did anyone have luck with the German enterically coated Phosphatydilcholine (rPC)

Hi Probiotic, We used the granules from the same pharmacy but they seemed to correlate with my daughter getting worse. So we stopped. I don't remember trying the enemas though. Have you tried those?
I believe withe the pills the granules actually "scratched" her colon but I understand that actual study is using granules as well and having great results, so who knows?

Some remedies look so great on paper but dont pan out like a tub of butyrate powder for 70 bucks.

I never heard this underground PC pan out of even one person.

I don't quite understand why it did not work well overhere. The studies on humans seem legit, the theory from extensive research I did seems to be sound, and I still believ half the battle is a strong mucus barrier. Anyway a couple things come to mind, they probably have somewhat of a different diet where the studies are done, not quite as exposed to veggie oils,they probably might have a somewhat different bacteria set in their guts, they probably are not exposed to quite as many detergents as we are. In my effort to enhance my mucus barrier I have switched to ivory soap, for washing my hair and in the shower for body washing, also shaving, and hand washing. I tried to use only baking soda for teeth brushing but that has made my teeth super sensitive.
Anyhow I did try for about a week injecting one ml of straight PC into the rectum, which I found to be irritating.
I have a less than 3 week old thread on this site about detergents we are exposed to and your gut mucus barrier,seems no one is really interested, but they should be. We know FT works for some, and LDN works for some, I would also like to mention again, that veggie oils shift your gut bacteria to a gram negative mix,not a good thing.
Old Mike

I think the PC from the German pharmacy is probably not exactly the same as the one going through trials?

Good point, Mike- Europeans clearly dont bave the rampant insulin-resistance, HFCS laced and double portion sized diets of the average Americans and have much less obesity etc. - but I was thinking of killcoitis' daughter, myself, and others who have tried rPC while eating low carb, grass fed meat etc etc. And still it didnt work. As far as the formulation, my understanding is that the pharmacy there was the kne that made the rPC for the clinical studies and thus it is identical.

I didn't order from Germany. But I have been using lecithin enema (off and on) for the last five years to achieve and maintain remission. When I flare, lecithin enema is the first thing I indtroduce to my regime and it has worked great everytime. But, obviously, I would much prefer the oral version of this.

Sakiv64- Thanks for chiming in- along with Mike I second the motion to please post as much detail as you can manage re. Your own enema use for lecithin. I did a few enemas using those little generic enema bottles one can get from the drugstore, the squeeze bottles. I mixed basic, generic soy lecithin granules from vitamin shop- I think I used about 2 or 3 x the quantity used orally in the German oral rPC studies, mixed with water to about half fill the enema bottle, then I squeezed out the excess air and squirted it into my rectum and rolled about a bit. My gut is horrible with enemas so I'd say in my 6 or so attempts, half of the time it got ejected out within 10 minutes, and 4 times I managed to hold it in for a few hours or even overnight- I susoect doing a water enema first to expell any fecal matter first would help me retain them if I tried it again.

one thing I noticed is that it wasnt really dissolved in the water.. Rather it was basically gelled up, a sort of froth, in the water but chemically was just little clumps of lecithin gel suspended, but not dissolved, in the water.

Great to hear if your success using the stuff- I began to flare when using the enteric granules from Germany- something about the enteric coating seems to irritate my guts, the very opposite of what I need, but my own experiments with lecithin enemas never caused me side effects, so if I can refine the technique it sounds worth trying again.

My alternative MD / Pcp guy suggests that I purchase an inversion table, as used for back therapy etc, to allow my enemas to work their way gradually deeper into my colon.

Very helpful- thanks for the scoop!

Thanks I had forgotten you posted on this in the past. I was using a liquid pc which seem to irritate.
Old Mike

Anyone have any success with the lechithin granules rectally? i was healed of lyme disease using the PTC Patricia Kane protocal which is similiar to this. It uses an iv phosphatydal choline and glutathione push after.
I am thinking of trying this rectally with rectal glutathione suppositories.

I can tell you Probiotic went on to have surgery and he's out living life now - doesn't post very often.