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so much freaking mucus

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Ulcerative Colitis
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Posted 1/27/2012 2:06 PM (GMT 0)
I should be asking my doctor, but I feel I will get a response here quicker.

I am trying to get out of a flare, on asacol two pills 3x a day so thats 2.4 grams a day.
I also added psyllium capsules all week 3x a day ramping them up, and I have noticed lately especially this morning that there is way more mucus on my stool than I am used to seeing when trying to come out of a flare.

Reckon is the fiber?

Today I decided to not take the fiber and see what happens.

Thoughts?
Posted 1/27/2012 2:22 PM (GMT 0)
     Everyone is different, so I can only relate what the mucus meant to me.....flare.  Every time I saw mucus, the flare was soon to follow.
Posted 1/27/2012 3:03 PM (GMT 0)
Psyllium............... interesting. Every time I go near fibre supplements I have a huge increase in mucous.  I am new to this forum but not new to this UC.  I don't tolerate a high fibre diet at all.
Posted 1/27/2012 6:07 PM (GMT 0)
It wasn't until I went on Fibre supplements that my mucous got better, bee propolis was the biggest change for lessening my mucous, then adding probiotics daily and indefinitely as well just added more help. I rarely have any noticable mucous now (for quite a few yrs now actually).
Posted 1/27/2012 8:51 PM (GMT 0)
I see you're not on rectal meds....get on them to deal with the rectal inflammation.

I don't think it's the fibre causing the mucous, it's the flare.

Could, in part, be IBS....but you are flaring.

Stay on the fibre. Add probiotics.

Try not to micromanage the mucous part....if you don't see it, it doesn't mean you've improved the inflammation.

What fibre are you using?  is the mucous white or kind of clear and globby.  If you're using a mixed fibre (water/juice) that could be the globby stuff./

q

Posted 1/27/2012 9:05 PM (GMT 0)
I think you should try rectals and possibly increasing the dose of Asacol. 2.4g is a maintenance dose. Many people take 3.6 or 4.8g to achieve remission. Keep that in mind, you may not need to increase the dose but it is a possibility if necessary.
Posted 1/28/2012 2:44 AM (GMT 0)
Quincy the mucus is white, but what i saw most was thick tan globs, which I thought was the fiber.

Notsosicklygirl, intake the asacol HD and its says maintenance is 1.6 g a day and that's what always worked in the past for me. I'm only ramping it up to try and get it in remission again after being off is for several months.
Posted 1/28/2012 3:56 AM (GMT 0)
Listen, for years in remission I ate a fibre rich diet so as to insure a healthy bowel and it produced gas but it never produced mucus. When my present flare was in its earliest infancy, the gas from the fibre changed character and became more gurgly. Although it went away for a while, I now have that same gurgly gas today and it is accompanied by mucus. There's mucus and, about half the time, blood either on the paper or in the water. I'd have to agree with quincy that the mucus is more likely a flare symptom, not a fibre symptom. I'd also agree with notsosicklygirl that you'd be better off asking your doctor about upping your 5ASA orals to 3600 mg and, if you've got any bleeding, adding in either Canasa suppositories or Rowasa enemas depending on how extensive the inflamed area is. Sounds to me as though you're catching this one at an earlier point than I did mine and you'd be wise to suppress it before it gets a toehold. As to the 1600 mg maintenance dose, I was on that amount for several years successfully but my gastroenterologist upped it to 2400 mg because studies had indicated improved cancer risk with the higher dose. The 1600 mg maintenance dose is now an anachronism; 2400 mg is the new maintenance dose.
Posted 1/28/2012 4:04 AM (GMT 0)
notsosicklygirl,

Another discussion about pooh around here and I'll slash my wrists. I'm just too good looking for this. :-)
Posted 1/28/2012 4:55 AM (GMT 0)
Yeah, the white stuff is mucous, the globby stuff might be the fibre if you're not taking it with food and using it between meals. But, it could be the slimy snotty mucous stuff mixed with stool. If that's coming out alone, flare for sure.

Ramping up the Asacol HD isn't enough, but good for now at 2400mg daily if all you have is limited to rectum/sigmoid..you need rectal meds. And, considering we (who suggest) do have experience using them with success, there's reason for it.

It's retention medication, not to make you go, just in case you don't understand what they actually do. Plus, UC starts at the rectum, and flares end there no matter how high the extent of your UC is. The Asacol does NOT treat the rectum.

But, it's your butt, you worrying about mucous is minor...worry about the actual inflammation and treat your flare fully.

q
Posted 1/28/2012 4:14 PM (GMT 0)
I read that so many people in this forum take fiber, it is too much for me. I just try to get it from fruits and vegetables. Taking extra supplements gave me too much mucous.
I take 12 Asacol a day, if I try to cut back my symptoms will come back.
Posted 1/28/2012 4:16 PM (GMT 0)
Doc called in some rectal meds and oral pred. Going to go get it soon.
Posted 1/28/2012 7:26 PM (GMT 0)
Mucous varies in form and colour, don't read too much into what colour it is (whitish/brownish) or the form of it, it's still mucous...both IBDers and IBSers tend to produce excess mucous but everyone does have mucous in their stool.

Once my system adjusted to fibre supplements (my GI told me to take them daily and indefinitely) I was able to start eating all fibreous foods as well, with no issues (you name it, salads of all types, nuts, popcorn, all furits and all veggies, etc).

Of course I still have some mucous (as everyone does) but it's not excessive like it was, and I mean it was majorly excessive, many of my daily trips to the toilet was just to excrete mucous...and alot of it each time.
Posted 1/28/2012 7:59 PM (GMT 0)
I don't think you need the oral pred....really...wait until you use the rectals.

Which ones will you be getting?

q
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