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Ulcerative Colitis
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Posted 12/15/2012 5:25 PM (GMT 0)
My daughter is in the trying to get bleeding and her nausea under control.  I am still hopeful that she will be home soon. Today is grocery shopping day and I don't know where to start. I've read about so many different diets and the benifits and risks of eachl.  I thought the IBS and the spinanch and sun flower butter sound promising but........

Until this flare up the diet plan was really no plan except no fried, spicy or high fat content food and to steer away from food with too much fiber.  Obviously that was not enough. 

What does the grocery list of a UC person who is just coming out of a big flare up look like?

 

Posted 12/15/2012 6:04 PM (GMT 0)
are the drugs controlling some of her symptoms yet? i think it would depend on whether she is still feeling horrible or not.

i eat paleo/SCD and find that it decreases some of my symptoms. i personally have not tried the spinach/sunflower seed diet so i can't give any advice on that.
Posted 12/15/2012 6:10 PM (GMT 0)
Diet may or may not be the answer but if it is, you'll have to experiment to figure out what helps and what hurts. I know that's not the answer you're looking for, but this affects everyone differently.
Posted 12/15/2012 6:37 PM (GMT 0)
Try for plain, simple foods. This is what I primarily ate after my last bad flare, and it felt fine for the most part:

- White bread
- Lean, white meats (turkey, chicken)
- Fish (tuna, salmon)
- White Rice
- Green Vegetables

tell her to drink more water than she wants. staying hydrated is so helpful, even if it doesn't seem to be. she could also drink 100% fruit/vegetable juices if she can handle them.
Posted 12/15/2012 7:00 PM (GMT 0)
I would go with B.R.A.T

bananas

rice

Applesauce

Toast

I would also have chicken breast for protien

chicken soup is good because it has noodles and white rice and pasta is easy to digest.

Gingerale or at least something with electrolites

I cook my rice in the chicken broth and add cooked veggies, easier to digest than raw

Stay way from fast food, spicey food and complicated dishes.

Posted 12/15/2012 7:43 PM (GMT 0)
^^^^^^^^^^^^^

this would put me back on meds quicker that shiiitt !
Posted 12/15/2012 8:04 PM (GMT 0)
Worked for me:
White rice
Turmeric
Pomegranate juice
Scrambled eggs for breakfast
Fish
Posted 12/15/2012 8:08 PM (GMT 0)
Oh and peppermint tea helped my nausea, I still drink it because I like it and no calories
Posted 12/15/2012 9:38 PM (GMT 0)
LOL...I bet you'r really confused about diet now?

what medications is she on at this point?

I do hope she's on rectal meds.

q
Posted 12/15/2012 10:49 PM (GMT 0)
Dietwise you have to discover for yourself what works best for you. The best way to start is to figure out the foods you know cause problems and eliminate those. After that it's kind of trial and error. There is no one diet that is guaranteed to work. What works for one person could make another person worse. Eliminating lactose is usually the first step but my doctor had me do it and after two months of no lactose I discovered it had no effect on me. Lactose does not bother me. You have to be careful with fruits, raw veggies and nuts, basically anything that is difficult for a normal average person to digest. I also discovered that since most of us have problems with gas many fiber related stuff can make us worse.
Posted 12/15/2012 10:54 PM (GMT 0)
Stay away from citrus and dairy...
Posted 12/15/2012 11:47 PM (GMT 0)
A food journal has been helping me.
Posted 12/16/2012 2:40 AM (GMT 0)
I will definately get her a food journal. I guess we're just going to start slow and learn as we go.

Thanks for the advice.
Posted 12/16/2012 3:35 AM (GMT 0)
Just start with at least known easily digestible foods and then eliminate / add as possible

Normailly I don't eat tomato sauce but tonight I just had to have speghetti! I made a huge pot, took a pepcid, will take my meds, both ends, and see how I feel tomorrow. I might not have any issues, and then again, it might put me back in small flare.

You just gotta see what works and what works today, might not work tomorrow!

Good luck!
Posted 12/16/2012 11:25 PM (GMT 0)
Yep, food journal try one.

However THE diet for compromised intestines is the Specific Carbohydrate Diet.

This is the book on Amazon, and enjoy the reviews :)

http://www.amazon.com/Breaking-Vicious-Cycle-Intestinal-Through/dp/0969276818
Posted 12/16/2012 11:36 PM (GMT 0)
The hospital is feeding her whatever is soft. She hasn't tolerated any of it. Everything comes up. Not sure if its the food or the condition period. Yesterday I bought her chicken broth. Today I brought her chicken and rice soup but told her not to eat the chicken. She's eaten a little and was able to keep it down. Again, I don't know if it's the food or the meds finally kicking in.
Posted 12/16/2012 11:44 PM (GMT 0)
Chicken broth with well cooked vegetables (carrots and sweet potatoes) works for me.

I would suggest eliminating lactose and gluten, high fiber and anything else that doesn't agree with her.

Best of luck :-)
Posted 12/16/2012 11:45 PM (GMT 0)
You'll get two perspectives on this site about diets to follow:
(1) bland and easy to digest food (e.g. BRAT etc)
(2) some sort of low-carb diet such as specific carbohydrate diet, paleo, fodmaps, etc...

It will take time for you to learn about these approaches and decide how best to proceed. My personal view is that she needs to get a little bit stronger and less sick before you can really learn much from systematic trials or exclusion diets.

So for now, it sounds like you are doing exactly the right thing. Choose foods that she thinks she can eat. Chicken soup with carrots and perhaps rice it a great choice. If you want to cut out anything right-from-the-start then I would pick lactose-rich dairy (i.e. milk and soft cheeses) and wheat/gluten.
Posted 12/17/2012 12:05 AM (GMT 0)
My doctor told me there are some foods that have awful effects on the bowel.

I agree on dairy... it's better to avoid it, at least until your daughter feel way better.

He told me to stay away from fruit as well.

I want to ask you a thing: have your daughter tried to go completely organic? I did it and I feel ver very good without taking any kind of pills!
Posted 12/17/2012 2:15 AM (GMT 0)
organic is good -

so nothing else got you healed freddie ?

Post Edited (soystud) : 12/16/2012 7:22:29 PM (GMT-7)

Posted 12/17/2012 2:43 AM (GMT 0)
Until now we hadn't really focused on diet except no fried foods, no foods high in fat and no foods with a lot of fiber. This is her first big flair up.

We are willing to do what we need to do as far as diet. It seems that every one is different. I think I like the idea of the food diary, adding foods slowly and seeing what she can handle.
Posted 12/17/2012 2:51 AM (GMT 0)
Did you ever get results from the C-Diff tests?
Posted 12/17/2012 9:03 AM (GMT 0)
The first thing my doctor said me was:

"If you think you can recover from ulcerative colitis without adjusting your diet and make some sacrifices, you can go home now without even paying me".

And I can say he was completely right. It's stupid to think that diet is not the main problem while you talk about bowel problems.

There are a combination of things he told me to do. The main one is probably to eat proteins only once a day from organic food, because meat, chicken and other source of animal proteins are filled with antibiotics, steroids and crap like that.

Then he told me to stop using cortisone. Obviously, he told me to stop gradually because if you stop taking it in one go, it could be dangerous. He told me "cortisone can do miracles, but in autoimmune diseases it causes more troubles than other".
Posted 12/17/2012 2:52 PM (GMT 0)
After my son was diagnosed, I found this book to be helpful:

What To Eat With IBD by Tracie Dalessandro

She was diagnosed with UC at 19 and later became a Dietician with a masters degree in nutrition.

She talks about food that heals and food that hurts and she has recipes in the book that aren't difficult to make.
Posted 12/17/2012 3:05 PM (GMT 0)

freddie1406 said...
The first thing my doctor said me was:

"If you think you can recover from ulcerative colitis without adjusting your diet and make some sacrifices, you can go home now without even paying me".

And I can say he was completely right. It's stupid to think that diet is not the main problem while you talk about bowel problems.

There are a combination of things he told me to do. The main one is probably to eat proteins only once a day from organic food, because meat, chicken and other source of animal proteins are filled with antibiotics, steroids and crap like that.

Then he told me to stop using cortisone. Obviously, he told me to stop gradually because if you stop taking it in one go, it could be dangerous. He told me "cortisone can do miracles, but in autoimmune diseases it causes more troubles than other".


if you doctor thought food was the MAIN problem, it is stupid to think you doctor is unbiased and the best source of info.
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