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Ulcerative Colitis
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Posted 1/19/2013 7:30 PM (GMT 0)
Hi,

Well I am still in a flare of proctitis and have just sterted the dreaded Pred 30mg for two weeks then tapering by 5mg every five days. My recent c/scope showed only mild inflammation. My gi has also changed me from Mezavant 3400mg to Pentasa 4000mg. Don't quite know why he has done this but heyho.

What are other peoples experiences of Pentasa?

Also how soon would I see any improvement when taking the pred.
Posted 1/19/2013 7:45 PM (GMT 0)
Just want to add that with a flare of proctitis you would do well to do either a Rowasa enema or hydrocortisone enema- they really help and you can do it morning and night until things are under control and then go to nightly.

I am not sure why your Dr did not suggest this but please check into it turn

Posted 1/19/2013 7:58 PM (GMT 0)
ditto...
Posted 1/19/2013 8:22 PM (GMT 0)
Have been using asacol suppossitories then pred foam since beginning of November with no avail. They seemed only to suppres the synptoms but not get rid. Plus I started to get evere lower abdominal pain whilst taking them. As soon as I stopped them the blood returned after two days.
Posted 1/20/2013 5:29 PM (GMT 0)
I had quite a bit of nausea when I was taking Pentasa when I first flared up, it basically did nothing for me at the time. I had to go on strongly drugs, aka imuran and remicade. Good lucky with the Pentasa and Pred. Pred works fairly quickly I found, within a few weeks I was feeling a huge improvement, but by no means near 100%. All depends on your body and a number of other factors, good luck.
Posted 1/20/2013 7:11 PM (GMT 0)
Good to hear you're using the rectal meds....hope the change to Pentasa has you feeling better. Let us know how you're doing on it.

q
Posted 1/21/2013 2:36 AM (GMT 0)
Pentasa was the first drug I was on and i took it for over 4 months. It did not work for me, but I was not given prednisone with it either. Pred came after I had been on Pentasa for months with continuing blood and a weight loss of over 20 pounds.

The weirdest side effect I had from Pentasa was in the hottest heat of the summer, my stomach was always cool/cold to the touch. I could lay out in the sun on the beach in 100 degree weather, but if you touched my stomach it would be cold. It was so weird!
Posted 1/21/2013 2:44 AM (GMT 0)

Mad Martha said...
Have been using asacol suppossitories then pred foam since beginning of November with no avail. They seemed only to suppres the synptoms but not get rid. Plus I started to get evere lower abdominal pain whilst taking them. As soon as I stopped them the blood returned after two days.

I think you might have a better chance of getting off the rectals if you taper, rather than stopping cold turkey. I've used Rowasa enemas for years, and they've helped me stay in remission.
Posted 1/22/2013 9:18 PM (GMT 0)
WELL after taking Pentasa for 10 days, I am now back on Mezavant.

Pentasa just didn't seem to agree with me. It just made my symptoms even worse with bloody, watery d. Stopped it yesterday morning and this morning I had no blood.

Should have thought really because I can't use Pentasa suppossitories. It must be a brand thing.

Lets hope now that I can start getting better.
Posted 10/17/2014 5:22 PM (GMT 0)
I've been on Pentasa since March 2014. Prior to that, I was taking Asacol 400 mg four times a day and was doing very well (manufacturer discontinued). I've experienced a steady decline in my health since I started taking Pentasa, now having lost 12 pounds since March and I was not an overweight person to begin with. I am now to the point where I'm weak, dizzy, my heart is racing, and I'm extremely tired. My doctor sent me to the ER today (colonoscopy dr. Can't see me until December/ test likely 2 mos. away!!!) I couldn't find a parking place, was getting more and more tired, so I drove home. HOWEVER, I have had no symptoms of ulcerative colitis, passing blood, diarrhea, or any other symptoms like that. My PCP has now tested me in the last six weeks for almost everything I can think of and hasn't found the reason for this weight loss - but I am extremely frightened. Has anyone else experienced weight loss/ NO U.C. symptoms on Pentasa or can they shed any light on this situation? I almost feel like I have a bleed somewhere but he tested my hemoglobin this morning and it was okay but I feel like _____ (don't even have the strength to go grocery shopping.) Is this just a coincidence that all this happened when I started that medication? HELP!
Posted 10/17/2014 6:03 PM (GMT 0)
How's your vitamin D?
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