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1 year remicade anniversary (knock on wood!)

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Ulcerative Colitis
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Posted 5/7/2012 8:30 PM (GMT 0)
It has been a very difficult road for me but have been doing well and hope to stay this way for as long as possible.  I had a nightmare the other night.... that I had blood on my poop again.  Even though it was a bad dream, it still affected me and I had a tough day. 

However, most of the time I feel fabulous and work out a lot.  Got some new clothes in a smaller size and I just downloaded the couch to 5k app and started yesterday.  I am going to sign up for a 5k run : )

Get my remicade tomorrow.  The Dr's office I go to moved to a brand new office and they now have portable DVD players for the infusion room but only a couple of movies.  I bought Stepbrothers, MIB 2 (didn't realize it was not the first one till I got home) and The Great Outdoors for $5 each at Walmart.  Going to donate those so other people can watch something and pick up one and leave it there each time I go.

Just wanted to post an update and say thanks to everyone that has been there for me on that emotional roller coaster.  I don't stop by too much any more but hope there is at least one person that I might help so I peek from time to time.

Posted 5/7/2012 11:57 PM (GMT 0)
that's so great, beth. im really happy for you. that's nice your remicade office has dvd players. there's a small tv in the infusion office i went to but it always had on soap operas- my nurse loved them i guess haha
Posted 5/8/2012 1:23 AM (GMT 0)
Such great news Beth. I remember when you were feeling pretty hopeless and it's great to see you feeling so good. I hope it lasts forever.
Posted 5/8/2012 3:33 AM (GMT 0)
Hi Beth:
I'm so happy for you that the Remi is doing it's job! It gives me hope to know that after a year you are doing well on it. I've been on for 5 months now and also doing great!

Enjoy your movies, nice way of paying it forward :)
Posted 5/8/2012 12:32 PM (GMT 0)
I know the feeling of having bad dreams and the following day you keep thinking about it.

I would love a dvd player in the infusion room. Lucky you. I would always bring my phone and listen to the radio or mp3 or read some magazines (hard to hold them with one hand)

Beth I wish you all the best and that you tolerate the infusions forever.
Posted 5/8/2012 12:39 PM (GMT 0)
Congratulations on your anniversary! Glad to hear Remi is helping yet one more UC sufferer to become a person LIVING with UC. I had my six-year anniversary in March, and my colonoscopy in April showed no ulcers, no inflammation, only a little rectal scarring from the five years I flared before starting on Remi.

I've been getting my infusions at the hospital same-day unit, where I had a private room with a TV which I could keep turned off, just the way I like it. I take my I-pod and rest or nap, or read while my Remi infuses. Andrina, I bought a Kindle which is much easier to hold in one hand. Next time they'll be switching me to an infusion center, so I'll see how that is.

Again, congratulations and I hope you have many more years of remission in your future.
Posted 5/8/2012 1:01 PM (GMT 0)
Yay! I hope you have many more years of healthy happiness! :)
Posted 5/8/2012 1:16 PM (GMT 0)
Beth -- happy anniversary! I can remember hitting the year mark with Remi as well, and I too was feeling really well. Congrats on losing the weight (pred weight?) and challenging yourself to do the 5k run...that's awesome! I was on the Remi for over five years, and now just take Asacol. I still have the fear when I have a little urgency or blood from my hemmies that I'm out of remission, but I suppose that we probably all feel that from time to time. Take care, and again, happy Remi anniversary -- glad you are feeling so well!

Posted 5/8/2012 2:43 PM (GMT 0)
Beth, it's definitely been a long time coming for you... great to hear you're doing so well!!!
q
Posted 5/8/2012 2:59 PM (GMT 0)
Great to hear and thanks for posting. I know many have a lot of reservations about remi so I'm sure your post will help alleviate that for some. I hope your remission lasts for a very long time and it's great that you have some down time during your infusions.
Posted 5/8/2012 4:23 PM (GMT 0)
Congrats on the anniversary and feeling well. My 7 year old has been on Remi for a year and a half now, without any issues.
Posted 5/8/2012 4:34 PM (GMT 0)
Yay, Beth, that is great news!!!
B
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