I was put on 50mg/per day of 6MP, 2 weeks before christmas 2011. Then 1 week before christmas it was upped to 75mg, as all liver/kidney/bloods were good.
3 weeks later, I noticed that there was blood in my urine (it was a funny pink/rose colour). I informed my GP, who told me to tell my GI, as I was seeing him the next day, but my GP believed that it was the 6MP. I told the GI, and he dismissed me, and said that that was an incredibly rare side effect - then asked me if I had my period. I had a hysterectomy in October 2010, so I was scathing in my reply to him - as he knew I had had the op.
4 days later, still on the 6MP, I started passing blood clots in my urine, and was in a lot of pain, and went back to the GP, who immediately put me on antibiotics, and did a urine test, which showed red blood cell levels of over 3000, and white cells of over 2800. I also had an e.coli infection.
After 1 week of a/b's, the blood stopped, and then after another week of a/b's, all was clear on the urine counts - I was still on the 6MP as the GI still did not believe that it was causing the problem, and he told me that the problem was because I did not know how to keep myself clean
.
Then, 3 days after I finished the a/b's, I had pink/rose coloured urine again, went back to my GP who said that I had to immediately stop the 6MP as he did not agree with the GI, started me on a/b's again, another urine test showed red and white blood cells, but no e.coli, so as far as my GP was concerned, it was the 6MP causing this rare side effect.
That was a total of 5 weeks on 6MP - and I am about
to see a new GI on Thursday, as my last GI was an ***hole. (pun intended)