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Posted 9/13/2012 3:44 PM (GMT 0)
Feeling crampy about 6 hrs after cortenema and also into this morning. Thinking gas possibly??? Or extra fluid from enema ?
I've seen people talk about getting air out , how do u do that ? Or any tips or advice as to how and what !?????
Posted 9/13/2012 4:10 PM (GMT 0)
It could be gas. Normally, I just squeeze the bottle until some liquid comes to the top, than insert.
Posted 9/13/2012 4:18 PM (GMT 0)
It's normal with retaining that fluid. While you might be able to squeeze some of the air out, you'll have those symptoms.
As you heal, that will improve. 

Six hours retention is very good!!!
q

Posted 9/13/2012 4:20 PM (GMT 0)
I am having the same issue with these cortenemas! I've been super, super bloated and gassy while on them. I've been able to retain all night most nights but it's not very comfortable due to the extreme bloat! I think they're making me retain water. I have gained 10 lbs in a week and a half. My doctor said sometimes they can make you retain water due to the steroid. Are they helping you? Are you on any oral meds as well?
Posted 9/13/2012 4:27 PM (GMT 0)
10 pounds in a week and a half is a lot Sara...call the doc and see if you can get on a lower dosage enema.

Can you not use mesalamine?

q
Posted 9/13/2012 4:29 PM (GMT 0)
Rowasa didn't pull me out of my current flare. I know it's a lot of weight! lol. I've never weighed this much in my life! I'm still skinny, but for me it's a lot. I don't think there's a lower dosage. I'm only on them for another 2.5 weeks...then he said go back to Rowasa.
Posted 9/13/2012 4:31 PM (GMT 0)
Maybe alternate one night Rowasa, the other the Cortenema.
q
Posted 9/13/2012 4:59 PM (GMT 0)
Sara, lastnight was my 1st night. ... Oh man AM I gassy! ouch !

Thanks Red and Q , I've been going to the bathroom more but I think its just my body is having a hard time with the Gas. I've always been sensitive with gas. It gets me hurtin even not in a flare !!

I'll look up some nattural gas releifing tea or something. Along with my phazyme.
Posted 9/13/2012 5:40 PM (GMT 0)
Let me know if you find any tea that works! I'm glad we're not in this alone. lol!
Posted 9/13/2012 6:44 PM (GMT 0)
Sara , I know me too !
I'll let u know. Also u could try doing half of the enema to lessen sideeffx. That's what I do. This was my first night last night. But a few weeks ago I tried whole cortenemas for 4 days and it effected me symptom wise.
So this time I'm trying less. Although I didn't have the terrible pains like gas and bloating as I did this time. So who the heck knows !!....

Looking into teas beside chamomile , ginger and mint
Posted 9/13/2012 7:27 PM (GMT 0)
I sometimes drink Celestial Seasonings Tummy Mint Wellness tea when my stomach is bothering me due to gas. It seems to help. And I like it anyway, so there's no harm even if it's just placebo effect.
Posted 9/13/2012 7:32 PM (GMT 0)
I Agree ! Pretty much hot water of any sorts soothes me. , stick a good tea in and bam ! Good to go!
Posted 9/13/2012 8:10 PM (GMT 0)
Lemonbalm is a great one for me.
Fennel can also help with gas, but mainly after meals. Not sure it would help enema induced gas...
Posted 9/13/2012 9:20 PM (GMT 0)
Yum lemonbalm , ahh fennel that's the one I was thinking of. I still have quite about gas !geezloueez
Posted 9/13/2012 10:30 PM (GMT 0)
Sara14- I had the exact reaction a few weeks ago, water retention, and posted about it then. Gained 10 lbs in one week. Called the dr on a Fri but didn't hear back until Monday. In desperation, I bought an herbal diuretic that weekend and lost 5 lbs the first night. It was the best $2 I ever spent. I was so relieved, it was scary and horribly uncomfortable. I realized I was also using a HC suppository for hems, so think there was a combined effect.

By the time I went for my next GI appt, I told him I'd been taking the diuretic and he said that was fine. I am now alternating with Rowasa. He did say he's concerned about my sensitivity to steroids and doesnt think I'd tolerate pred, so should I ever need to get more aggressive in my Rx, he'll likely skip pred and go for imuran. Hoping I can maintain on my current regimen.
Posted 9/14/2012 8:04 AM (GMT 0)
There is in my book only two gas terminator teas!
Peppermint tea and fennel tea.

As for the enemas most of time I really feel that extra liquid. And feel sometimes te next morning like im on the edge of having many bms but its not happenings after ive done 1 or 2.
I can't squeeze the air out as my enema as soon as squeezed the liquid comes out. But I make sure I lay on my left side a few minutes before inserting the enemas to give max chances to my farts to go out! There is nothing more scary than feeling gas coming out just after you inserted the liquid ahah

Some mornings I have "wet" cramps but it's normal and at the end of the day a little disconfort once in a while will make my life easier on a bigger scale. Id take that wet cramp anytime of gas and mucous after my evening meal .
Posted 9/14/2012 8:32 AM (GMT 0)
Thanks tournevice !! Good share.!peppermint in my cup !
Ps I didn't think of the already in there gas before u evn cram liquid up in on top of It. I just want to see some improvment ...I wll cont. Cortenema ( I think tonight seems less impacted by it)
Kinda just "dryheave" and maybe a few drops. But not so painful with gas. Hopefully stays that way :)
Posted 9/14/2012 12:04 PM (GMT 0)

tournevice said...
There is nothing more scary than feeling gas coming out just after you inserted the liquid ahah

LOL true that!

kerplunk - Thanks for sharing! How long did you stay on the hydrocort enemas? My doctor told me to stay on for 1 month, then go back to Rowasa. I don't know if I can handle this crazy bloat and uncomfortable gas for 2 more weeks! It is really uncomfortable. It's not just when I first wake up...it actually gets worse throughout the day and is worst by evening.
Posted 9/15/2012 12:19 AM (GMT 0)
Sara, How r u ? Any less water retention? Are still a gas tank ...I am ! although maybe not as painful as 1st day.
Posted 9/15/2012 11:10 AM (GMT 0)
Hey SS! I was a little less gassy/bloated yesterday - yay! I can still feel it though but tried to eat a little lighter yesterday as well. I only have two more weeks on these. Other than the crazy bloat, I'm doing well. How bout you? My symptoms weren't too terrible to begin with. I'm scared the symptoms will come back when I stop taking these though.
Posted 9/15/2012 6:09 PM (GMT 0)
Hi Sara :)
Everyday seems a bit less gassy/bloated for me too -thankfully!! I can still feel it also and I seem too be a tad crampier in the first AM. I am wanting to see better/faster results ,usually not my case with any treatment. But I got bad before I was even perscribed the rectal med. 8x minimum a day with D' and B'. Same now. Although maybe less B and less liquid amount of D??? And I did hold my D the other day for more then 5seconds! Lol ! Yeah its hard to say what will happen in the end if the inflammation won'tc calm down ??! I am very low pred and these enemas. Started recently LDN and Can't take mesalamines so ....I need a break and remssion

TTYL
Posted 9/17/2012 3:09 PM (GMT 0)
Hi buddy. :) My bloat is gone - yay! Sorry you aren't seeing quick results. I'm glad you are starting to feel a little bit better though. Hope today is even better.
Posted 9/17/2012 4:15 PM (GMT 0)
sara!! hi , i was hoping to hear from you!

"nothing" seems to have fast results but i am keeping at it amd holding faith ! definitly on the bloat and gassy side better , still have to get up in night for just gas . how many days now on cortenemas ? thanks for the wishes sara !

glad your feeling better !

WBS

Posted 9/18/2012 3:00 PM (GMT 0)
Hi friend! Good to hear from you too! I've now been on the cortenemas a little over 2 weeks. How about you? Sorry you are still having to wake up in the night. That symptom has luckily gone away for me. Hope today is even better for you!
Posted 9/18/2012 3:57 PM (GMT 0)
Sara good morning happy happy to hear that. I'm still struggling but a new day is just around the corner .i think I'm at a week on themi am ready for some
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