steroid induced remission cases... lets hear em

my dad. he was on prednisone for 6 months along with sulfa drugs and he's been in remission for 24 years. i know his worst symptom was bleeding and he gets it sometimes if he eats something that bothers him, but he manages without any meds.

24 years sounds like cheating! Ive probably been in remnission for about 8 months max from just prednisone. Not anymore though.

Twice I've taken pred and twice it's gotten me into remission. Pred courses were probably around 8 weeks, the first one (my worst and initial flare) may have been longer.
Both times I was also on Asacol.
First remission was less than a year I think and was a pretty unstable remission.
Second was closer to 3 years and included diet changes.

The flare after that I used nicotine to get in remission on top of the asacol and was glad I didn't have to do pred again. Side effects were worse the second time.

Still using the nicotine. Added mesalamine enema after a recent minor flare. Enemas have helped significantly with urgency.

freddyj said...
What does not anymore mean?

Check my signature. Basically pred used to get me out flares no probłem. Now it doesnt(. Had to go for Remi.

Have been on pred on/off since June 2011. Every time I come off it I flare within two to three weeks! Longest I've been off pred is 9 weeks. But for 6 of those 9 weeks I was flaring. I start on 40mg and reduce by 5mg a week! Will be finished this dose in 2 weeks and already afraid! Just hoping for a miracle and that the Humira kicks in by then!

I used pred to get into remission but unfortunately I couldn't taper off without having symptoms reappear. Eventually, I had to accept that I would have to start something stronger - I went for 6mp and now I am doing well and I've been in remission for well over a year. I did make the mistake of waiting way too long to decide to start 6mp and because of this, I was on prednisone much longer than I would have liked.