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what do you guys think this caused by??

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Ulcerative Colitis
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Posted 3/16/2012 6:03 AM (GMT 0)
So on Monday I started pooping white stools and upper R epigastric pain. So I contacted my regular dr. They had me come in and thought it was an issue with my gallbladder. I had complete bloodwork and a complete U/S of my abdomen. All labs and ultrasounds came back normal for it not being liver, gallbladder, pancreas, kidneys, and spleen.

I always have blood in my stool (everytime I go for the past 4 1/2 years) and have mild stomach pain. I started having on and off intense stomach pain in my lower Left side late Tuesday night along with the epigastric pain. It feels like Im being stabbed...Also I have been vomiting 3-5 times a day mainly in the morning but sometimes in the evening(can't be pregnant....tubes tied).

What do you think this could be since my labs/US were fine?  All I know is I feel like crap!

I have not contacted my GI office yet about this. I love him but hate a couple of the nursing staff and thats who I have to go through. Plus I hate admitting I am having issues....its always like someone asks me how I'm doing and I always say..."Fine!!" or "Great!"

Thanks!!

Kim

Posted 3/16/2012 6:08 AM (GMT 0)
pooping white stools....are they floating?

how often are you having them?

are you also having light coloured or brown stools as well?

Are they formed?

what meds are you on?

q
Posted 3/16/2012 6:33 AM (GMT 0)
2 times they were floating they rest of the times they weren't. Dr thought that the bile duct was closed off by a gallstone which could make white poop because of lack of bile but that wasn't the case.

I have been having them since Monday....5 different times on Monday and then off and on for the next few days. I have had a couple light colored stools but mostly white.

They are mostly formed but only because I take Lomotil. I am use to seeing mucous but these are like all white stools

I take Humira 1 syringe/week, 12.5 mg of methotrexate /week, Lomotil daily, folic acid, Ondansertron (Zofran) at the time of the methotrexate inj and day after inj. (Been using this one more than that to get through my work day)
Posted 3/16/2012 9:52 AM (GMT 0)
If you have had blood in your stools for more than 4 years, even a drop, why your GI did not think of a colonoscopy? Since my UC diagnosis, I have also never had formed stools but I don't get blood in the stools either so I don't care if the stools are for not formed or what they call as pumpkin poop (I admit though, I started tooting a lot since then ~baseline inflammation is my suspicion).

With your abdominal pain, thats exactly what I felt like when I had a kidney stone but the pain was so sharp that I ended up in ER at 3am. Just could not take it. The pain accompanied with nausea and I did throw up twice before leaving home. You do say though that your ultrasound came normal. To note, they never did ultrasound for my kidney stone, they did a CT scan (and billed me $8K for that) which clearly showed blocks in kidney (hydronephrosis) as well as the tube, plus inflammation in the colon.

lovemyboys09 said...

Plus I hate admitting I am having issues....its always like someone asks me how I'm doing and I always say..."Fine!!" or "Great!"


Honestly, I hate the question, How are you? To be blunt, first of all, they REALLY don't care, thats just a lip-service. Secondly, if I am not really well, what are they going to do about it? They will offer another lip-service, Oh, I am so sorry, hope you feel better!! Don't tell me thats a norm of the society, even if it is, I HATE it.
At the doctor's office, I flately tell them, UC made my life hell... and to the doctor, I support my statement with valid data/argument. (but I have to mention, none of my docs are ***holes).
Posted 3/16/2012 4:15 PM (GMT 0)
DeltaForce....

I have had 3 colonoscopies and 2 sigmoidoscopies in the last 4 years. Bleeding is one symptom that I can not get rid of unless I'm on prednisone and I was steroid dependent for 9 months straight.

They told me my kidneys were fine and measured appropriately so I think its fine too.

Your 100% correct on people don't care really though and its just a formality to ask how you are. I tell my GI dr how I feel just not anyone else....whats the point ...like you said they can't do anything for you,

I have a GI appt in 4 weeks and told my family practice dr I would just wait to see if this all blows over. She said to call if I need to get in sooner

Posted 3/16/2012 4:52 PM (GMT 0)
Having white stool isn't normal, and from what I read...thorough testing should be done. I would think that the doc should set you up for an MRCP...to test for liver/gallbladder, pancreas and to see if there are blockages caused by whatever.

Do you have copies of the blood tests that were done?

I also think you need to have stool testing done to see if there's a lot of fat in the stool or if it's just a lack of bile.

The vomitting...wow, not a good thing either.  Where is the stabbing pain? upper left or right?


 q

Posted 3/16/2012 5:16 PM (GMT 0)
The problem here is, they give you propofol during colonoscopy. All my colonoscopies so far have been done without propofol and I could actually see whats in there and talk to the doc while he was doing the procedure. I wonder what was the result of all your scopes. If you have blood that means there is an underlying inflammation. Now the question is, if the doc can see it in the scopes. If he can, then is he trying to give you meds to reduce/control that inflammation. I see that you don't tolerate many drugs, so from repertoire I can not think of anything else but LDN.
I am sure you know long term steroid is not good at all. I have been on steroids for more than a year and I can tell you is so nicely messing up with my body and me that I can't wait to get rid of that.

With white stools, my guess is its bile. AFAIK, bile is the one that gives color to the stools. The doc has to figure out why the stools are white. If bile secretion is normal and not blocked. I don't know if there is any test to check that (Quincy pointed to some test but I have never done it and not aware of it). Talk to your PCP and see what she has to say. Although my docs are good, I always set them up against each other from the information I get from one and see what they have to say. I do my own research as well to see who is right and wrong.
Can you pinpoint stabbing pain location? As far as I can remember, mine was 2 o'clock from naval in the back for a kidney stone. How many times did you get chills and fever in recent past? Is your urine frothy/foamy?
Posted 3/16/2012 7:29 PM (GMT 0)
My pain started in the upper R quadrant thats been going on for around a month...I always have some abdominal pain throughout my gut so realy don't think to much of it

The past 3 days I have had really sharp stabbing pains in my L side. It is not constant but it does make me nauseous when it happens.

My urine is normal and I have had chills for the past week but no fever.

Quincy what kind of test is the one your talking about. Yes I do have my lab results and everything is in normal range. For the most part I have normal labs even if my colon looks severe.
Posted 3/16/2012 7:52 PM (GMT 0)
http://www.radiologyinfo.org/en/info.cfm?pg=mrcp

Did you have the blood tests of what's on this article?

http://health.nytimes.com/health/guides/disease/bile-duct-obstruction/overview.html

q

Posted 3/16/2012 10:07 PM (GMT 0)
Although you are saying that all tests are normal, did they check urinary Calcium and Oxalate excretion too? As Quincy is suspicious of bile duct obstruction, I am suspicious of kidney stone. Actually, kidney stone pain is pretty sharp and since both of your sides are involved, I would ask for this test and more related to them to confirm or disregard the suspicion (but the stool color points to bile).
Posted 3/16/2012 11:07 PM (GMT 0)
No I didn't have them test for calcium or oxalate. I will have my dr do that on Monday.

Thanks for the advice!
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