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Ulcerative Colitis
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Posted 8/2/2012 5:00 PM (GMT 0)
Hi I'm Linda. I haven't been diagnosed yet so I hope its ok to b posting. Here's my story, I will try to b brief. For the past 7 or 8 years I've been getting what I always thought to b a "stomach virus" like 8x a year that lasted for weeks on end - funny thing was no one else would catch it! I would end up in thr ER at least 2x a year for dehydration. One year I also had unexplained pancreatitis.

Now it has hit me like a lead brick I probably have an IBD and I'm guessing it to b UC based on the research I've been doing. My colonoscopy/endoscopy is Aug 21. I had one previously for bleeding as well as for the pancreatitis but I don't believe the crapy GI DR I used to have took biopsies which my new dr will b taking.

I am so very sic at the moment - cannot leave the house in a week b/c going potty all the time and sometimes not being able to control it, not to mention the nausea and vomiting also. Dr only put me on bentyl for my symptoms at this time...which doesn't seem to b helping any.

Thx for listening - I kno you can understand,
Xoxo,
Linda.
Posted 8/2/2012 7:34 PM (GMT 0)
Sorry to read that you've been suffering & probably did not get a correct diagnosis. Colonoscopy with appropriate biopsies + relevant blood tests (such as ESR) should enable a gastroenterologist to determine your problem. Usually they will order an O & P stool test 1st to rule out any invasive organisms that can infect the intestines. Good luck with your upcoming scope & let us know how you're doing. / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)
Posted 8/3/2012 9:38 PM (GMT 0)
Hi I am still so sick going 15x a day liquid some w/ blood...as soon as I swallow a bit of food I'm running to the restoom...I'm loosing weight I don't really have to loose...my GI only prescribed bentyl 10 mg 4x a day but I have taken up tp 20mg at a time...I'm also in terrible pain...my scopes aren't until the 21 and I can't go on living like this...I've been to ER once for hydration last week...its been 10 days...any suggestion are greatly appreciated!
Xoxo,
Linda
Posted 8/3/2012 9:44 PM (GMT 0)
Could you maybe go in for a flexible sigmoidoscopy in the meantime? You'll have the results immediately so your dr can at least prescribe something right away.
Posted 8/3/2012 10:00 PM (GMT 0)
Thanks for your quick reply - I will call GI on Mon morning if no improvement!
Posted 8/3/2012 11:57 PM (GMT 0)
linda, welcome to the forum! i know it sucks that you might have IBD but maybe you'll get lucky and the biopsy will show something that can be treated more easily. i'll keep my fingers crossed for you.

i have also tried bentyl and consider it a placebo. i was taking the same dosage as you and saw no relief. i would definitely call your doctor on monday and ask for a prescription for a nausea med like zofran. also, gas X extra strength can help with the cramping. i've been taking 2-3 a day since my colonoscopy because i'm in excruciating pain. today was the first day i ate since sunday. i've just been miserable, so i know what you're feeling.
Posted 8/4/2012 2:48 AM (GMT 0)
If I can only get one thing down that one thing is unflavored pedialyte ( baby gatarade ) it has saved me from a many ER visits for dehydration. Chicken and beef broths -made yourself. So HARD when feeling so crappy. I hope u get some releif soon !!!
Posted 8/7/2012 7:17 PM (GMT 0)
Well my blood work came back from my GI and they said it was negative - then why are all my symptoms still present - nausea, occasional vomiting, lots of diareaha, mucous, some blood, and a TON of pain, especially after I eat - and this has been occuring approx 8x a year for the past 7 years for weeks at a time??? Any insights??? Scopes still scheduled for the 21st...xoxo, Linda
Posted 8/7/2012 7:22 PM (GMT 0)
What were you tested for, and what was the negative definitive of?

Where exactly is the pain you get after eating?

q
Posted 8/7/2012 7:26 PM (GMT 0)
Not sure what I was tested for...???

Pain when its severe is lower abdomen all over - feels like a wrench in my gut - when not as severe its contained to my left side.
Posted 8/7/2012 7:28 PM (GMT 0)
My suggestion is when you go to the GI, get copies of all your test results for your records. It's better to know what's going on.

Have you had stool samples testing done as well?

q
Posted 8/7/2012 7:32 PM (GMT 0)
Just dropped that off today.
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