Trichuris suis ova?

Hmm anyone heard of this? No responses..interesting...

Contrary to what killcolitis said, there is a ton of research and papers on worm therapy for colitis and other immune related disorders. I tried TSO for several years at great expense. It definitely dampened my UC somewhat, to a noticable degree, but to notice an effect I had to use double the recommended dose. Given that it merely reduced my symptoms and did not give me full remission, and given the enormous cost, I gave up on it eventually and tried other types of worms such as hookworm therapy and human whipworm therapy- which are not as clinically studied as TSO and are provided by worm therapy entrepreneurs who are living a bit on the legal edge- however these theraoies are much cheaper to try than TSO. Both of those however gave me chronic D but never dampened symptoms, so I eventually abandoned worm therapy altogether.

However, there are quite a few people on worm therapy forums now- see for example the helminthictherapy group at yahoo groups. There is also one on facebook. If you are interested, you should go there to browse and ask about. My example, as you can see, was mixed. But they clearly interact with the immune system- when I was on worm therapy of any sort, including the TS ova, I was 100% free of hayfever symptoms- whereas off of worm therapy,once again I have to take zyrtek or claratin to survive approximately 2 months of early summer- and even then with some symptoms- whereas I was literally 100% hayfever free while on worms- not that that was the reason I tried them (it was jhst a side benefit).

Post Edited (Probiotic) : 4/10/2012 2:26:19 PM (GMT-6)

Ok, killcolitis, I can see you have been looking hard for evidence and I understand where you are coming from- I was convinced worm therapy was my salvation, but it didnt turn out to me in my case. I used to have several 3" ring binders full of every worm therapy related article I came across... alas, in the latest spring cleaning, seeing as I have abandoned it as a therapy, I trashed all that. Go to the files section of the helminthictherapy group and you will see a lot of peer reviewed articles. Its true, that in terms of human studies, the only big ones remain those U of Iowa ones that used TSO- there were some inconclusive studies after that using hookworm, and I believe there are some ongoing studies with both TSO and hookworm, plus a couple articles on a one man case study of a guy who tried human whipworms...

So the real mountain of studies remains with lab animals- mostly rodents- and there are a couple hundred of those papers at the very least, scattered about and accessible on pubmed when one uses search combinations like "helminths IBD:, "helminths colitis", "helminths immune system" etc etc. .... So a lot of research and papers are flitting about. But I hear what you are saying about the relative dearth of human clinical studies. It seems that a lot of that came to a screeching halt when the FDA demanded expensive monkey studies before any more human studies could take place. That wall was what led many patients to take things into their own hands. I do think that TSO, hookworms, and human whipworms Trichuris Trichuria are very very safe to try- they are all extremely easy to kill, and none colonise. All that said, I wish I had found LDN before I tried worms, as it seems more helpful than the TSO ever was.

SEASONS?

Hi.  I was in the study in Iowa City, Iowa with Dr. Weinstock in 2003.  I suffered from UC and it put me in remission for 9 years.  I saw immediate results.  For the last few months I have been having flare ups again and ordered the TSO therapy again.  I am on day 4 and have seen a drastic change in BMs.  I'm sure it doesn't work on everyone but for me I got 9 great years of no sign of the disease at all.  I'm hoping for another great 9 years!  Feel free to ask me questions about the therapy. 

For water,

I was not taking other meds during the 9 year remission nor was i on any special diet. I could eat fast food, drink milk, eat ice cream, etc. Unfortunately my flare-up this time landed me in the hospital and my stay was longer than expected. The hospital bills are rolling in and I can no longer afford the TSO treatment. I'm back on prednisone and Lialda and eating mostly liquid/ low residue diet. :( I bought the TSO from Biomonde. I took the 2500 dose for 20 weeks in 2003. And ordered the same this time but was only able to take 1 dose. It arrived next day. My new GI doc does not support the tso do I am going through the regular treatment plan instead due to my financial situation.

Anna with UC

Probiotic,
For the tso, the frequency was every 2 weeks. I'd have to say this disease is much different this time around. The inflammation spread further up and looks like about half of my colon is diseased. I did feel much worse when i was diagnosed in 1999. Maybe it is the steroids I'm pumped up on for now. I have been on a low fiber diet with lots of broth and jello. This combination for me seems to be working. I miss eating whatever I want, but feeling better and being able to go to work and do things with my family definitely is what matters most to me. I am always looking for that little miracle thing that will get me off of my lifelong meds.

I recommend you do a search here for helminthic therapy or worm therapy. This has been discussed and we have had memebers have success with it - we've had others try it wothout success. It seems like what works for one person doesn't work for all in this illness so you have to try for yourself and it's very expensive. I couldn't afford helminthic therapy. I recall reading about a trial in the US recently. You could try looking on clinicaltrials.gov.