Posted 3/15/2012 12:05 AM (GMT 0)
I just typed this all out and accidently hit back. grrr.
My last scope showed that I have inflamation and sereve ulceration in 15-30cm, and mild ulceration in the 30-40 and 5-10 area. The letter they sent me said the biopsies showed inflamation (clearly) and none showed signs of pre-cancer.
I was getting Remicade 10mg every 8 weeks and we decided to change it to every 6 weeks but I have yet to have it at the 6 week mark. Besides that I take Vit D, Align and Iron.
What finally made me go to the ER was basically just the amount of pain I was in, normally my pain comes and goes but I was in instense pain Sunday night and Monday. I've been going to the bathroom more frequently which basically I just suck up and deal with, no blood and not any severe urgency. They did a CT scan to make sure I didn't have any perferations I guess because of the pain.
I go to Beth Israel in Boston. I'm feeling like they needed to have a better plan for when a doctor goes out. It seems no one knows what is going on, before she left she sent an email about me to the doctor on call, but when a different doctor called me today it seemed he had no clue. They tried to make me go to the ER up there ( I live 2 hours away and my doctor before she went out to have her baby told me it was just fine to go to my local hospital and she would tell the doctor on call what tests she wanted run on me when my ER doc called them (which they did). I told the doctor today that I was not going to sit in another ER, and that if they were missing tests they needed to ask my local PCP to order them considering he was talking about a different blood test and stool sample. I told them that I am well aware that my symptoms are coming from the massive amount of stress I am under ( and trying to control) and he seemed to write it off as if that had nothing to do with it, but the part that makes me even more angry is he kept getting off the phone with me to consult with the doctor that is higher up then him, I wish the better doctor wouldve just called me and settled it up with me.