GI recommendations in Perth, Australia

Hi- this is my first post on this forum.
I am looking for recommendations for a gi in Perth, Western Australia
Diagnosed in November last year- only time I've seen my specialist was at time of colonoscopy.
I have been suffering with a flare for 3 months & have been handballed between my gp & gi.
Currently on salofalk foam nightly.

Hi I live in Adelaide and had similar to you my GI first put me on the salofaulk did not do a thing, then I was on pred enemas and salofaulk also did nothing. My brother organised a Naturopath and it has worked out great for me, I am on a diet and this will scare you to begin with gluten free, dairy free, caffeinne free, condiment free, shell fish free, canned or smoked fish free, canned and proccessed food free, deli meat free, red meat and pork free including sausages etc.

the diet sounds really restrictive and unless or I should say until you are ready to try it, and not cheat it probably won't work. My naturopath is Janelle Camuglia in Sydney NSW I have never been to visit her, but she got me into remission in 7 weeks on the diet and with some supplements.

If you have only had UC for 3 monthes you may be able to get there faster, the diet does not work for everyone so I have read on this post. But double the amount of people use food avoidance or diet to help manage their UC and have success with remission. I was at my GP yesterday as I had Dr app for 2 of our children and he commented on how well I look. I suggest you email her and ask some questions maybe she can help you or know someone in Perth. It is a different route to the GI but I tried the medication for almost 2 years and was in constant flare up running to the toilet with mucous and blood and urgency and it progressively got worse. Perhaps in the early stages you can make more progess faster, my GI told me it had nothing to do with diet or stress he was very wrong.

I am on rejuven x, vital greens, with rice milk morning and night and a boswellia tablet morning and night. The rejuven x and boswellia you need a naturopath perscritpion for, it was expensive origionally to get into remission but worth every cent as I am still in remission and on a maintenance routine which is what I would be on with medication anyway.

I have put Janelle's email below so feel free to email her maybe she can help Good luck keep me posted. UC is a very horrible thing to have and can be very restrictive on your everyday life.

Janelle Camuglia [[email protected]]

Cheers mum of 3 Adelaide,
Annette in remission 47 years old
Loving life as I now have my LIFE BACK

I have put a copy of my diet instruction on here for you, but I think the supplements(tablet and powder from Naturopath was the key) not just the diet alone

Subject: Diet by Naturopath, it says politely AVOID that means DON'T EAT my naturopath is very polite and diplomatic she is lovely and I have never been to her for a consultation she cured me from another state in Australia I told her what I had how it affected me she researched it for about 3 weeks before coming to a conclusive diet and was very pleased when it worked in 7 weeks

Ulcerative Colitis

Diet:-


1) Eat small regular meals (5-6 small meals daily)

2) Include some protein in each meal. Choose from:- eggs, organic chicken, organic turkey, steamed or grilled fish. (I being Annette actually poach Tasmanian Salmon) Limit consumption of beef and pork avoid mince sausages, deli meats, smoked meats, cured meats, salami, shellfish, prawn, crab, oyster, mussels, smoked fish and canned fish.

3) Eat plenty of fresh vegetables. If you can’t tolerate them raw, steam them. You want to aim for 3-6 cups of vegetables daily. Avoid pickled or canned vegetables. Limit Potato and corn. Eat Organic where possible. Do not microwave or fry vegetables. Lightly steamed is best./

4) Limit fruit to 2 serves daily due to its high sugar content. Consume fresh fruit rather than tinned and eat organic where possible. Avoid acidic fruits oranges and grapefruits.

5) Avoid lactose containing foods, milk, ice-cream, cottage cheese.

6) Avoid gluten containing foods. Bread, wheat, pasta, couscous, rye, cakes, biscuits, cereals, muesli bars. Many processed foods contain wheat gluten. You will need to check labels and look for ones that say ‘Gluten free’. The possible exception here is oats which are mucopolysacchorides and may help with mucous membrane repair.

7) Grains to include would be brown rice, barley, millet, buckwheat, replace bread with rice cakes or gluten free breads. Limit grains to 1 serve daily (about 30grams).

8) Drink plenty of water 1.5-2 liters daily. (filtered is best) Other drinks could include cabbage juice 9which has ulcer healing properties)

, carrot juice and green drinks such as barley grass or spirulina, or vital greens. Ginger is a powerfully anti-inflammatory, so ginger tea could be useful. ( I use a Ginger tea from the Chinese shop that comes in a glass jar and in a jelly type format and you keep it in the fridge after opening it is Ginger and Honey tea).

9) Avoid carbonated soft drinks, spicy foods and anything containing caffeine, as these can irritate the colon.

10) Use sea salt rather than table salt. Avoid processed dressings/sauces. As condiments use home - made dressings, tahini, olive oil, lemon juice, hommous home-made guacamole.


Have for Breakfast make up a shake. Add Rejuven X and Vital greens to 300mls or rice milk. For the first 2 weeks start with ½ scoop of rejuven x and 1 teaspoon of vital greens and 1/2 teaspoon of Natren Lifestart,(when Lifestart finishes more on to Trenev Trio), then increase to 1 scoop of rejuven x and 2 teaspoons of vital greens. Also take Boswellia complex for first 2 weeks 1 tablet at breakfast, lunch, dinner and bedtime then drop back to 1 tablet breakfast and dinner.

Initially if the colon is very irritated have liquid meals, cook meat and vegetables then puree them into soup.


Rejuven X is made by BIOCeuticals I have it in 700gm containers it helps rejuvenate the cells of the bowel and intestine and is imperetive to the healing process I figured out as my body is better when i take this. this is by Naturopath perscription only is the foundation of my everyday function.


Vital Greens in a phyto-nutrient superfood and I have it in a 600gm container and must be kept in the fridge once opened.


Natren Lifestart must be kept refridgerated even when travelling home from shop.


Boswellia complex, is made by MEDI HERB comes in a 60 tablet bottle and is for practitioner dispensing only. It strengthens or rejuvenates the muscles I looked it up on line, and my naturopath said it works as an anti-inflammitory.


I am also on Trenev Trio tablet which is dairy free and helps maintain healthy intestinal flora aids digestion and absorption, I take 1 at breakfast and dinner. 30 capsules and must be refridgerated from purchase travelling home in car and once you get home.


Metagenics MetaPure EPA/DHA which is highly purified and concentrated Marine Lipids 240 capsules I take 2 capsules breakfast and dinner.


I am now on 1/2 scoup of rejuven x, 1 teaspoon of Vital greens shake with 300 mls rice milk and a boswellia tablet morning and night taken while eating.

I buy rice milk off the shelf the cheapest and whatever is on special the trick is to shake it really well but my favourite is vitasoy you can also purchase that cold from the cold milk section and I only like it cold so I put 2 or 3 litres in the fridge at a time.

Hope you dont find this all to overwhelming

mum of 3

Hi
I am in Perth, and see Charlie Vialla at SJOG Subiaco. He has been pretty useful for me. I saw Luka Cordova at Mercy a couple of times, and he was pretty good too. Best of luck!

Prof Ian Lawrance - he sees patients at Freo Hospital and is a major player in IBD treatment and research here in Perth. His profile is at www.uwa.edu.au/people/ian.lawrance

Yes, I've heard really good things about Ian Lawrence too.

Thank you everyone for your replies. 


Notsosicklygirl:    Regarding the inflammation, the colonoscopy report says "idiopathic proctitis to about 18cm, most intense of the distal 5cm"

I  use salofalk (mesalazine 1g/application) foam enema- 2 applications nightly. 
Had really bad inflammation around Christmas last year and went on a 12 day course of pred. 
The salofalk is hard to retain and stings like crazy, but the blood seems to have subsided. 
Salofalk  stops my bm's down to one about every third day (or night actually- about 2hours after the enema) i am constantly bloated & gassy. When passing bm am in excruciating pain. 

Mum of 3- thank you so much for all the info, time & effort in your response. Thanks for diet and supplement advice- will def look into some of those supplements.  Sounds  like you are doing so well & have lots of energy, which  I am desperately lacking.
 My diet is and has always been very basic & healthy. Since diagnosis i avoid gluten: 
This is my usual daily diet: bowl of plain yogurt, a serving of  natto with a small portion of rice,  and a serving of chicken . I  have a few pieces of fruit too and make cold pressed vegetable juice & drink a few glasses of that. 
I also have a Yakult, an innerhealth plus (probiotic), 1-2 servings of Metamucil & about 15 fish oil capsules. 

This disease has taken over my life, feels so debilitating. 
I don't feel like I have a life anymore- my disease is my life.
My GI & gp write letters to each other- no one seems to be listening to me.

Amygrace- Thanks forruler recommendation & Thank-you to members who recommended Ian Lawrence- am going to ask for a referral to see him asap- I live close to Freo- so fingers crossed.

Thanks mum of 3 for your encouragement, sharing your naturopaths recommendations & your recipes. Was juicing carrots, beetroot, ginger, celery, parsley & apple, but am going to take a break until I have this under control.
I won't let this beat me.