HealingWell
Search Close Search
☰

constant mild body pain

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/23/2011 10:59 PM (GMT 0)
Dear All,
I've constant mild body pain and headaches often. This has been going on for months. Also, although my BMs are few and relatively ok in form, i barely get 3-4 hours sleep each night. I just feel miserable all the time.
Perhaps it's my diet, or a mild flare. But when I had a colonoscopy a few months ago, the GI said he couldn't see much that was bad.
Any ideas would be great,
best to you all!
Teacher
Posted 9/24/2011 4:09 AM (GMT 0)
What does the doctor say about your recurrent headaches? Could it be that you have migraine? Maybe you would get advice on that forum not generally available here. Best wishes! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 9/24/2011 7:32 AM (GMT 0)
Hi..what did the doc mean that "not all that was bad"?

When you get 3 - 4 hours sleep...is it because you're waking up or because you're needing to have a bm? or because of discomfort/pain in your body?

Could you ask your doctor to have you referred to physiotherapy? or maybe see to a massage therapist who can help with muscle tension. Chiropractor?

What in your diet is it that you can change? are you eating enough of a balanced diet? or actually enough food to keep you fuelled throughout your busy and stressful day? Are you getting enough water/fluids?

If you are mildly flaring, maybe consider the retention enemas rather than the Canasa...or, up the Canasa and see if that helps.

I can relate to all you say, my schedule/sleeping is definitely eratic. How is your schedule for sleeping and are you able to keep up with your daily routine to allow yourself some downtime to destress?

q
Posted 9/24/2011 1:12 PM (GMT 0)
I seem to have constant joint and body pain too.  My chiro thinks I need to re-evaluate the vitamins I am taking and just work on mobility.  My pain does get better once I am up moving around.  I feel like a 90 year old lady when I get out of bed after a few hours.  I am going to discuss it further with my GI in October.  I seem to see many things on this board related to body pains but it is still unclear whether it is the actual disease causing the pains or if it the meds.  I thought maybe it was the pred I was on for several months but I have been off that for over 3 months and the pains are still there.  I have convinced myself it is just one of the lovely side effects of this disease and I will have to live with it even though my colon has stopped torturing me for the time being.
Posted 9/26/2011 11:28 PM (GMT 0)
Dear All, thanks. The mind pain I have is muscle pain - I can't anyone being less than 'gentle' with me. It's like my muscles are very feeble. The joint pain is there, but I'm giving up taking care of that.
The headaches happen all the time. They seem like stress aches - they rise from the side of the neck up the sides of the head. Sometimes on both sides, and other times on just a single side.
It could be that I'm not being very careful with my diet. I don't drink alcohol at all - the rare times that I drink a beer I pay heavily the next few days. I can't drink anything else - not red wine ever.
Since I don't sleep well, I'm exhausted by midday. I literally pass out each nite, but I'm up by 2:30am and can't sleep again. It's getting very difficult.
On another note, I'm no longer on Canasa - just the Apriso, vitamins, probiotics and tons of yogurt.
Best
Teacher
Posted 9/27/2011 6:09 PM (GMT 0)
I'm no Dr. but I'd say get a full blood test(CBC is Complete Blood Test), Metabolic Panel, Vit D, Testosterone(not sure if you are male), Thyroid, Iron, Serathin White Blood Cells, etc etc, as much as you can. If your Dr doesn't agree, I'd ask to see another one. Doesn't sound normal what you are feeling, I recently saw an Integrative Internist/GI Dr who ordered these, we found my Vit D and testosterone was very low and are addressing it, I feel LOTS better

how about a B12 shot? They are like $10 and make me feel great for a week or two. Spa's and Dr offices give them out, minimal/no pain for the good it does!

Also, not sure if you tolerate raw veggies, but I recommend the book "Green for Life". Try some dark greens like Kale and/or Swiss Chard. I add other items in the blender to make it taste good, I feel so much better getting the nutrients I need

I also get a lot of headaches, we did a Cat Scan, have you tried that? For me it came back negative, no head injury etc, so we are addressing it via Rx, and healthy food/exercise.

Stress aches? Do you exercise? Have you thought about meditation or Yoga? Studies show both help tremendously with stress, and pain.

hope this helps, sorry it was written a bit discombobulated, have to run to a meeting.
Posted 9/27/2011 8:02 PM (GMT 0)
I get those exact symptoms from fatigue. I think that if you could get more sleep, you would feel better. Maybe you should consider a sleep aid temporarily to help you stay asleep longer. Worth a shot.
✚ New Topic ✚ Reply