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Ulcerative Proctitis and endometriosis???

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Ulcerative Colitis
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Posted 8/25/2011 10:30 PM (GMT 0)
I was diagnosed with ulcerative proctitis about a year ago. I have started to experience very sharp pains on the right side of my abdomen right before my period (3 to 4 days before the 1st day). I have gone to my Gastoenterologist with this symptom and says to keep on treating my ulcerative proctitis and we'll go from there.I also went to my gyno about the pains just before my period and he says it might be a hormonal inbalance.. but i have a gut feeling that wont let me breathe. I am starting to think all of this is endometriosis... because i ahve all the symptoms.

I dont know how to approach my gyno about my thoguhts...i just feel that he may think that im just coming to conclusions but the pain is getting worse and worse... I dont want this to progress... I am just very confused...at only 20 i dont know what to do or who to turn... my doctors seem very confident that the pain on the right side will vanish but i have a feeling it might be something more serious.

I also have severe constipation and I am wondering if anyone else has had it with constipation since all i usually see is diarrhea.

Ive had ultrasounds that appear normal...but then again endometriosis cannot be diagnosed as simply as that.
Posted 8/26/2011 12:18 AM (GMT 0)
You have any joint pain, muscle weakness, fatigue, headaches, hypersensativity to sound, lightm taste? neck stiff? Swollen lymph nodes? short term memory loss, brain "fog"?
Posted 8/26/2011 11:52 AM (GMT 0)
How do you approach your doc? Direct and to the point. You have to remember that you are in charge. This is your health, not your doctor's. Voice your concerns with your doc, ask for testing - if he doesn't do testing or does not take you seriously, find another doctor who will listen to you.

I get so annoyed at doctors for not taking the young adults seriously. I had that problem as well when I was your age. It wasn't until, eh maybe the past 8 years or so, that doctors started to really listen. I look young for my age (look late 20's, early 30's - but really I'm 41) - and doctors just WOULD NOT listen. Than they say, Oops, I guess you WERE right after all. So I have had many years of doctors not paying attention, or saying you're too young to have this or have that.

Btw, I get constipation as well. Well actually I get both D and C...depends on how tempermental my Uc wants to be.
Posted 8/26/2011 1:41 PM (GMT 0)
How are you treating the ulcerative proctitis? Have you had a colonscopy recently?

I complained of pelvic pain for years to my OB/Gyn, and finally at age 33 I had a pelvic laparoscopy to "find the endo." My pelvis was completely clean. The surgeon was really surprised, given my history and complaints. This was 5 years before I was diagnosed with IBD.

Once I had my IBD diagnosis in hand I understood my pelvic pain much better. It was inflammation in my colon, not endo. The link you perceive between your pelvic pain and your menstrual cycle is not surprising - most of the women I know with IBD notice their symptoms worsen with their hormonal cycle.

If you are having right sided pain your inflammation may not be limited to the sigmoid colon and you should talk to your GI about another scope and maybe changing your meds.

Of course, you could have endo also, but that diagnosis requires a laparoscopy to be sure.
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