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Unable to retain & problems with Salofalk enema

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Ulcerative Colitis
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Posted 11/20/2012 7:54 PM (GMT 0)
Hi everyone......new to this forum so bear with me!

Diagnosed UC in 2002, mainly ok but since a right hip replacement last year it has become really unstable. Flares - and extended ones at that - are regular now. Consultant tried perdnisolone - worked the first few times but then I fouind that prolonged use of it had made me insulin resistant...Type 2 diabetic now as well. Max doses (4800mg) of asacol hqaven't eased things.....so I've noe got the salofalk enemas - with the warning that if they do't work, surgery might be the next thing. Has anyone else been told that?

Like many on here I think I am going to have problems with retention.....the advice has been really helpful!
Posted 11/20/2012 8:36 PM (GMT 0)
Sorry to hear you have been flaring since your op. I was advised to take my Pentasa suppository after 'emptying my bowels' in the morning or after lunch and then take the enema right before bed- that way it can stay in your system when you are sleeping as long as possible. Make sure to wee before doing the enema and don't read in bed or you might need to 'go' again and once you get up it's hard not to want to expell the enema. Lie on your left side at first when you lie in bed to let gravity help the situation. The more inflamed you are the gasier you will be but try to hold on and keep it in. It will get easily every day. After a month or so I have no gas and sleep right through until morning but I saw real effect after 2 weeks. Hang in there. Also you might consider trying the SCD especially if surgery is being mentioned. Wishing you success!!
Posted 11/20/2012 9:34 PM (GMT 0)
As far as retention goes, using a half an enema was the most helpful for me.
Posted 11/20/2012 10:53 PM (GMT 0)
Meant to add that the foam enemas (asacol 1g) are easier to retain IMHO; not sure if they are available where you are. And avoid gassy veggies etc.
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