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Ulcerative Colitis
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Posted 1/24/2012 9:55 PM (GMT 0)
Hi all.  It's me MyUC.  I haven't been around in a while.  Things are good on the ulcerative colitis front.  That's the reason I haven't been around.  I am going #2 about once every two days.  A nice solid normal bowel movement.  I no longer worry about where the bathrooms are wherever I go.  In fact I have socializing more than ever and going places all the time.  Imuran has worked well for me.  The canasa helps too.  I just wanted to check in and not only use this place when I have problems.  Keep in touch.

MyUC

Posted 1/24/2012 10:20 PM (GMT 0)
Hey, I am so happy to hear you're doing so well.

Thanks for keeping us updated.

I am doing pretty well too, still have ups and downs but definitely way more good than bad and the bad has been mild.

There was a post the other day about removing old fillings and I thought of you.
Posted 1/24/2012 10:22 PM (GMT 0)
Congrats, myuc. Well done and nice of you to drop by ;)
Posted 1/24/2012 10:24 PM (GMT 0)
Good to hear and may it last a lifetime!
Posted 1/24/2012 10:43 PM (GMT 0)

MyUC said...
Hi all. It's me MyUC. I haven't been around in a while. Things are good on the ulcerative colitis front. That's the reason I haven't been around. I am going #2 about once every two days. A nice solid normal bowel movement. I no longer worry about where the bathrooms are wherever I go. In fact I have socializing more than ever and going places all the time. Imuran has worked well for me. The canasa helps too. I just wanted to check in and not only use this place when I have problems. Keep in touch.


MyUC

How do you do it?!?!

Only on Imuran and suppositories?! Did you alter your diet. I was on Imuran for 2 months at 125mg didn't do nothing.

Give me more info please.
Posted 1/24/2012 11:13 PM (GMT 0)
Hey MyUC, great to see you. Happy to hear that you continue to do well. Don't be a stranger!
Posted 1/25/2012 3:53 AM (GMT 0)
that's great!! i'm really happy for you. it's nice being normal again and not worrying.
Posted 1/25/2012 4:55 AM (GMT 0)
Hi there MyUC...happy to hear all is going well with you!

Thanks for your update..keep in touch!
q
Posted 1/25/2012 10:13 AM (GMT 0)
that's awesome news:)
Posted 1/25/2012 1:34 PM (GMT 0)
Hi MyUC,
So glad to hear from you and that you are doing well! It is great of you to drop in. Hope the UC continues to stay in this good direction.
B
Posted 1/25/2012 8:38 PM (GMT 0)

Thanks to all of you for all the responses.  To somedude who asked how I do it, all I have to say is that I am lucky.  The Imuran worked really well and fast for me. I have not changed my diet at all.  I eat anything and everything I want.  No restrictions.  Just to keep you all in the loop my last colonoscopy was in October/Nov 2010 and it was almost all clear with a minor patch of inflammation in the rectum.  I then had a flex sigmoidoscopy in June 2011 and it was clear.  The doc then said he didn't feel I would need another colonscopy for about 2-3 years assuming my symptoms stayed good.

Don't worry all I will hang around for a while.

MyUC

Posted 1/25/2012 9:16 PM (GMT 0)
MyUC said...


Thanks to all of you for all the responses. To somedude who asked how I do it, all I have to say is that I am lucky. The Imuran worked really well and fast for me. I have not changed my diet at all. I eat anything and everything I want. No restrictions. Just to keep you all in the loop my last colonoscopy was in October/Nov 2010 and it was almost all clear with a minor patch of inflammation in the rectum. I then had a flex sigmoidoscopy in June 2011 and it was clear. The doc then said he didn't feel I would need another colonscopy for about 2-3 years assuming my symptoms stayed good.

Don't worry all I will hang around for a while.

MyUC



that's messed up lol. I am freaking jealous. Stay on 100mg like you do for another year and then drop to 75mg (break a pill in half). See if you can maintain at 75g...if you can even better...then in 1-2 years drop to 50mg....

and on and on, and maybe you never need meds lol

Forgot to add. You said you started with 200mg of imuran, that's high. How much you weight when you started the imuran. Maybe I should be on a higher dose also.

Post Edited (Somedude) : 1/25/2012 2:46:36 PM (GMT-7)

Posted 1/26/2012 11:55 AM (GMT 0)

Somedude:

I weigh about 175 lbs and am about 5' 11".  They started me on 200 mg because my colitis was out of whack.  They told me they wanted to be aggresive with it.  Once it got undercontrol which was pretty quick I went to 150 mg.  After about a year I got down to 100 mg.  I have been on Imuran for about 3 years.  So far so good.  Maybe after a total of 5 years maybe i could get off of it but I can hang with the low doses.  Life is so much better with uc in check.  Any othe questions?

MyUC

Posted 1/26/2012 4:34 PM (GMT 0)
     That's wonderful news!!! My friend had success on 6MP for ten years.  Last summer her doctor took her off of it..cold turkey and within a matter of days...boom..flare.  I have no idea why he did that.  To my knowledge all her blood work was fine.  She was ill for awhile but now is having success taking vsl#3 and Rowasa enemas.

     When my doctor increased the 6MP from 50 to 100 mgm it almost killed me...liver and pancreatic enzyme levels skyrocketed sad .

     Wishing you continued good health doc yeah !

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