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trying to stay hopeful for 6mp

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Ulcerative Colitis
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Posted 6/14/2012 3:39 PM (GMT 0)
Ok so Saturday will be 6 weeks on 6mp.  For the first 5 1/2 weeks I was only on 50mg and upped it to 75 maybe 4 days ago.  I do see a lot of improvment.  2 to 4 bms a day pretty much formed.  Some M on it but less of it to the side of it.  NO more red mucus.  No more bleeding into the toilet.  Some blood on stool.  Most days no blood on tp or just a tinge.  Today there was a small amount of red blood on the tp after days and day of not having it.  I got scared.  I know 6mp can take 3 or 4 months to fully work.  For any of you have healed using it, is this how it went for you.  I was really hoping that I was on the road to fully healing.  Maybe more time and maybe my dose was pretty low for the first 5 weeks. 

Need some encouragment.  Thanks

Posted 6/14/2012 3:53 PM (GMT 0)
seasons 21
I think as often as we hear about being patient with this disease, it is being said again. Things take time to work. I anticipate my GI is putting me on6-mp @ next appt 26th . so I feel your anxiety but when I made the decision to go on 6-mp although scarry, i am running out of options. I am putting on my brave , courages and impossibly possitive face to get through the possible side effects of the drug. I encourage you to as well. Can you phone or get appt with dr? possible would add a cortifoam or something. Best of luck, I hope you start getting well soon!

Ellie1234
Posted 6/14/2012 5:38 PM (GMT 0)
Seasons you are doing great. That is definitely an improvement and what you are doing is working so keep at it. Take it week by week and you will see how far you have come already. These meds work differently for each person so your timing may be different than someone else's. Sounds like you are on the right track so hang in there!
Posted 6/14/2012 7:26 PM (GMT 0)
I agree that you need to have patience. See sawing back and forth between symptoms while starting 6mp is pretty common. I didn't see any improvements until I was on it for 7 weeks and than at the 3 month mark, it was like a switch was thrown. It seems you are improving so that is a good thing.
Posted 6/14/2012 7:37 PM (GMT 0)
Seasons, are you reducing your Prednisone as well?  I know I reduced from 25mg to 20mg on Tuesday and I'm still having more UC symptoms now today.  I was having formed BMs last week and less frequency and I'm back to thin BMs, alot of gas, burning on my left side and more frequency.  I know tapering the Prednisone can cause a little relapse that hopefully goes away in a few days.  It sounds like you are seeing improvement though so it should only get better from here but I'm sure you may have some little back and forth. As long as you are generally getting better, even slowly, I think that is a big improvement!
Posted 6/14/2012 9:49 PM (GMT 0)
Yes, that sounds very similar to my experience when I started Imuran.
Posted 6/15/2012 12:28 AM (GMT 0)
Are you taking rectal meds with the 6mp?
Posted 6/15/2012 12:44 AM (GMT 0)
Thank you all for your encouragement. Hopefully it's just a little back and forth and I really do need more time. I just get nervous that this wont be enough. It's good to hear all your stories, I truly appreciate them.

kloe0038
I am tapering off cort enemas. I've been on them since February. I'm down to like 2 a week. Don't want to use them long term but I can't take any mesalmine.
Posted 6/15/2012 12:58 AM (GMT 0)
For me, it took much more longer and I faced a lot of challenges with my WBC.
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