[after years of reading message boards and never posting, i'm finally compelled to post because 1) i needed to hear that others have accidents all the time 2) my brother who also has crohn's just started using/reading message boards and inspired me to finally share]
I still have accidents all the time. Pretty much any time I need to go and I'm not near a bathroom. This has been the case for the most part, since Remicade stopped working for me in Dec. 2006!
I guess it's progressively gotten worse up to the present 'cause the small area of my lower colon will NOT get healthy. I can't eat before I leave my house and I almost never leave the house without taking Lomotil. My accidents aren't usually even diarrhea. I lose formed or semi-formed stool. I often don't have a meal until dinnertime if i'm working [i start at 12p] or if i have to do errands.
I've worn a pad every day for the past 3 years and gone through so much underwear, I should own stock in Victoria's Secret. I started wearing a pad when I had a recurring perianal abscess which turned into a fistula.
I had a seton for about a year and a half..almost 2 [then it fell out!]. When I went for yet another [bowel] surgery consult to see if I could have a resection or colectomy, my surgeon said my fistula wasn't healed and the lower colon/rectum was too inflammed for surgery. I went back for what was supposed to be another seton placement, but turned into an anal fistulotomy [last month]. I'm waiting now to see what my options will be.
I'm lucky my manager at work told me about intermittent FMLA, so that my job is protected. I hardly ever call out sick, but I'm often tardy because I'm either 1) afraid to leave my house until i feel "empty" or have had 2-3 BM's; 2) need to stop for a bathroom on the way; 3) have an accident [i can sometimes clean up and continue on to work, but usually turn around and go home to change and stick my butt under the tub faucet]
I have some crazy pooping-my-pants and almost pooping-pants stories. But I'll save those for another post.