Fecal Transplant Log Part II

I'll keep you all updated on this thread I guess.  Although if I'm unfortunate enough to be a 'placebo' patient it might not be good news.  It's a double blind study so nobody knows what they are getting.

Fingers crossed I get the real McCoy.

I thought it would take longer.  My colon is inflamed pretty badly, I think it'll take a while to heal.

My biggest worry is whether I can retain the stuff for as long as necessary.  and at 8.15am it's usually one-way traffic in that area!

I'm a bit dubious as to how it went though.  The nurse adminsitering the enema seemed to have trouble locating a suitable 'entry point' for the syringe.   This was of course due to the hemmoroid/skin-tag assault-course around my sphinctre.  However, she persevered and eventually found the opening and to her credit without causing me any undue discomfort.    Problem is, that I immediately felt the 'fluid' spilling out as though it had hit a brick wall.   Now I know from my own experience in self-administered enemas, that there was always a degree of resistance which can restrict a smooth passage of fluid.    With regular practice, this became less of an issue.     I questioned her as to how much fluid had actually entered my rectum and she said "about half".   Upon what constituted a 'half' turned out to be about 30ml.   I'm thinking to myself that 60ml of fecal fluid (or placebo fluid) seemed a small amount when you consider that a hydrocort enema is usually 60ml (of which 20% is generally left in the bottle).

She assured me that my first infusion would not go down as a 'fail'.

On my next visit should I ask her if she will let me do the insertion of the syringe?

Anyways readers,  I'm not convinced about that.   My symptoms are the same (flaring).     On a more positive note, the nice people at the hospital changed my times.  My second (and all subsequent) infusions will start this Friday Feb. 8. at 1pm

It begs a question, judging from yesterday's episode,  should I be hoping I've got the placebo?     Nah, maybe not as that will definitely set me back another six weeks.     I will just have to believe!

I have mentioned details of this trial in previous posts but in case you missed it, in a nutshell it is a six-week trial at a university teaching hospital.   It is a 'double-blind' study (50% placebo) and the code is not broken until after six (weekly) infusions.

I'm not sure how many volunteers there are but I suspect it's in the many dozens.

The (anonymous) donors have been thoroughly screened to filter out any potentially dangerous infectious diseases.

There are official trials like this being carried out in Australia, Canada and Europe but I'm not sure about the US.  I do know there are some Americans taking part in this one as it's only 45 mins from the US border.   I don't believe they are getting it for free though.    If I turn out to be a placebo patient I get the option to continue on the right stuff for a further six weeks.

The objective is to formulate a consistant and effective method, and to eventually synthesize the fecal matter.   Who knows it may lead to a safe DIY 'kit'.

I mean, without messing about with blenders and other dubious methods you read about.   This is not a pop at some people who are enjoying a degree of success with their home grown attempts, I wish them all the best and hope they can maintain remission.

Not everyone is able to do (the home stuff) and the trials should take out a lot of the uncertainties and risks.

Now what are the odds of us both getting the placebo?  That would be a bummer.

(pun intended)

Maybe we should both share a new thread, seeing that we've just started a very important and intriguing programme  which I'm sure will interest a lot of people.

My next infusion is this Friday afternoon so if I'm up to it I'll post up a new thread later in the day.   Gotta think of a good name for it.

What about Bill and Ted's Excellent Anal Adventure  ?

Please readers, don't take that title seriously.

As per your request, I have started a dedicated thread titled 'OFFICIAL FT CLINICAL TRIAL'.    I don't know if the Intestinator made it in but I was rescheduled due to the big snow storm.

Been flaring for the past 7 weeks. My symptoms are not too bad right now, generally just 1 mostly formed bm per day, but with mucus.

I did my first "infusion" this morning and held for 6 hours. Then I had to go, and my bm was much worse than normal - almost all liquid/mucus.

Was my body just expelling what I put in? Or is FT making me worse? I'd think a bad reaction/flare increase would take longer than 6 hours to appear, but now I am really not sure if I should do any more FT's. I have heard of a few people getting worse with FT.

Opinions???