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FODMAP diet removed my UC symptoms and starting FT tomorrow for 10 days to hopefully irradicate UC

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Ulcerative Colitis
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Posted 2/12/2012 4:13 AM (GMT 0)
Hello again...

2007 3cm proctitis
2009 Flare - 3cm proctitis - remission by prednisone for 9 weeks
2010 Flare - 35cm UC diagnosis - prednisone - failed, 5 asa - failed........FODMAP diet -success!!


I posted about a month ago I start my FT tomorrow at Borody's clinic. Setup for colonoscopy spray day 1, and enema FT day 2-10. But here's the thing.....I've been symptom free for about 2 months now due to two factors.

1) FODMAP diet, I highly recommend trying this restrictive yet amazing eating plan. It's basically gluten, lactose, fructose free eating. I can eat a balaned diet easily on this and it's way less restrictive than SCD. For me, PERSONALLY, within 48 hrs of eating this way I had gone from tons of cramping, blood, frequency, to one stool a day, solid, and brown. I have not deviated from this diet (and interestingly lost a few kgs) in 2 months. The one day I ate something high in FODMAPs, I was suffering with nausea and a loose stool the next day. Enough for me to never cheat again..gluten free bread is all I"ll ever eat now.

2) And this is NOT recommended for anyone to try without discussing with your doctor. I hadn't smoked for 3 yrs, and within one day of smoking again, I stopped bleeding. Haven't see a drop of blood or mucus in 2 months. Did diet first, smoking a week later...........it appears the diet got rid of all symptoms except bleeding/mucus which went with the nicotine.

Now my Gastro's say i should try the patch, or nicotine gum, and that's probably good, I chose to smoke. I also have decided to stop smoking tomorrow when I go in for my first FT, to give my colon every chance to be blood free before the implants. .I will of course do anything recommended by my doctors when I see them tomorrow.

Please research the FODMAP diet, it's amazing NOT having to plan my outings around where the nearest toilet is located. I can go out, travel, spend the night at other people's homes and not worry about living in their loo.

All the best and I"ll post daily if I can as to what is happening with the FT.

FYI I'm on nothing now, did 10 days of CIPRO antibiotics and tomorrow colonoscopy FT> Prior to that took calcium and vit b only along with a 45bill probiotic.

All the best.
Posted 2/12/2012 9:18 PM (GMT 0)
It will be interesting to see how much inflammation is found when you're scoped. I'm glad you're feeling better.
Posted 2/13/2012 12:05 AM (GMT 0)
keep us posted.Good luck to you!
Posted 7/9/2012 11:03 AM (GMT 0)
OK...update...in Feb (while still smoking) I got my last colonoscopy Clinical remission was achieved from my combo of diet and cigarettes. I chose to do the 10 FTs anyway. They suggested it would take 3-4 months to notice any difference if I quit smoking, and that if I did have another flare it would be less severe. So I was keen to quit but too scared to risk the loss of remission as I was in a stressful period of moving, working interstate, and trying to find a new home, move in, find a job etc. Long story short I quit smoking in April and sadly in May.......flare. As they suggested, the flare was no where near as bad as previous ones.

The comments were to come back and have more infusions but sadly I cannot afford the time or the travel to do it at their clinic and without a donor nearby, more FT are not an option at this time. I've read and heard wonderful results if you can keep it up.

So for now, I'm looking at the option of 6MP, which I am so scared to try. I'm in a new job that I cannot work if I get the side effects (like I have with eveyr other drug I've tried thus far). So I'm researching to find out other's experiences.

For now...I'm trying some herbal concotions and tried the nicotine patch. The nicotine patch seemed to immediately help wtih the cramping and urgency. Sadly it's not doing the trick with regards to reducing blood quantity and mucus. I'm only up to 3x a day using the toilet, but the family and support network suggested I try cigarettes again for a short term fix for remission while I investigate my long term options of montly trips to Sydney for FT, or taking the plunge with 6mp. My new GI admits they are not sure if it's the CO or Nicotine that has helped ppl go into remission and he does not recommend smoking, he is heavily pushing the 6mp route.

So no clue what to do for now.........my sister was just diagnosed with an entire colon of disease but no blood or mucus, diarrhea only. She's too had extreme side effects from 5ASA, and is now doing double doses of VSL #3 with great success. I'm considering that as an option too but the cost is $300/month for that dose, happy to pay it if it works.

Sorry the news isn't better, but from all the FT posts I've read those who can do it long term and have a trustworthy donor seem to be reaping the rewards without drugs.

All the best to everyone.
Posted 7/10/2012 12:53 AM (GMT 0)
makiaa

i was wondering if your on the fodmap diet still
Posted 7/10/2012 6:55 AM (GMT 0)
Hmm interesting....i have never heard of someone getting into remission just by going on the low FODMAPS diet. I mean it is proven to reduce symptoms...but remission?
Have you been biopsied for Celiac Disease?
Posted 7/10/2012 9:48 AM (GMT 0)
Linahawk

I was on FODMAP strictly for 4 months it reduced all my symptoms, frequency, mucus everything but the blood. Smoking got rid of the blood. I then started to cheat and try things here and there and was fine. Then I went overboard and suffered....so am back strictly on FODMAP. Hard to do longterm but i'm committed.

Conquer UC. I got into remission by using FODMAP and cigarettes. For me, the diet stopped gas, cramps, reduced frequency, got formed stool, and reduced mucus. The cigarettes are what finally put me into full remission by stopping the bleeding.

WHen I cheat on FODMAP, I get gas, bloating, diarrhea, nausea etc. so am motivated to be strict most of the time. I've gotten very creative about cooking and make my own sauces and salad dressings etc. I can't tolerate onions or garlic at all. Sadly I'm also allergic to eggs so normal FODMAPers can eat those. I'm more limited with all my food intolerances. My last Gastro thought I had IBS AND IBD (Colitis).

So it's still a frustrating journey. But I've not eaten an apple, nectarine, cherry, watermelon, apple, broccoli, avocado, and several other loves for well over 7 months. SIGH............
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