Fecal transplant at *** Medical Clinic?

Has anyone done fecal transplant at *** Medical Clinic or know someone who has? I'd prefer to get it done somewhere rather than try it at home and this seems to be one of the only places I could find in the US.

Or do you know another place in the US or Canada where I could get fecal transplant for Ulcerative Colitis and not have to do it at home?

[the clinic mentioned in this post is a known spammer]

Post Edited By Moderator (notsosicklygirl) : 2/24/2019 2:06:15 PM (GMT-7)

Oh, I'm in the Boston area! Yeah the issue I guess is finding someone who will do it for stuff other than CDiff

Bright Medical Clinic is in Oregon which is not ideal but fortunately I can get there if I decide it seems worthwhile.

Thank you! I really appreciate it!

I read the protocol that is used at the facility in oregon and it doesn't seem like it would be any more effective than doing at-home treatments. It's not done by colonoscopy (which would be the main benefit of doing it in a medical facility imo). I wouldn't pay all that money to have someone else mix the solution for me. That's pretty much all you're paying for.

It says they do have a donor bank, I'm not sure how they ensure freshness though...

http://fecalmicrobiotatransplantation.com/FMT/donor_bank.html

Although honestly, I'm grossed out enough that I'm willing to pay quite a bit for someone to prepare it for me. I'm used to talking about poop and I'm used to my own poop but handling someone else's poop is another story.

I know a GI at Montefiore (NY)...they can't do FT for UC or children yet. However, they are doing it for cdiff and have completed a fairly large study showing the effectiveness with cdiff. That said, they do recongnize the potential with FT for UC and are in the process of bringing it mainstream. In fact, there are several GIs around the country who have submitted paperwork to the "powers to be" to get the ball rolling.  Unfortunately, that could take years?

For now, yes, there is this 5 day "retreat" in Oregon. Like Edbar said, they do enema only, but do have a protocol. Sounds like the big hurdle for many on our board contemplating this procedure, is finding a donor. This is something that is supplied to you at this retreat as well.

Without knowing the credibility of the clinic, I'm with EqualsTwo, I want to hear from someone who goes through the clinic so we can hear about their experience. Any feedback would be great, anyone?

Post Edited (trojen) : 2/24/2012 3:18:02 PM (GMT-7)

I'm going in for a consultation on march 8th in PA for FT via colonoscopy. I think the place is called JacksonGI. They have only done this for two patiens so far - one with C diff, and one with UC. I already tried the at home FT, didn't have obvious results. So I'm most likely going to give this a try depending on how the LDN works out that I just started taking.

I don't know of any recent posted studies per say, but I do know Edbar can provide an interview link with Borody's former nurse who talks about the necessity of a longer protocol for UC and what that would look like. The one I describe: daily for a week or longer, weekly for a few months, bi-weekly for a few months, and monthly for the remainder of the year...is what instructions I've been given from a trusted GI in NY. He is in contact with Borody, has conducted large studies using FMT for Cdiff, and is now in collaboration with a few other US GI's to put together a case study for UC. Until then, you know the drill....they have to be careful with what they say or do...for liability reasons.

Edbar, are you able to post the link you sent me...I can't find it?

Killcolitis, how is the little one doing?

Post Edited (trojen) : 2/24/2012 3:40:00 PM (GMT-7)

Hi Trojen,

Here is the transcript link of the interview with Borody's former nurse.

http://jptwellnesscircle.s3.amazonaws.com/teleseminars/fecal-infusion.pdf

She doesn't specifically say what her protocol is for FTs though.

I noticed the Bright Medicine post was deleted.

I think my post must have been deleted because it seemed self-promotional to the moderators, who I'm sure are just trying to keep the forum to conversation and not sales. That being said, I'm happy to answer any questions from my FMT knowledge base as long as it doesn't lean too much towards me talking about what I do. IF you're interested in what we do at the clinic, you could email me off of this forum.

UPDATE: I spoke with Dr. Mark Davis....the person running the FMT clinic/retreat. He has had 6 UC patients so far, including one pediatric. All have shown improvement, but he is waiting for follow up colonscopy reports before publishing his results.

Kudos thus far....keep up the good work.

do you know if this clinic takes insurance? $7,000 is kind of ridiculous just to get somebody else to administer a poop enema.

No, the cost is around $3k, for the 5 day "retreat". I don't think that is an unreasonable cost given it includes the treatments, food, lodging, care, etc. Davis' first patient followup colonoscopy is scheduled for mid March....he intends to report results after that.