What are your mornings like?

pb4 said...
Right on the mark therearemiracles....it is so fricken sad anyone has to live like this.

Some of you could use remicade and it could do wonders. But I don't see it in your list of meds. So, I assume you didn't try it.

I guess, that's your choice.

pb4 said...
Don't make assumptions Somedude...I was told by more than one GI that I wasn't a candidate for Remi or Humira...I have complications with my IBD. And the truth of the matter is, neither of those meds are miracle cures for all that have tried/are on them...and there's plenty of scary side effects to them as well. Some of us are either allergic or non-responsive to traditional meds as well.

Yeah, I know...but what the f..., it's better than dealing with crapty situations everyday. My morning aren't that much different than any of the stuff written in this thread.

For some people it's miracle cures. Not for me though....oh well.

Some people just don't want to do biologics, but are willing to suffer day in and day out with other medicine that doesn't work. That to me doesn't make any sense.

And why wouldn't I make an assumption. I'll make it all day long. Basically, an assumption is a variation of a question....

I.e. I assume you don't want to try remicade.

You say: Correct...then provide explanation if you want.

pb4, I'm not at all judging, but I am very curious as to why you aren't a candidate for Remicade or Humira. This is honestly simple curiosity and if you'd rather not say, that's perfectly fine with me.

yeah, well Somedude won't use rectal meds...go figure.
q

Yeah, it shocked me too, that's why I approached 2 different GI's about it...now that it's being used more regularly by IBDers and I've read by many the cons to either of those biologics, it has since made me wonder if I'd have fallen into the negative catagory like some others have in regards to using either and have worse issues and not being any better off IBD wise.

Plus I don't know if the kinds of issues I had with the traditional oral RX used to treat IBD (immuran and asacol for 2 examples) might have been a factor as to why both GI's didn't feel biologics would be a good thing for me anyway...I guess I'm just meant to suffer to some degree...it is what it is I guess...I wouldn't be surprised if they found a "cure" and it wouldn't end up curing me based on the kind of luck I've had so far regarding IBD lol!

You're lucky you found meds that work and that you were able to find remission, even with the issues of fistulas you had since those alone can be very difficult to clear up.

Yeah, I know I'm crazy lucky. It's not fair that they don't work for everyone like the work for me. And yeah, with your history of issues with meds, I understand your and the GIs hesitation about the biologics.

As for the fistula, it's still there. The old tract did close, but now I now have a very, very short tract through the incision site (I had the LIFT procedure), because the internal opening was so big that it didn't close. It's really not a big deal, because even though poo passes through it during a BM, it doesn't get irritated/inflammed/leak goo during the day. I might get it fixed sometime after this baby arrives -- it just depends on how much of a risk of incontinence comes with whatever procedure my CR surgeon would try next. Because even though it doesn't bother me now, I imagine it would if I were flaring.

Also, my GI and CR surgeon both think my fistula was of the "bad luck" variety, and not of the "associated with IBD" variety, given that I was in complete remission when it formed and had an abscess first (and up to 50% of abscesses lead to fistulas in "healthy" people). It's my understanding that IBD fistulas form due to the inflammation/ulceration. And my CR surgeon said there was no sense in trying Remi to heal my fistula, because it wasn't the "right kind."

That sucks fg but at least it seems as though aside from that nasty fistula everything else is going well IBD wise, that's at least somewhat of a silver lining. I think my GI's were more hesitant than I was (until I started reading some of the horror stories some people were having with remi/humira) then I thought maybe it was a blessing in disguise....I think a few weeks ago someone on the CD forum posted something about cancer DX due to Remicade and that's probably the worst "side effect" one could get from any med.

Q, I first heard about probiotics from a friend of a friend that was using PR on their cat due to their cat having IBS and the cat's owner having some IBS issues herself...funny thing, after my mom passed away and one of my siblings took in one of her many cats, she took the cat to the vet and it was DX with IBS, they gave the cat a shot and within a week no more IBS to this day. As far as the rectal meds go (lol) I understand you "obsession" in regards to them (despite the broken record factor lol) if it works for you, then stick with it and as you well know, you can lead a horse to water (you know the rest)...but hey, nothing worse than having to explain yourself to "somedude" when he apparently is the pot calling the kettle black LOL! My stance on rectal meds for me, use them when needed so the affectiveness doesn't wear off like it did with pred (I have to be careful with my history with meds).

It sucks when you lose a GI that way (been there)...don't worry, I'm sure you'll have him trained in no time LOL!

Far as the cat goes, don't know what they gave him, I asked my nitwit sister but she had no clue, I was like, isn't it written on the bill, but she couldn't find the bill (always a scatterbrain and she's the oldest sister) I'm actually surprised she listend to my advice about taking the cat to the vet in the first place. When she told me is was a one shot deal and the cat woulnd't have to get anymore treatment for it I thought, well isn't that nice *much as I love cats* why can't it be that simple for us with IBS as well.

I'm joining in with you picking on "dude" I actually see some valid opinions come from his direction...plus I'm too old and tired to tango with people anymore (and now that I no longer can get pred-rage, I'm much calmer...thanks to that and to exercise of course)....safe to say I'm much less *****y and I try and steer clear of any online interactions when I'm PMSing LOL!

LOL, yeah, no fun in that either (growing up)...you have a good one too!

" misery club". Somedude

You can be the president! Lol

some of you are always hyping rectal meds.
First of all, not everyone likes shoving things up their bum, second of all, rectal meds are very limited in their effectiveness depending on where your UC in located.
In my experience, rectal meds have had little or no effect and they are very expensive.
It seems the same folks who endlessly harp on rectal meds are dismissive about diet and alternative treatments for UC, when rectal meds are basically a fringe treatment as well.
Let's get real folks...