Fecal Transplant Log Part II

just bumping my thread; no change in symptoms. Saw a little blood one day so decided to use pentasa for a few days just after going down to 0 in pred. Feeling good in general. Having a appointment with my doctor the 20th to do a final check on things.

Good! I had hoped you had not abandoned your log, I am interested in hearing the long term effects. Enjoy your upcoming trip!

Curl3d,
Great news with the hemmy (I guess)....glad its not your UC. I think "mild inflammation" or microscopic is something that will either always exist now...but totally easier to manage....OR, still in the process of eventually dissapearing. Either way, your feeling better and that is all that matters. You may want to consider a monthly follow up FT for a few months....to seal the deal? Thanks for your posts.

This is another example of FT being at the very least, an excellent adjunctive therapy option for UC.

Curl3d, that's very promising news! I agree with trojen in that you should do some follow up FTs. I would even do one or two a week for a month. This is a very stubborn disease and if your UC is caused by a pathogen of some sort then you want to make sure all the spores of the pathogen are killed before you stop FT. That's just my opinion but either way it sound like you're doing very well. All the best and keep us up dated.

Hi Jimbo,
Yes I am in New Zealand, also in Auckland at the moment but will be making a longer trip in a few days so will only be in Auckland another 3 or so days.

I am in perfect health at the moment. I may do a few new periods of follow-up FTs in a few weeks but rather than doing every other day I will probably do 5-day treatments or even 14 days in one stretch. I don't understand why you would do every second day; if we're trying to eliminate a pathogen then it would probably be more effective to do a full period without gaps (bomb mat) rather than single days ?

I really recommend considering FT, its basically without risk if you know your donor well. Sure you may think its a bit disgusting, but take it as a challenge. If I can do it then you can! I am no super human by any means

Sorry, I was out of it, looking st date joined and thinking it was a Feb. reply.

Hi,

I have been following the FT threads for some time now. My son has UC (pancolitis) and we are searching for a clinic to do FT via colonoscope.

This is to all the parents of a minor that there is a pediatric clinical trial going on for IBD using FT in Grand Rapids, MI. They are in recruiting phase. You can see the details by going to clinicaltrials dot gov. Dr's name is Dr. Kunde, actually, he said he is planning to start another trial for adults with IBD next year. He mentioned that for adults there is one trial in Canada for which they are recruiting but when I searched, it's not in recruitng phase yet. I don't think I can put the contact number for the Grand Rapids but if you google it you will be able to find it. It is Sprctrum Health Children's hospital. Age limit is 7-21 yrs.

During our search for clinics willing to do FT, we came across Dr Alister George, a GI in Thousand Oaks, CA. He is willing to perform FT for UC patients. Does any one have any experience with him? He is running a private clinic of his own. He hasn't done FT for UC yet.

question for those that do FT. i want to know how you get the poop into the fleet enema bottle. are you using a funnel or a turkey baster or something else? i am getting all my materials tomorrow to start at home on saturday and want the easiest thing. i wasn't sure if you could clean a turkey baster after each use or how i would disinfect it.

i am just doing the ziploc bag method of mashing it up and then getting it into the bottle. the blender idea just seems too messy and i'd rather just throw a baggie away.

Killcolitis, how's the little one?

Joanna, I blend the stool for 3-4 seconds only and pour through a regular kitchen strainer (stainless steel). Then suck it up into a 5oz syringe and inject through a catheter. This is for an 8 yo with me doing the enema but it might be a bit tricky doing it yourself using the syringe and catheter. 

Good luck.

Hey curl3d
welcome back! And great ot hear you're still feeling great.

Hi everybody, bumping my thread again. Feeling great not having any blood or hemmies. 1 BM per day. I always poo quite a lot due to eating nuts as snacks, they tend to do that.

I am still on restricted diet (no gluten, no processed food, no refined sugars only dairy hard cheese) and still taking 4 asacol tablets in the morning. My life is at a stage where I don't feel like experimenting too much with my body so I will probably stay like this for another month or two before starting to change my diet. I will probably add back cream first (when I do feel like I can change my diet) and wait with the rest of the stuff. I find that the hardest thing about this diet is that you get hungry quite quickly. Smoothies help.

Its kind of nice not having to worry about gaining weight too!