Hi,
I've posted here before regarding my husband's UC thingy. Right now he is put on Azathioprine-75mg and tappering off steroids- now only to about 10mg per day and also uses pred.enemas when he needs. His next appt is on the 19th august. Last time we talked to his GI about Fecal Transplant..but he just laughed and said its not gonna work.UGH!!!! plus, my husband is not willing to do it either as he finds it yucky. I don't know how I will ever convince him to do it.
Anyway, the thing that is bothering me right now is - since my husband has started taking Azathioprine, he has been avoiding kissing me(Sorry, its kind of personal to be posting it here but i need answers to this). I didn't understand why he was doing this. Whenever I'd ask him why he was doing this, he would simply shrug and change the topic. Today, I tried to get the answers out of him.....and it brought tears to my eyes when i heard him telling me that he doesn't kiss me just because he is taking strong meds and doesn't want to spread any of the effects onto me through kissing...doesnt want anything happening to me...i told him this is ridiculous.if he is taking the meds, how can anything happen to me by kissing me!!! Do any of you have anything to say about this, pls share.
We aren't sure if he is having mood issues due to steroids or azathioprine. He has been behaving kind of differently than before....feels angry over small things easily...when i ask him if he still has any bloody stools or if he feels any pain, he says no no no. i'm not sure if he is telling me the truth or just hiding it....
I'm unlucky to be living in hong kong as I can't find the probiotic - VSL 3 anywhere here. It makes me sad to think, and i think, is there even a good colon surgeon here in hk!! what if (I hope this never happens) my husband needs to have surgery and there isn't even a good surgeon around here.....what is going to happen then...
How i hope there can be a total cure for UC. i feel so sad reading everyone's stories here.May god give all of you good health and pls pls plsss send cure for UC to this poor earth.