Remi, Constipation and cramps

Had my first Remi dose on Tuesday. Did not use the restroom until Saturday then all hell broke loose. Today the same but with massive cramps. Is this my body adjusting to the Remi or just life?

All I can do is lie on the sofa with a heating pad. I am taking some cramping meds but no real luck. Trammadol is not touching it.

this does not sound normal, mkm. i'm with sherry. you should call you doctor. you have another remi dose really soon don't you? i can't remember the intervals for the first few doses.

i noticed bentyl doesn't do a thing for my cramps so i just suffer through it with a heating pad and hot baths.

I mean I had 6 bms in a day both days all associated with heavy cramps. I am eating very little, and may have some Rowasa enemas in the closet.

Do you take fiber supplements? If not, you might want to give them a try to help with constipation. Also lots of water. The cramping might be due to the constipation. I get bad cramping to when the C hits.

I have done figer, that did not work at all. Basically I have stopped eating except in tinay amounts. The cramping is just too severe to be able to function at any level.

Next Remi is in 2 weeks.

This is the only place in the wrld I can talk about this. Family is burnt out, no great friends, and docs just want to move on. I have been fighting this for over 25 years. I have tried every known drug and holistic treatment that y'all have written about.

I either hurt 24 7 or am in the bathroom. I am fortunate that I work out of my house but in a highly stressful position. I am going to have to travel a lot next year which is always interesting.

I can take pain meds liberally as the dr will prescribe them for me I do this an xanax to get through the day. It is amazing that I can function at a very high level with that stuff in my body but I do. I am the top rep in my company. My bosses know about the condition but only asmuch as I need to tell them. I was in the hospital 2x last yr, once due to blood loss, I was two pints down, and the other as a rebound and getting off meds too soon.

I am sorry to paoint such a bleak picture but I am sitting on the can for the 4th time today having spent the rest of the day doubled over with a heating pad.

I am not looking for answers. I am just glad to know in a sick sort of way that I am not alone nor am I crazy. Other people have this and keep moving. I am just frustrated and so tired of being sick

I have and tbh can't stand the thought. The bag is unacceptable to me. I would rather not live than have that thing hanging on my side.

I have read about the j pouch but it seems that there will still be pain and at least 5 or 6 runs to the restroom that does not seem any better than what I am living with now. My single hope this the Remi works. I don't know who long it takes to kick in. Second loading does is next week.

I ate 3 bites of cornbread this morning and immediately cramped. Did not take 5 minutes for it to set in. Took some Trammadol and Xanax to get through the Christmas opening. Now just relaxing on the sofa with a heating pad.

I know this sounds whiney but I just don't have the energy to do anything. Tomorrow is a work day so I have to gear back up to do what I do. I feel like i lost or was cheated out of 4 fun days.

I am going to shrink as soon as i can get an appt. He can't fix it but maybe can aim me in a direction to find peace.

Right now my life is simply wasting away in a blur of pain, meds, and bathroom trips.