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Posted 4/22/2010 12:58 PM (GMT 0)
nono Has anyone had UC and migraines
Posted 4/22/2010 1:24 PM (GMT 0)
     I had terrible migraines when I was younger, from the time I started menstruation (age 11) until I went through the change completely (age 44).  I didn't get UC until I was 52.  My friend suffered with migraines when she was young too and was diagnosed with Crohn's when she was 33.  Don't know if there is any relation between the two...migraines and IBD..interesting though.
Posted 4/22/2010 3:25 PM (GMT 0)
Mommb,

What meds are you on? They could be the source of your pain. When I was taking Methotrexate I could hardly hold my head up for very long. I also get a migraine after each Remicade infusion.
Posted 4/22/2010 3:57 PM (GMT 0)
Are you sure they're migraines and not another type of headache? Migraines usually have the trademark 'aura' or vision issues right before onset.

I'm prone to headaches (sinus and tension related) but not migraines. They're still pretty bad ones though.
Posted 4/22/2010 6:55 PM (GMT 0)
Ugh! I have the same thing. Although I have suffered from headaches before colitis. They have gotten worse since I was diagnosed with UC. Although the headaches didn't actually get worse 'till I started certain UC meds, actually. So I'm thinking in my case it's the med making it worse, not the UC. But who knows...
Posted 9/15/2011 12:58 AM (GMT 0)
I am a new member, my son suffers with chronic, constant, daily migraines, he is post UC had his colon removed at the age of 12, now is 37. As a kid he suffered with migraines only with flareups. He had a permenant ileostomy perform in Dec of 1999 and has had a constant migraine since. He has seen so many doctors and is now on morphine from a pain doctor, some solution !!!!! Has any body else had this connection, Post-UC and migraines. Please respond, we need to find an answer other than morphine.
Posted 9/15/2011 1:11 AM (GMT 0)
willnotletgo, I don't know how much work your son's done trying to figure out the headaches, but a good friend of mine spent 20 years trying to resolve her migraines before finding a relatively simple solution. She took all the migraine meds, had a complete hysterectomy, used pain killers - all did nothing in the end to give her relief. In the end she and her neurologist did an MRI of her neck and found that she had an entrapped nerve. She started physical therapy and got much, much better. She's not much of a candidate for surgery - the nerve is too small for a surgeon to deal with simply. But with phyiscal therapy and consistent exercise she is able to socialize and have a life.
Posted 9/15/2011 2:44 AM (GMT 0)
kazbern, thanks for the reply, we have had 10 or more MRI's of the head but not to my knowledge of the neck for an entrapped nerve, I will have him ask about it tomorrow because he is in the hospital now for severe vomiting and dehydration from the morphine thanks, ....willnotletgo.
Posted 9/15/2011 3:32 AM (GMT 0)
i've been getting them a lot since i started remicade. before that, i never got headaches.
Posted 9/15/2011 4:35 AM (GMT 0)
the docs say that can be a side effect, my sons dr thought it might help with his migraine but after more consideration with fellow dr's he said lets not try it may make things worse, even though the colon is gone the gene is still in the body, hope things get better for you. Does the prednisone make you want to eat?
Posted 9/15/2011 4:55 AM (GMT 0)
I suffer from migraines and UC. I have been seeing a neurologist and she prescribed pristiq as a preventative and I haven't had any migraines since. I can't say whether they will return, it has only been about 2-3 months.
Posted 9/15/2011 6:49 AM (GMT 0)
I suffer from both UC and migraines.

I accidentally discovered while taking Prednisone for a severe flair-up, that it significantly helps minimise the severity of the Migraine symptoms. Whenever I get the aura signifying the start of a Migraine, I quickly pop a 20mg Predisone pill. Of course, I'd recommend speaking to a doctor before doing such a thing.
Posted 2/4/2012 8:41 PM (GMT 0)
Its very interesting why migraine takes a back seat with UC patients. In one of the articles I came across, it mentions that about 40-50% UC patients complained about migraine. Still no one really talks about it, even on this forum.

@muon,
Whats the status with your migraine? And what medications you are on?

@ willnotletgo,
Hows your son doing now? Has he tried any Calcium blockers? I tried a wide variety of medications, including beta-blockers, serotonin reuptake inhibitors and others but the one helped me fairly is Verapamil. I still have a problem with the abortive though (Read my signature) If this hasn't tried, may be you should check with his neuro.

@ Malkavian,
In theory, migraine accompanies with aura but it doesn't have to. In fact, thats how my migraines used to start with typical aura (flashing lights), phonophobia, photophobia but after every medication I tried, the symptom changed. Now that I am on Verapamil, my migraine (headache) is rather dull and stays for way longer period.
Posted 2/4/2012 9:49 PM (GMT 0)
I am still doing great since being on Pristiq. I've only had 1 migraine and I was able to get through it pretty easily with my other medication.
Posted 2/4/2012 10:19 PM (GMT 0)
When I'm having a bad flare, I get insane headaches. I never used to have headaches before. I'm 19 as of now and all through my teenage years, I NEVER EVER had headaches but as soon as I got UC and things got out of control, the headaches started coming - full force! However, when my meds seem to be working, the headaches go away :) I also feel very extreme fatigue and muscle aches along with the headaches.
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