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I hate the unpredictability...

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Ulcerative Colitis
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Posted 4/26/2012 11:24 PM (GMT 0)
Why are some days so different than others? I hate the unpredictability...I had 2 *good* days in a row with 2 soft but rather formed movements, but then today I've gone 8 times in 8 hours...***? What changed from yesterday to today? I ate virtually the same things (I keep my diet very consistent and very bland), but my *results* were very different...

Also, how can I poop so much when I barely eat anything? Am I being visited by the poop fairy or something?

Ta,
Lisa
Posted 4/26/2012 11:39 PM (GMT 0)
I remember those days (and months and years). It was so friggin difficult to figure out cause-and-effect, like what was the reason, what food what drink what supplement. I learned to isolate things like food to changing only one element at a time and watch the results not daily but weekly and longer.

I read posts here that gave me clues but they were only clues because every colon is different in it's likes and dislikes. But when I was lucky enough to get improvement I stuck with it and tried to add onto it. It took me a looong time but I figure I was in a bad state after almost 10 years flaring so overnight success would not be possible. And I didn't have any other good choices so continued with diet mod. as my main therapy, thankfully it worked for me.

As far as poop volume your colon is just not processing your food so the quantity is high. You could also try decreasing fiber especially insoluble fiber. Until your colon gets more healed volume will continue as it is. Again I know the feeling.
Posted 4/27/2012 12:09 AM (GMT 0)
Why are some days so different than others? I hate the unpredictability...I had 2 *good* days in a row with 2 soft but rather formed movements, but then today I've gone 8 times in 8 hours...***? What changed from yesterday to today? I ate virtually the same things (I keep my diet very consistent and very bland), but my *results* were very different...

Are you sure you are keeping track of every little thing? I was set off by chewing gum once because it was sweetened with xylitol. Another time I was dumbfounded before finally realizing that I switched to a new glucosamine supplement that was derived from shellfish. There are always new ways to trigger flares but the good news is that it becomes easier to track them down once you get the hang of it.
Posted 4/27/2012 1:03 AM (GMT 0)
I hated the unpredictability too.

Sue
Posted 4/27/2012 8:23 AM (GMT 0)
Poop Fairy?

Yep it was him, from the band of mischievous & ornery rogue fairies.
Posted 4/27/2012 3:49 PM (GMT 0)
I like poop fairy... I gotta use that. Hey there is a tooth fairy. Can we get some $ when we poop? Thanks for the laugh.
B
Posted 4/27/2012 4:58 PM (GMT 0)
ahaha sorry but the visit from the poop fairy is the quote of the week for sure!
And hateuc i wish i had money every time i pooped in my life. we would all be rich!

Ok now for the more practical. Hows your meds working? Are you trying to get out of a flare? It can be sometimes like this when you are flaring and slowly getting out of it. Use patience and note what you eat like the others said.

And I really don't know why we can produce that much quantity of poop and to be honest not even feeling properly empty after all of them!
Posted 4/27/2012 7:07 PM (GMT 0)
CoLah,

The unpredictability of this disease is what tires me out emotionally the most--the roller coaster of maybe today will be good day, but then it isnt and then on and on it goes. I would suggest you keep a journal of what you eat, drink, how you sleep, meds, etc, so maybe you can see a pattern. Something you ate a couple days ago could give you a problem today. That being said, its seems for some of us there isn't always a clear rhyme or reason as to what bothers us. If I am already not feeling well, many foods/drinks/stress/lack of sleep with just make it worse, but when I am in remission I find a can push it a bit more.

How much prednisone are you on now? Does your dr know what is happening right now with your symptoms? And when was your last colonoscopy? I had similar intermittent symptoms in the fall before Cimzia fully kicked in, dr did a colonoscopy to see if it was working cuz my symptoms were all over the place, totally inconsistent, but it did show that the drug was actually working. Maybe once you are both a bioligic and an immunesupressant, things will calm down more.

Oh, and the poop fairy is classic! I know if my kids heard that one, they'd be repeating it for days!
Posted 4/27/2012 7:10 PM (GMT 0)
i hated it too, but I think I have it figured out now...but for now you should look at offending foods, go to bed early and exercise...I have a post called "MyExperiment" that I keep updates in...if you get the chance, take a look.
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