Prednisone makes me CRAZY!!!

Well overall I am doing well. Just seems that once a year I start to flare and have to get a 12 day Prednisone dose. Man that stuff makes me crazy. My sleep pattern is an absolute disaster, I was almost hearing voices last night. At one point I was looking through my eyes into the backs of my eyelids, as if it was a movie I was watching. It took me 2 doses of Nyquil to get 3 hours sleep. Then I wake up all sweaty...anyone else have this crazy stuff happen with pred? Guess I'll just sleep when the opportunity presents itself...dB

I just thought of the rectals yesterday...I never seem to consider them. I may have a few and will check to see.

I would try rectals in the future before you resort to pred...aside from feeling not yourself it does do lasting damage if your on it awhile. Rectal meds are just soooo much better and safe. Good luck!

hey DB -

"Yes...many people get alot of cleaning done in the middle of the night due to not being able to sleep. I would also get crazy hot in the middle of the night...middle of the day you name it. "

^^^^^^^^^^^^^^

what she said -

"So if you are really feeling crazy, please tell your DR. It may be time to eliminate pred from your toolbox "

^^^^^^^^^^^^^^

and i thought this was one of the good things about pred -

sleep ? what the heck is that ?

seriously, the stuff does it's job, but it totally blows !

good luck -

Deacon Blues said...
Well overall I am doing well. Just seems that once a year I start to flare and have to get a 12 day Prednisone dose. Man that stuff makes me crazy. My sleep pattern is an absolute disaster, I was almost hearing voices last night. At one point I was looking through my eyes into the backs of my eyelids, as if it was a movie I was watching. It took me 2 doses of Nyquil to get 3 hours sleep. Then I wake up all sweaty...anyone else have this crazy stuff happen with pred? Guess I'll just sleep when the opportunity presents itself...dB

You need to be exorcised.

I understand what you're going through. How much of a dose are you taking? And you took Nyquil with prednisone? Let alone Nyquil? Most disgusting otc drug ever.

I'm at 10mg (which keeps me absolutely perfect and level with my UC) but I'm still able to get 7 hours of sleep, just when I wake up for that first bathroom trip in the morning its all over from there. :(

It is always amazing to me how much alike and yet so different we all are. I only wish prednisone would amp me up as it does many people. Instead, I can easily doze off. I was recently prescribed 60 mg to stop a debilitating flare. I am Type 2 diabetic and many Type 2s have elevated blood sugar when taking prednisone. I do not. Fasting blood sugar this morning was 105. The flaring has significantly diminished and I can function once again. I hesitate to introduce this thought, but I am finding a direct link between my emotional well-being and my physical well-being. There is a highly personal event taking place in my life which requires interaction with a certain individual. Every time I am supposed to meet that individual I start flaring. It's as though my sub-concious takes over and says, "Hey. You're much too sick to meet. You can't get two feet away from the bathroom. You have to cancel!" and I'm off the hook. I have successfully used bio-feedback or self talk with other physical issues but never really looked at it in conjunction with my uc. I know this is controversial, but am only sharing what happens to and with me.
I was also prescribed Azathioprine - 80 mg a day - in place of Humira or Remicade. Anyone have experience with that drug?

Hope I haven't offended or taken too much time.

I'm on prednisone and it gives me a soapy taste in my mouth and insomnia too, night sweats, and for some reason no appetite. Been having issues with my Dr. Was diagnosed with moderate UC in 1999. In 2006 went into remission symptom free and stopped taking meds due to cost. Contolled symptoms with low stress, and diet. Omega-3 and low carb really helped. But this year stress factor went throught the roof! Stated eating bad! Started bleeding with bowel movements. Started predisone in Dec., had colonoscopy. lower portion of colon inflammed. Dr put me back up to full dose and am tapering again. Wants to start Remicaid. Not sure how I feel about that. Right now am dealing with the inability to go. Not having usual UC symptoms. Just been dealing with bouts of not going for 4-5 days, some days it's formed and looks normal, others it looks like slug. Every day is different. Just wondering whats going on! Dealing mostly with rectal pain and hemroids. Taking steriod enema and litocain. Not sure if I'm not going cause I'm not eating enough. Still running lowgrade fever on and off. That's my story. Sorry so long but would love to get advice. oh I've added probiotics, omega-3, vit D3 too.

prednisone totally sucks. i hope you get some sleep when it's out of your system. i was on it for 3.5 months. i felt like a different person. i was constantly on edge like something was gonna happen to me. sleep was non existant but i might get one hour here and one hour there. i ended up taking a lot of baths at 2 am because there was nothing else to do. i would wake up SOAKED in sweat so the baths helped a little. the weirdest thing i did was at like 4 am, i went in my room and tore everything off my walsl. i rearranged my furtniture, too. i look back on it and i'm kind of sad because i ripped up a lot of pictures and posters ( i don't know why i did this). so now my walls don't have much on them anymore. i'm never gonna take it again though. it didn't do one thing of good for my illness.