gone up and I saw lots of blood for the first time in awhile. It could have been the LDN but I have been doing that for about two weeks now. Maybe it was the new protein shake I started..? Its hard to not do too much at once sometimes.
Posted 6/6/2011 4:01 AM (GMT 0)

badslinke said...
Honestly, I think the silver bullet is a serious combination of things. Vitamin D, alongside magnesium, which is another critically deficient mineral in most Americans, is just part of the combination.

I spent a full half hour laying in the sun today after I read this post yesterday haha. The good news, no need for that helicopter CollegeStudent! I found a sweet spot right between where I park my car and the fence to the next apartments that has about 3 foot of space. It's private, just enough for me to lie down with a towel, and gets direct sunlight all day. It's about as good as a backyard :-)

But getting dropped off by chopper to the roof of my apt everyday would just be f'n sweet. On an epic scale. The neighbors might not appreciate it, but who cares about them anyway! I got needs!

Could always just repel down...

I plan on hitting up the sun, especially now that it's summer, every day I can. Looking forward to a good tan, if not some serious help for the old gut.

If you ever make it to So Cali CollegeStudent, hit me up. A few drinks and some UC horror stories would make for an excellent time ;-)

Haha awesome spot, go get em!
And surely, I'll hit you up if you're up for it. :]

DanthaMan said...
I might have over done it with the vitamin D. I was taking about 30,000 IU a day and was feeling great. I think it was too much because I have had flu like symptoms for about 5 days. My BM's have gone up and I saw lots of blood for the first time in awhile. It could have been the LDN but I have been doing that for about two weeks now. Maybe it was the new protein shake I started..? Its hard to not do too much at once sometimes.

It's good that you are getting a lot of Vitamin Ds from the pills but sometimes, supplements don't do well along with me(personal experience). I think it's b/c they are like food(harder to absorb since synthetic), even though the ones that I have don't contain sugar/additives/preservatives, they can trigger problems for me. I found this out by doing process of elimination with food/supps. Took me a while.
Everyone says a multi-vitamin with nothing harmful added can't do bring up symptoms/pain but apparently, it does for me. Just like some people are born with gluten/lactose intolerance. Find out what works for you for supplementation.
Posted 3/14/2012 5:49 PM (GMT 0)
I have UC and in the past when it flares, it really flares. Always in Jan/Feb. Which is also when you're immune system is at its lowest. So that got me thinking about Vitamin D3.

I took 20,000 IU per day and within a week my UC dramatically reduced and disappeared. I don't take any other meds (just the healthy gut bacteria in tablet form, can't remember the name it's quite long).

Anyway, there are no upper limits or overdose with Vit D3 (within reason). But make sure it's Vit D3, NOT D2 which is the synthetic form that the doctors give and does naff all. Oh and anyone that mentions Gary Null, the guy that overdosed on his own D3 supplements. He did so because the ingredients were wrong from the supplier and per day he was taking close to 2 million IU! Maybe you can OD on 2 million but that's a ridiculous amount. The daily limits the government say are way too low and go against pretty much all the medical reports.

If you don't want to take 20,000 then at a minimum I would say 10,000 per day.
Posted 3/14/2012 6:55 PM (GMT 0)
I've read somewhere that UC is more prevalent in the northern areas than in the southern areas. Sun exposure, and Vitamin D, might explain this.
Posted 3/14/2012 7:21 PM (GMT 0)
Everyone:
My good friend and neighbor is a professor at the Univ. of Minnesota and his specialty is Vit. D (nutrition biochemist is he).
I want to point out that if you are living in the Northern US/Canada that between Oct.Nov-May the sun is at an angle
where even is we sit in the bright sun for hours, our bodies do NOT synthesize enough Vit. D....

We all should be supplementing with Vit. D at least a little bit during those months. Apparently there is NO recommended range of
Vit. D in the blood. Or at least that's what my MD has told me. I'm sure there are toxic levels but that's for the doctors to figure out. My last level was in the 80's and my doctor just advised me to take 2000 IU a day instead of 4000 IU aday.

Lets keep talking about it and finding more evidence.....
Posted 1/2/2014 4:00 AM (GMT 0)
I had a similar experience with vitamin d deficiency. My colitis went from mild to fairly severe. Doctor noticed that I had a severe vitamin d deficiency, so I started taking mega doses. I noticed dramatic improvement in my colitis literally Couple of days after taking supplements. Two years later, I continue taking vitamin d supplements. I periodically get flare UPS, but not nearly as often or severe as before.
Posted 1/2/2014 5:14 AM (GMT 0)
Hi everybody. Remember that vitamin d is a fat soluble vitamin and won't be very well absorbed if not eaten with fat. 5 - 10g should do the trick. Stay away from high omega 6 fats though :).
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