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Pyoderma gangrenosum

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Posted 6/13/2012 5:26 AM (GMT 0)
Has anyone here had, or think they may have had this? Was onnthevostomy sight and saw it mentioned. Never heard of it before, but guess it can pop up in uc patients and I am afraid I had it five years back. Wondering if it should affect my surgery decision.
Posted 6/13/2012 10:43 PM (GMT 0)
wht is this? skin related?
Posted 6/14/2012 1:51 AM (GMT 0)
Yeah skin ulcers basically.
Posted 6/14/2012 1:53 AM (GMT 0)
It's very common with crohn's...you can find threads about it over at the CD forum.
Posted 6/14/2012 1:54 AM (GMT 0)
I just looked up images of this on google and it was pretty severe. I've seen it mentioned here but I have a feeling it can be mild compared to what I saw on google.
Posted 6/14/2012 3:58 PM (GMT 0)
Had it most of my adult life , boil like sores sometimes requireing antibiotic . GI finally dx as Pyloderma a side affect of the ever amazing UC.
Most of the time I can put my own burosol compress on and it will heal up. Good Luck,

Ellie
Posted 6/15/2012 1:55 AM (GMT 0)
Thanks, what I had happened five years ago, I am just concerned it would reoccur with surgery at the stoma sight, as I was considering a permanent ileo, instead of j pouch
Posted 6/15/2012 2:22 AM (GMT 0)
Actually says more common in uc than crohns, from what I read
Posted 6/15/2012 2:55 AM (GMT 0)
I actually experienced those prior to my UC diagnosis. However, after several graphs from my CRNP, then later from a dermatologist, and even looked at by my gynecologist, no one ever associated this with the bowel issues I was experiencing for years.  Forgive me for saying this, but I honestly believe many people go into medicine for the wrong reasons.  Perhaps, it is because this disease is just not well known by the doctors in my area, I just cannot tell!  The boils came at times when I suspected everything from allergies due to new detergents, or trauma from jeans, or anything inbetwixt and between; however, I now know that they are UC related.
Posted 6/15/2012 5:59 AM (GMT 0)
I know what you mean about the doctors. I read/saw the boil variation. What I exoerienced seemed more like the open wound variation.m
Posted 3/18/2013 8:37 AM (GMT 0)

Suggested Pain Relief for Pyoderma Gangrenosum - it is working well for me!  

Anyone diagnosed with Pyoderma Gangrenosum needs to request that their doctor prescribe them Gabapentin (Neurontin). Start with 300 mg three times per day. I speak from experience when I say that narcotic pain relievers (codeine-based, etc.) don't do as much for the pain of PG as Gabapentin does!

My first hint of PG was three small white heads on my right heel and achilles' tendon area on Jan 22, 2013.  More white heads appeared on shins and calves over the next 10 days. By Feb 9, 2013, wearing regular shoes (that covered my entire foot) was out of the question. By Feb 11, I was making appointments with a wound care specialist and my GI did a referral to a dermatologist. On Feb 17, I went to the ER because the swelling was getting worse and both legs and feet were red as if they were sunburned in additon to the worsening and spreading lesions. After 3 days in the hospital where I received a shot of morphine prior to the dressing changes, I was discharged with only Tramadol (previously prescribed by my GI specialist) and Hydrocodone.  I was miserable. After laying down in bed for 30 minutes or more, then getting up, the pain in both legs was like sharp stabbing pins and needles from knees to feet for about the first 90 seconds, then the pain switched to more of a sharp burning sensation that lasted about another 2 minutes!  On the 1 to 10 pain scale, it was a 10 or higher, especially when I got up in the morning after being horizontal for 4 hours or more! mad

 
I actually had a few Gabapentin capsules leftover from my 2012 knee replacement surgery and I figured I had nothing to lose so I started taking them. They helped a little, brought the pain of getting out of bed down from 10 to 8, but I was only taking 2 a day so they would last until my March 5th appointment with a Pain Specialist MD and he set me up with a fresh prescription of Gabapentin 300 mg, three times per day.  yeah   It has taken the pain of getting up in the morning down to about a 3 or 4, definitely more manageable.

Posted 3/18/2013 11:47 AM (GMT 0)
I had a small, incredibly painful sore occur twice on the right side of my lower leg, twice back in 1996/7, it was frightening as it developed so fast, could see it form before my eyes, it never got large though. One doc thought pyoderma. It looked like a fever blister and finally, second time around, a dermatologist decided it was the HSV virus, although they never isolated a virus in the culture or found anything to prove Pyoderma from the biopsy. Both happened at a time when I was playing around with different levels of pred.

Happy to say I have never had one since. I did get monthly nasty, itchy rashes on my lower leg that I realised in the end came up at the same time each month during the menstrual cycle and, since supplementing B complex and Folic acid they have never come back.

Sorry, that is probably not that much help....don't look at the pictures on the net though, they were horrific! I am told it would be very rare for it to get like that.
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