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Ulcerative Colitis
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Posted 1/4/2012 6:25 PM (GMT 0)
freddyj,

I suggest you go to their website, find their number and phone them with any questions you may have. The naltrexone they sell (50 mg tablets) is NOT slow release.
Posted 1/5/2012 1:09 AM (GMT 0)
I have been meaning to add to a post I started over a year ago. Soon. For now let me say LDN put me in remission. I stopped taking it after 1 year (November) and have not taken any since. Still in remission.

Here is the full story

https://www.healingwell.com/community/default.aspx?f=38&m=2099301
Posted 1/5/2012 7:43 AM (GMT 0)
FWIW a friend runs an LDN and IBD group on facebook:
http://www.facebook.com/groups/185159551524199/

It's a Closed group, so you have to request to join. I believe this also means that posts to the group will not show up on your profile/timeline
Posted 1/5/2012 8:08 AM (GMT 0)
Beachlife,

There are several such groups on Facebook. The largest, I believe, is "Got Endorphins? LDN", started in 2011 and now has almost 800 members. Personal histories, medical industry, medications, research studies are all discussed. There is the "IBD and LDN chat group" with about 150 members. "Beating Thyroid Disease with LDN" and "Persons STRIVING to SURVIVE with Multiple Sclerosis" are others. There may be more. Some, but not all, are closed groups.
Posted 1/8/2012 5:25 PM (GMT 0)
I still havent been able to get off the ground here. Alldaychemist does not appear to take mastercard, just visa (***?) and I still have had no reply on that list of Drs!!!!!!

Chispa, do you know whats up with the freaking credit card payment for allday? The only payment option for cc was visa, which I clicked on, then, they asked me to confirm my order without even entering a cc #......

arrhhh!
Posted 1/9/2012 1:41 AM (GMT 0)
freddyj
Yes, it is a pain. Last time I ordered, I had to call them because I have other cards but no Visa. They gave me an address to send a check. I thought that would take forever but they told me they would not wait for the check to clear or even arrive, they'd just send me the order. I had already established myself as a customer but maybe that was not crucial. Anyway, I sent the check to the address they gave me and the shipment arrived in the normal amount of time. So, I'd try that. Remember their customer relations are not what you'd expect from, say, Macy's so you've got to be a little patient.

I'm just about to place another order. I'll let you know how it goes.
Posted 1/9/2012 6:23 PM (GMT 0)
So you have to send a check to India? Thats ridiculous.
Posted 10/3/2014 10:46 AM (GMT 0)
Finding a doctor to prescribe can be difficult, though I suspect the advice above helped.

LDN is considered to have a limited-life of efficacy by my prescribing doctor (primary care doctor that I went to specifically for my prescription). I only got a few years of relief from it - but the formative years with my toddlers was a great time to visit zoos and other such locations. But for most it does seem to loose effectiveness within about 10 years according to my doctor who has a large number of LDN patients. (I think it's his main referral for patients. *smiles*)

I wish it had lasted longer for me, but it doesn't work for uveitis so it was a moot point anyway.

Good luck!
*smiles*
Eden
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