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Nystantin enema-words can't describe how much better I feel

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Ulcerative Colitis
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Posted 12/5/2011 3:36 PM (GMT 0)
I will start at the end and tell you the beginning. I started using liquid nystantin enemas on Thursday night. Friday no gas or bloating in my gut all day.I was amazed. Let me say my gas was so bad that after eating, I would balloon up, go home, lay down and pass and pass and pass the gas by laying down on my left side. I was really house bound, it has sucked for the past few years!!

 Friday night I did the same with the enema, hardly any blood or urgency at all on Saturday and I actually went out on Sat night and didn't need the bathroom, nor did I have the "fear" of needing one. I wore out white pants too. I just felt so good, I didn't care it was past Labor Day! LOL, I knew I wasn't going to have urgency.

 Last night I did VLS #3 probiotic to give myself a break and today no blood or pain sitting on my butt!! Ususally my rectum/anus hurts and I feel so inflammed after my bathroom trip (s)

 Tonight I will be back on the Nystatin enema. I guess most people use the powdered form, I used the liquid but I'm working with my doctor to get prescribe the powder. I emptied my rowasa bottle and filled half with nystantin and half with water. There's less than <1% alcohol in it, but I do feel it gives me a night of drinking feel and I fall right asleep. I'm not a doctor nor did I ask my doctor upfront about doing this with the liquid nystantin, most use the powder from what I read. I have an appt though now to go over it with him and get the powder form.

I thought to myself.....

 

I've tried antibiotic for two years (I've had UC for 6, antibiotics is not what started my problems)

I've tried Rx parasite medication

I've tried Valtrex maybe thinking it was herpes virus

and all 5asa medications and recently prednisone

and I got to thinking what else is there left?...CANDIDA OR YEAST.

I just want to say, I wipe my butt after going to the bathroom and I would have whitish, yellow stuff and I smell it and it smells like yeast, like a woman's yeast infection. I'm a woman, I would know, so I would say I have a yeast problem that probiotics or olive leaf extract or other supplements are not reaching my colon when I take them by mouth. Nothing has worked up until now.

I'm in awe right now in how good I feel! I just wanted to share. I'm also taking the liquid nystantin by mouth and every other day diflucan and limiting sugar.

I have to say though, I was so prepared to do the fecal transplant (I have the blender out, salt, water and was waiting for my bf to poop) on Friday night because I felt at my wits end the night before. But I felt so good on Friday and I said to myself "am I on to something here with they nystantin enemas?" so I will continue and let you know. I googled it and you can find info on the enemas in limited candida books and forums. I talked to some people on the curezone.com and they have do this with much success.

Posted 12/5/2011 5:17 PM (GMT 0)
I am happy you're feeling better. I hope it keeps up. Have you ever tried an antidepressant?? I feel like my symptoms improved since starting Pristiq. I think I have seen a bit of improvement in the past after taking diflucan, I definitely yeast can be a culprit in all of this.
Posted 12/5/2011 6:19 PM (GMT 0)
Hi Notsosicklygirl, I've never needed antidepressants (so I think :) ), I've always been a "upbeat" type, but on my bad days, I cry a lot and there have been days when I thought this can't be the rest of my life. I don't want to add in more medication right now. Medications can make yeast worse. I'm doing my asacol and enemas of nystatin right now. And my doc is calling in the powder form :) yeah I feel more comfortable with that. Thanks for writing and suggesting that though, I will keep it in mind.
Posted 12/5/2011 7:25 PM (GMT 0)
Did your doctor suggest nystatin enemas or how did you find out about them? I'm asking because I've never heard about them and am curious. Online info says nystatin is not absorbed by mucous membranes and does not affect bacteria just fungus. Very interesting.

Are there any studies you can point to about nystatin and UC or did you make the connection through yeast being present?
Posted 12/5/2011 7:33 PM (GMT 0)
I was reading about yeast in the colon and nystantin came up as a enema. I now have my doctor prescribing the powder form for me. I've ruled out some many things and normally when I would eat anything I would bloat right up with gas and now I have done that since Friday! I feel wonder. You can google, nystatin enemas for yeast in bowel or something like that a lot of  sites will pop up for it.
Posted 12/5/2011 7:36 PM (GMT 0)
Thats cool - always impressed the pic here

en.wikipedia.org/wiki/Nystatin

Great to hear about new ideas, are you the first go enema on this or have you read about others ?
Posted 12/5/2011 7:39 PM (GMT 0)
I take antidepressants for migraine management. It has taken me from 5 days of migraines a month to 0. It's wonderful for me. I didn't want to take any more medication either. I mulled over starting the antidepressant or just using abortive methods for the migraines but I decided to opt for the daily preventaitive and for me, I think it was the right decision. The abortive method requires waiting until you have the migraine and taking medication, hoping it works, half the time it doesn't... I agree, it's not worth taking something like that purely for UC but if you have other issues it may help like anxiety, headaches or depression, it's worth a try. My perspective has turned more positive since the antidepressant, that's a bonus & my UC has improved. I am not sure if it is linked but it improved around the same time.
Posted 12/5/2011 7:40 PM (GMT 0)
This is great news!! Hope the good trend continues. Pls keep us posted!
B
Posted 12/5/2011 7:58 PM (GMT 0)
Your story is very interesting. A long time ago, before Geocities went off the web, came across someone with UC's webpage and he claimed that he took high doses of Nystatin resulting in UC improvement. I never took it seriously as frankly, I thought the guy was nuts and there is no evidence in the literature that connects UC with fungal infection. One thing that gives me a clue, if you are on Pred for long term. Pred screws up flora (and pH) of your gut and that results in fungal growth but it has nothing to do with etiology of UC.

Honestly, I would be very curious to know why your GI prescribed you nystatin enema (what concentration was it?) and also an update on how long you will be in remission after discontinuing regular UC meds and nystatin. I don't want you to be a guinea pig but if thats what your plan i.e. off regular UC meds, I would very much welcome regular updates.
Posted 12/5/2011 8:34 PM (GMT 0)
Thanks Deltaforce for the encouragement. I'm not in remission but today is the first day I didn't go to the bathroom after leaving the house and going just blood with skin. I do that a lot during the day and it's very painful. I'm amazed right now. I will let you know when I get my script in. I was only on pred for 2full months. It made me so bloated, it was uncomfortable and my bleeding was less, but never gone, like today.

 

Posted 12/15/2011 9:32 PM (GMT 0)
How are you feeling Linda? I haven't seen you around in a while. I hope you're not posting because you're feeling 100%.
Posted 12/15/2011 9:46 PM (GMT 0)
Hi NSSG :) nope I wouldn't do that. I hope to encourage others as I heal. Well I stopped it and my symptoms come back. I did it only for two night because  I got a little nervous due to the fact  I was using the oral nystatin and I heard there's a form you can use rectally. I was thinking it had less than <1% alcohol by volume and I have no idea what that means or how much that is, and I was scared I was putting alcohol up my butt so I stopped.  Then a week or two went by,  I called my doc, got that script for a compounded nystatin that doesn't have alcohol and is in a powder form and it doesn't work at all like the oral does. So the past two night I've been back on the oral. I need to do it when I'm not gassy or I need to do after I expel the gas, it's been hard to hold in.

I will tell you though, it does work for me. I don't have the urgency, or inflammation and when I do hold it in the next morning little white balls come out. Did you ever do a spit test for candida? That's what it looks like, long stringing things in the toilet. There has to be something I'm hitting on. I have a doc appointment at the end of January so I'll talk to him more than. I will keep using the enemas until then and let you know how it is going.

 

Posted 12/15/2011 9:48 PM (GMT 0)
so my boss was standing over me and I rushed, so thank you for asking and I will keep you posted. I think I have a major yeast problem in my body, although its not showing up on blood test for candida? Probiotics make me bleed, they always have. Made me really gassy so I'm trying the enema probiotic route. Hugs!
Posted 12/15/2011 9:50 PM (GMT 0)
That's good news that you've found something that's working. I wonder what your doctor will say. It's too bad the other formulation you tried didn't work so well. I wonder why?? I never had a spit test for candida, I would love to but my doctor has never mentioned it. I know I have some kind of candida imbalance, I am the worst sugar addict. I have to fight my sugar and starch addiction every day.
Posted 12/15/2011 9:53 PM (GMT 0)
Well the spit test is to rise in the morning have a room warm tempature water glass full and spit into it. Don't eat or drink anything after waking up. If you see long string things hanging in the glass they say it's a indication of yeast problems. I don't think I eat a lot of sugar. I eat eggs in the am, salad & chicken for lunch, protein and veggies for dinners and MAYBE  small cookie or two. I don't eat carbs or sugar all day. I'm confused by it all. I will post and post again after I see my doc. Today I'm in pain, ate a salad for lunch :( so days it doesn't bother me, today it did.
Posted 12/18/2011 4:15 PM (GMT 0)
Hi therearemiracles

I am so glad for you that nysatin is working for you.

The fact that nystatin is working indicates that UC is a multi cause disease
Posted 12/18/2011 4:22 PM (GMT 0)
candida is more probably an effect of UC, and not a cause. when our bowel flora is ruined, as it happens in UC, it's easy for opportunistic lifeforms to take over - like candida. and off course those things will make our UC worse.

it's good to know that nistatin helps some people. avoiding high carbs and refined sugars would end up with the same result most probably. but for bad cases, as i've read here, enemas are a good option.
Posted 5/31/2013 6:16 PM (GMT 0)
I am sorry for resurrecting this 2 year old thread but I would like to hear updates on this. I am considering to go this route. Mainly because my tongue is ALL white in the morning and if I scrape it then there is significant amount of whatever-that-stuff-is on my tongue scraper. I do take daily Benebiotics but I guess that doesn't fix Candida issue, if thats what it is on my tongue.
Sometimes my breath is really foul and have to brush teeth like 3-4X a day. I do hate mouthwash because they leave a weird taste in my mouth, plus they make my mouth more dry than I want it to be,

Suspecting it as Candida, I would like to take oral nystatin. Rectally, it will fix the issue if it is in that region (because I don't know its systemic absorption when administered rectally).

Hence, asking therearemicracles if she has any updates on how long did you work with your compounded enema, what was the result and if you noticed any side effects.

Many thanks in advance.
Posted 5/31/2013 6:27 PM (GMT 0)
I know my last lingering gut issue is yeast. I'm ready to nuke these mfers and eat a normal diet again. I didn't even know there was such a thing as a nystatin enema. I'm going to ask for some at my next appt. My last oral stab at it is Thorne's sf722 formula and bacillus coagulans. Then I'm taking nystatin every way possible.
Posted 5/31/2013 7:44 PM (GMT 0)
This all would seem to link in with my totally unprovable theory that something fungal is involved with UC for those who are helped by mesalazine as salicylic acid is an anti-fungal.

When I had oral candida recently after flagyl,(one sign is scraping tongue but white coating sticking), Nystatin drops didn't clear it. What did was breaking up an s. boulardii capsule, mixing it into a paste and spreading it around my mouth. I have once tried an s. boulardii enema, I think it helped.
Posted 6/1/2013 3:04 AM (GMT 0)
This is absolutely brilliant! Can't wait to give it a shot :)
Posted 6/1/2013 3:04 AM (GMT 0)
This is absolutely brilliant! Can't wait to give it a shot :)
Posted 6/1/2013 6:00 AM (GMT 0)
Oral Nystatin should be just as effective (if not more so) than Nystatin administered via enemas because Nystatin only works within the gut even when taken orally. Its not a systemic drug.

I tested negative for Candida (but positive for other unknown yeasts) so I tried 3 or so days of oral Nystatin (Nilstat in Australia). I didn't feel any better or any worse...
Posted 6/1/2013 3:00 PM (GMT 0)
Just did it last night with my sfRowasa, felt less urgency in my morning BM, hmm. Still feeling tenesmus UGH I HATE TENESMUS
Posted 6/1/2013 4:33 PM (GMT 0)
Yesterday I saw an episode of Dr Oz where they show a spit test for candida overgrowth (you spit into a cup of water first thing in the morning and if it grows legs downward, you have too much yeast). I tried it this AM and totally have legs, but I'm not surprised because I've been eating a lot of resistant starches (cold pasta, rice, some beans) which are all on the no no list for an anti candida diet. My UP is heading in the right direction, but I still have M and some B and am wondering if I should take any action - I'm unwilling to give up resistant starches, as they are the bomb. What can I do OTC to beat back the yeast?
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